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What do stroke survivors want in stroke education and information provision in Australia?

Despite evidence that stroke education is important and effective, low rates of stroke education are reported worldwide. Many stroke survivors and carers report that current stroke information does not meet their needs. The aim of the current study was to explore the perceptions of stroke survivors...

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Autores principales: Finch, Emma, Minchell, Ellie, Cameron, Ashley, Jaques, Katherine, Lethlean, Jennifer, Shah, Darshan, Moro, Christian
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10084245/
https://www.ncbi.nlm.nih.gov/pubmed/35768909
http://dx.doi.org/10.1111/hsc.13896
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author Finch, Emma
Minchell, Ellie
Cameron, Ashley
Jaques, Katherine
Lethlean, Jennifer
Shah, Darshan
Moro, Christian
author_facet Finch, Emma
Minchell, Ellie
Cameron, Ashley
Jaques, Katherine
Lethlean, Jennifer
Shah, Darshan
Moro, Christian
author_sort Finch, Emma
collection PubMed
description Despite evidence that stroke education is important and effective, low rates of stroke education are reported worldwide. Many stroke survivors and carers report that current stroke information does not meet their needs. The aim of the current study was to explore the perceptions of stroke survivors and carers towards stroke education in an Australian health context. A qualitative descriptive approach using focus groups was used to explore education received and preferred content, format and timing of education. Data were analysed inductively using qualitative content analysis to identify key categories, sub‐categories and an overarching theme. Fifteen stroke survivors and four carers participated. Four categories emerged: the timing of stroke education, the content of stroke education, the format of stroke education, and reactions to stroke education. Each category contained a number of sub‐categories. One overarching theme was woven through the transcripts: everyone is different and has different needs. Overall, participants generally expressed positive attitudes towards stroke education. Participants reported that education should occur at multiple timepoints and in a mixed format. All participants reported receiving stroke education in hospital, but not in the community. Stroke survivors preferred group education, while carers did not share this preference. Both stroke survivors and carers desired information about post‐stroke physical changes and computer use; however, stroke survivors desired additional information spanning a variety of areas such as motivation and driving. Tailoring of stroke education for each individual is critical to ensure that education meets the needs of stroke survivors and carers from the hospital to the community.
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spelling pubmed-100842452023-04-11 What do stroke survivors want in stroke education and information provision in Australia? Finch, Emma Minchell, Ellie Cameron, Ashley Jaques, Katherine Lethlean, Jennifer Shah, Darshan Moro, Christian Health Soc Care Community Original Articles Despite evidence that stroke education is important and effective, low rates of stroke education are reported worldwide. Many stroke survivors and carers report that current stroke information does not meet their needs. The aim of the current study was to explore the perceptions of stroke survivors and carers towards stroke education in an Australian health context. A qualitative descriptive approach using focus groups was used to explore education received and preferred content, format and timing of education. Data were analysed inductively using qualitative content analysis to identify key categories, sub‐categories and an overarching theme. Fifteen stroke survivors and four carers participated. Four categories emerged: the timing of stroke education, the content of stroke education, the format of stroke education, and reactions to stroke education. Each category contained a number of sub‐categories. One overarching theme was woven through the transcripts: everyone is different and has different needs. Overall, participants generally expressed positive attitudes towards stroke education. Participants reported that education should occur at multiple timepoints and in a mixed format. All participants reported receiving stroke education in hospital, but not in the community. Stroke survivors preferred group education, while carers did not share this preference. Both stroke survivors and carers desired information about post‐stroke physical changes and computer use; however, stroke survivors desired additional information spanning a variety of areas such as motivation and driving. Tailoring of stroke education for each individual is critical to ensure that education meets the needs of stroke survivors and carers from the hospital to the community. John Wiley and Sons Inc. 2022-06-29 2022-11 /pmc/articles/PMC10084245/ /pubmed/35768909 http://dx.doi.org/10.1111/hsc.13896 Text en © 2022 The Authors. Health and Social Care in the Community published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Articles
Finch, Emma
Minchell, Ellie
Cameron, Ashley
Jaques, Katherine
Lethlean, Jennifer
Shah, Darshan
Moro, Christian
What do stroke survivors want in stroke education and information provision in Australia?
title What do stroke survivors want in stroke education and information provision in Australia?
title_full What do stroke survivors want in stroke education and information provision in Australia?
title_fullStr What do stroke survivors want in stroke education and information provision in Australia?
title_full_unstemmed What do stroke survivors want in stroke education and information provision in Australia?
title_short What do stroke survivors want in stroke education and information provision in Australia?
title_sort what do stroke survivors want in stroke education and information provision in australia?
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10084245/
https://www.ncbi.nlm.nih.gov/pubmed/35768909
http://dx.doi.org/10.1111/hsc.13896
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