Cargando…

Epilepsy and proxy‐reported health‐related quality of life in children and young people with non‐ambulatory cerebral palsy

AIM: To assess the association between epilepsy characteristics and proxy‐reported health‐related quality of life (HRQoL) in children and young people with non‐ambulatory cerebral palsy (CP) and seizures. METHOD: This was a cross‐sectional study of 164 children and young people (74 females, 90 males...

Descripción completa

Detalles Bibliográficos
Autores principales:	Ostendorf, Adam P., Axeen, Erika T., Eschbach, Krista, Fedak Romanowski, Erin, Morgan, Lindsey A., Gross, Paul, Narayanan, Unni G., Glader, Laurie, Noritz, Garey
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	John Wiley and Sons Inc. 2022
Materias:	Original Articles
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10084160/ https://www.ncbi.nlm.nih.gov/pubmed/35820144 http://dx.doi.org/10.1111/dmcn.15336

Ejemplares similares

Examining the Role of Sublingual Atropine for the Treatment of Sialorrhea in Patients with Neurodevelopmental Disabilities: A Retrospective Review
por: Petkus, Kayla Durkin, et al.
Publicado: (2023)

Cerebral Palsy Research Network Clinical Registry: Methodology and Baseline Report
por: Gross, Paul, et al.
Publicado: (2020)

Feeding tube use is associated with severe scoliosis in patients with cerebral palsy and limited ambulatory ability
por: Yoo, Nicholas, et al.
Publicado: (2022)

The PJ Nicholoff Steroid Protocol for Duchenne and Becker Muscular Dystrophy and Adrenal Suppression
por: Kinnett, Kathi, et al.
Publicado: (2017)

Evaluation of Pain in Adults With Childhood-Onset Disabilities and Communication Difficulties
por: Jersak, Taylor, et al.
Publicado: (2021)

Validation of the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) in a sample of Turkish non-ambulatory children with cerebral palsy
por: Şimşek, Tülay Tarsuslu, et al.
Publicado: (2019)

Use of a dynamic gait trainer for a child with thoracic level spinal cord injury
por: Altizer, Wendy, et al.
Publicado: (2017)

Indications for gastrocsoleus lengthening in ambulatory children with cerebral palsy: a Delphi consensus study
por: Rutz, Erich, et al.
Publicado: (2020)

Finding consensus for hamstring surgery in ambulatory children with cerebral palsy using the Delphi method
por: Kay, Robert M, et al.
Publicado: (2022)

Establishing surgical indications for hamstring lengthening and femoral derotational osteotomy in ambulatory children with cerebral palsy
por: McCarthy, James, et al.
Publicado: (2020)

COVID-19 in Patients With Seizures and Epilepsy: Interpretation of Relevant Knowledge of Presenting Signs and Symptoms
por: Hogan, Robert Edward, et al.
Publicado: (2020)

A Medical Translation Assistant for Non–English-Speaking Caregivers of Children With Special Health Care Needs: Proposal for a Scalable and Interoperable Mobile App
por: Sezgin, Emre, et al.
Publicado: (2020)

Feasibility of a Voice-Enabled Medical Diary App (SpeakHealth) for Caregivers of Children With Special Health Care Needs and Health Care Providers: Mixed Methods Study
por: Sezgin, Emre, et al.
Publicado: (2021)

Early childhood constraint therapy for sensory/motor impairment in cerebral palsy: a randomised clinical trial protocol
por: Chorna, Olena, et al.
Publicado: (2015)

Assessment of foot alignment and function for ambulatory children with cerebral palsy: Results of a modified Delphi technique consensus study
por: Davids, Jon R, et al.
Publicado: (2022)

“Learn From Every Patient”: How a Learning Health System Can Improve Patient Care
por: Noritz, Garey, et al.
Publicado: (2018)

“Hey Siri, Help Me Take Care of My Child”: A Feasibility Study With Caregivers of Children With Special Healthcare Needs Using Voice Interaction and Automatic Speech Recognition in Remote Care Management
por: Sezgin, Emre, et al.
Publicado: (2022)

