Dilemmas when talking about Huntington's disease: A qualitative study of offspring and caregiver experiences in Norway

Research provides a compelling list of reasons why offspring should be included in honest conversations about disease when the disease affects their caregivers. Despite this, we lack in‐depth knowledge about how families affected by the severe and complex genetic condition Huntington's disease...

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Detalles Bibliográficos
Autores principales: Kjoelaas, Siri, Jensen, Tine K., Feragen, Kristin B.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Original Articles
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10087240/
https://www.ncbi.nlm.nih.gov/pubmed/35903951
http://dx.doi.org/10.1002/jgc4.1610

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10087240/
https://www.ncbi.nlm.nih.gov/pubmed/35903951
http://dx.doi.org/10.1002/jgc4.1610

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