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Time for More Support? Stakeholder Engagement for a Long-Term Care Planning Dementia Decision Aid Prototype
Clinical decision aids around long-term care can help support persons living with dementia (PLWD), family care partners, and healthcare providers navigate current and future care decisions. This study describes the iterative development of a long-term care planning dementia decision aid and explores...
Autores principales: | , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
SAGE Publications
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10064152/ https://www.ncbi.nlm.nih.gov/pubmed/37006886 http://dx.doi.org/10.1177/23337214231163033 |
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author | Huber, Kathryn Cassidy, Jessica Brungardt, Adreanne Resman, Kathleen Plys, Evan Bogdewiecz, Taryn Matlock, Dan D. Lum, Hillary D. |
author_facet | Huber, Kathryn Cassidy, Jessica Brungardt, Adreanne Resman, Kathleen Plys, Evan Bogdewiecz, Taryn Matlock, Dan D. Lum, Hillary D. |
author_sort | Huber, Kathryn |
collection | PubMed |
description | Clinical decision aids around long-term care can help support persons living with dementia (PLWD), family care partners, and healthcare providers navigate current and future care decisions. This study describes the iterative development of a long-term care planning dementia decision aid and explores care partner and geriatric providers’ insights regarding its acceptability and usability. Using a convergent parallel mixed methods design, we gathered surveys and completed interviews with 11 care partners and 11 providers. The quantitative and qualitative data were then converged, resulting in four findings: (1) helpfulness of the decision aid in supporting future care planning; (2) versatility of the decision aid in practice; (3) preferences for structure and content of the decision aid; and (4) perceived shortcomings of the decision aid in decision making. Future work should continue to refine the decision aid, pilot implementation, and evaluate potential effects on decision making as part of dementia care. |
format | Online Article Text |
id | pubmed-10064152 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | SAGE Publications |
record_format | MEDLINE/PubMed |
spelling | pubmed-100641522023-04-01 Time for More Support? Stakeholder Engagement for a Long-Term Care Planning Dementia Decision Aid Prototype Huber, Kathryn Cassidy, Jessica Brungardt, Adreanne Resman, Kathleen Plys, Evan Bogdewiecz, Taryn Matlock, Dan D. Lum, Hillary D. Gerontol Geriatr Med Article Clinical decision aids around long-term care can help support persons living with dementia (PLWD), family care partners, and healthcare providers navigate current and future care decisions. This study describes the iterative development of a long-term care planning dementia decision aid and explores care partner and geriatric providers’ insights regarding its acceptability and usability. Using a convergent parallel mixed methods design, we gathered surveys and completed interviews with 11 care partners and 11 providers. The quantitative and qualitative data were then converged, resulting in four findings: (1) helpfulness of the decision aid in supporting future care planning; (2) versatility of the decision aid in practice; (3) preferences for structure and content of the decision aid; and (4) perceived shortcomings of the decision aid in decision making. Future work should continue to refine the decision aid, pilot implementation, and evaluate potential effects on decision making as part of dementia care. SAGE Publications 2023-03-29 /pmc/articles/PMC10064152/ /pubmed/37006886 http://dx.doi.org/10.1177/23337214231163033 Text en © The Author(s) 2023 https://creativecommons.org/licenses/by-nc/4.0/This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage). |
spellingShingle | Article Huber, Kathryn Cassidy, Jessica Brungardt, Adreanne Resman, Kathleen Plys, Evan Bogdewiecz, Taryn Matlock, Dan D. Lum, Hillary D. Time for More Support? Stakeholder Engagement for a Long-Term Care Planning Dementia Decision Aid Prototype |
title | Time for More Support? Stakeholder Engagement for a Long-Term Care Planning Dementia Decision Aid Prototype |
title_full | Time for More Support? Stakeholder Engagement for a Long-Term Care Planning Dementia Decision Aid Prototype |
title_fullStr | Time for More Support? Stakeholder Engagement for a Long-Term Care Planning Dementia Decision Aid Prototype |
title_full_unstemmed | Time for More Support? Stakeholder Engagement for a Long-Term Care Planning Dementia Decision Aid Prototype |
title_short | Time for More Support? Stakeholder Engagement for a Long-Term Care Planning Dementia Decision Aid Prototype |
title_sort | time for more support? stakeholder engagement for a long-term care planning dementia decision aid prototype |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10064152/ https://www.ncbi.nlm.nih.gov/pubmed/37006886 http://dx.doi.org/10.1177/23337214231163033 |
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