Ambulatory cassette EEG in epilepsy diagnosis.
por: Ebersole, J. S.
Publicado: (1987)

Descriptive data on cardiovascular and metabolic risk factors in ambulatory and non-ambulatory adults with cerebral palsy
por: McPhee, P.G., et al.
Publicado: (2015)

Salivary gland ablation: introducing an interventional radiology treatment alternative in the management of sialorrhea
por: Begley, Katherine A., et al.
Publicado: (2020)

Distal femoral extension osteotomy and patellar tendon advancement or shortening in ambulatory children with cerebral palsy: A modified Delphi consensus study and literature review
por: Rutz, Erich, et al.
Publicado: (2022)

RESULTS OF ORTHOSES USED ON AMBULATORY PATIENTS WITH BILATERAL CEREBRAL PALSY
por: MELANDA, ALESSANDRO GIURIZATTO, et al.
Publicado: (2020)

What predicts the proxy-reported health-related quality of life of adolescents with cerebral palsy in Bangladesh?
por: Power, Rosalie, et al.
Publicado: (2020)

Lateralization of mesial temporal lobe epilepsy with chronic ambulatory electrocorticography
por: King-Stephens, David, et al.
Publicado: (2015)

Women with cerebral palsy: A qualitative study about their experiences with sexual and reproductive health education and services
por: Gray, Susan Hayden, et al.
Publicado: (2021)

Proxy
por: Kirschner, Emilie
Publicado: (2012)

Use of the Dyskinesia Impairment Scale in non‐ambulatory dyskinetic cerebral palsy
por: Haberfehlner, Helga, et al.
Publicado: (2019)

How to Help Your Patients Enroll in the New-Onset Refractory Status Epilepticus (NORSE) and Febrile Infection-Related Epilepsy Syndrome (FIRES) Family Registry, and Other Rare Epilepsy Registries
por: Kazazian, Karnig, et al.
Publicado: (2021)

A Blended Curriculum to Improve Resident Physical Exam Skills for Patients With Neuromuscular Disability
por: Benjamin, Jennifer C., et al.
Publicado: (2019)

Inactive and sedentary lifestyles amongst ambulatory adolescents and young adults with cerebral palsy
por: Nooijen, Carla FJ, et al.
Publicado: (2014)

Musculoskeletal Health in Active Ambulatory Men with Cerebral Palsy and the Impact of Vitamin D
por: Langley, Christina Kate, et al.
Publicado: (2021)

Relation of Musculoskeletal Strength and Function to Postural Stability in Ambulatory Adults With Cerebral Palsy
por: Jensen, Areum K., et al.
Publicado: (2020)

Lifelong Fitness in Ambulatory Children and Adolescents with Cerebral Palsy II: Influencing the Trajectory
por: Duff, Susan V., et al.
Publicado: (2023)

Inter-observer and intra-observer reliability in the radiographic diagnosis of avascular necrosis of the femoral head following reconstructive hip surgery in children with cerebral palsy
por: Hesketh, Kim, et al.
Publicado: (2016)

Development of six PROMIS pediatrics proxy-report item banks
por: Irwin, Debra E, et al.
Publicado: (2012)

Do Teachers Question the Reality of Pain in Their Students? A Survey Using the Concept of Pain Inventory-Proxy (COPI-Proxy)
por: Fechner, Rebecca, et al.
Publicado: (2023)

Placebo by proxy
por: Grelotti, David J, et al.
Publicado: (2011)

Trichotillomania by Proxy
por: De Sousa, Avinash
Publicado: (2015)

Prognostics by Proxy
Publicado: (1898)

Risk Factors of Intractable Epilepsy in Children with Cerebral Palsy
por: ABDEL MAKSOUD, Yehia Hamed, et al.
Publicado: (2021)

Cannot write session to /tmp/vufind_sessions/sess_40i832bbplsl0sfh05i0un1nrf