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Dilemmas when talking about Huntington's disease: A qualitative study of offspring and caregiver experiences in Norway
Research provides a compelling list of reasons why offspring should be included in honest conversations about disease when the disease affects their caregivers. Despite this, we lack in‐depth knowledge about how families affected by the severe and complex genetic condition Huntington's disease...
| Autores principales: | , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
John Wiley and Sons Inc.
2022
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10087240/ https://www.ncbi.nlm.nih.gov/pubmed/35903951 http://dx.doi.org/10.1002/jgc4.1610 |