Cargando…

Time for More Support? Stakeholder Engagement for a Long-Term Care Planning Dementia Decision Aid Prototype

Clinical decision aids around long-term care can help support persons living with dementia (PLWD), family care partners, and healthcare providers navigate current and future care decisions. This study describes the iterative development of a long-term care planning dementia decision aid and explores...

Descripción completa

Detalles Bibliográficos
Autores principales: Huber, Kathryn, Cassidy, Jessica, Brungardt, Adreanne, Resman, Kathleen, Plys, Evan, Bogdewiecz, Taryn, Matlock, Dan D., Lum, Hillary D.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10064152/
https://www.ncbi.nlm.nih.gov/pubmed/37006886
http://dx.doi.org/10.1177/23337214231163033
_version_ 1785017850349486080
author Huber, Kathryn
Cassidy, Jessica
Brungardt, Adreanne
Resman, Kathleen
Plys, Evan
Bogdewiecz, Taryn
Matlock, Dan D.
Lum, Hillary D.
author_facet Huber, Kathryn
Cassidy, Jessica
Brungardt, Adreanne
Resman, Kathleen
Plys, Evan
Bogdewiecz, Taryn
Matlock, Dan D.
Lum, Hillary D.
author_sort Huber, Kathryn
collection PubMed
description Clinical decision aids around long-term care can help support persons living with dementia (PLWD), family care partners, and healthcare providers navigate current and future care decisions. This study describes the iterative development of a long-term care planning dementia decision aid and explores care partner and geriatric providers’ insights regarding its acceptability and usability. Using a convergent parallel mixed methods design, we gathered surveys and completed interviews with 11 care partners and 11 providers. The quantitative and qualitative data were then converged, resulting in four findings: (1) helpfulness of the decision aid in supporting future care planning; (2) versatility of the decision aid in practice; (3) preferences for structure and content of the decision aid; and (4) perceived shortcomings of the decision aid in decision making. Future work should continue to refine the decision aid, pilot implementation, and evaluate potential effects on decision making as part of dementia care.
format Online
Article
Text
id pubmed-10064152
institution National Center for Biotechnology Information
language English
publishDate 2023
publisher SAGE Publications
record_format MEDLINE/PubMed
spelling pubmed-100641522023-04-01 Time for More Support? Stakeholder Engagement for a Long-Term Care Planning Dementia Decision Aid Prototype Huber, Kathryn Cassidy, Jessica Brungardt, Adreanne Resman, Kathleen Plys, Evan Bogdewiecz, Taryn Matlock, Dan D. Lum, Hillary D. Gerontol Geriatr Med Article Clinical decision aids around long-term care can help support persons living with dementia (PLWD), family care partners, and healthcare providers navigate current and future care decisions. This study describes the iterative development of a long-term care planning dementia decision aid and explores care partner and geriatric providers’ insights regarding its acceptability and usability. Using a convergent parallel mixed methods design, we gathered surveys and completed interviews with 11 care partners and 11 providers. The quantitative and qualitative data were then converged, resulting in four findings: (1) helpfulness of the decision aid in supporting future care planning; (2) versatility of the decision aid in practice; (3) preferences for structure and content of the decision aid; and (4) perceived shortcomings of the decision aid in decision making. Future work should continue to refine the decision aid, pilot implementation, and evaluate potential effects on decision making as part of dementia care. SAGE Publications 2023-03-29 /pmc/articles/PMC10064152/ /pubmed/37006886 http://dx.doi.org/10.1177/23337214231163033 Text en © The Author(s) 2023 https://creativecommons.org/licenses/by-nc/4.0/This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Article
Huber, Kathryn
Cassidy, Jessica
Brungardt, Adreanne
Resman, Kathleen
Plys, Evan
Bogdewiecz, Taryn
Matlock, Dan D.
Lum, Hillary D.
Time for More Support? Stakeholder Engagement for a Long-Term Care Planning Dementia Decision Aid Prototype
title Time for More Support? Stakeholder Engagement for a Long-Term Care Planning Dementia Decision Aid Prototype
title_full Time for More Support? Stakeholder Engagement for a Long-Term Care Planning Dementia Decision Aid Prototype
title_fullStr Time for More Support? Stakeholder Engagement for a Long-Term Care Planning Dementia Decision Aid Prototype
title_full_unstemmed Time for More Support? Stakeholder Engagement for a Long-Term Care Planning Dementia Decision Aid Prototype
title_short Time for More Support? Stakeholder Engagement for a Long-Term Care Planning Dementia Decision Aid Prototype
title_sort time for more support? stakeholder engagement for a long-term care planning dementia decision aid prototype
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10064152/
https://www.ncbi.nlm.nih.gov/pubmed/37006886
http://dx.doi.org/10.1177/23337214231163033
work_keys_str_mv AT huberkathryn timeformoresupportstakeholderengagementforalongtermcareplanningdementiadecisionaidprototype
AT cassidyjessica timeformoresupportstakeholderengagementforalongtermcareplanningdementiadecisionaidprototype
AT brungardtadreanne timeformoresupportstakeholderengagementforalongtermcareplanningdementiadecisionaidprototype
AT resmankathleen timeformoresupportstakeholderengagementforalongtermcareplanningdementiadecisionaidprototype
AT plysevan timeformoresupportstakeholderengagementforalongtermcareplanningdementiadecisionaidprototype
AT bogdewiecztaryn timeformoresupportstakeholderengagementforalongtermcareplanningdementiadecisionaidprototype
AT matlockdand timeformoresupportstakeholderengagementforalongtermcareplanningdementiadecisionaidprototype
AT lumhillaryd timeformoresupportstakeholderengagementforalongtermcareplanningdementiadecisionaidprototype