Enhancing Equitable Access to Rare Disease Diagnosis and Treatment around the World: A Review of Evidence, Policies, and Challenges

This document provides a comprehensive summary of evidence on the current situation of rare diseases (RDs) globally and regionally, including conditions, practices, policies, and regulations, as well as the challenges and barriers faced by RD patients, their families, and caregivers. The document bu...

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Detalles Bibliográficos
Autores principales: Adachi, Takeya, El-Hattab, Ayman W., Jain, Ritu, Nogales Crespo, Katya A., Quirland Lazo, Camila I., Scarpa, Maurizio, Summar, Marshall, Wattanasirichaigoon, Duangrurdee
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2023
Materias:
Review
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10049067/
https://www.ncbi.nlm.nih.gov/pubmed/36981643
http://dx.doi.org/10.3390/ijerph20064732

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