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Community‐based social care models for indigenous people with disability: A scoping review of scholarly and policy literature

Disability is experienced and understood by Indigenous people internationally in distinct ways from other populations, requiring different approaches in disability services. Furthermore, Indigenous populations access disability services at low rates. In response, policymakers, service providers and...

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Autores principales: Puszka, Stefanie, Walsh, Corinne, Markham, Francis, Barney, Jody, Yap, Mandy, Dreise, Tony
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10087272/
https://www.ncbi.nlm.nih.gov/pubmed/36151739
http://dx.doi.org/10.1111/hsc.14040
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author Puszka, Stefanie
Walsh, Corinne
Markham, Francis
Barney, Jody
Yap, Mandy
Dreise, Tony
author_facet Puszka, Stefanie
Walsh, Corinne
Markham, Francis
Barney, Jody
Yap, Mandy
Dreise, Tony
author_sort Puszka, Stefanie
collection PubMed
description Disability is experienced and understood by Indigenous people internationally in distinct ways from other populations, requiring different approaches in disability services. Furthermore, Indigenous populations access disability services at low rates. In response, policymakers, service providers and Indigenous organisations have developed specific models of care for Indigenous people with disability. Social care services, comprising personal care, transport and social activities, can support Indigenous people with disability to live with their families and in their communities. However, little is known about the range of social care models for Indigenous people with disability. To inform policy and practice, we conducted a scoping review of community‐based models of social care designed to meet the needs of Indigenous peoples in Australia, Aotearoa New Zealand, Canada and the United States. Our methods were informed by best practice scoping review principles and a collaborative approach that centred Indigenous voices within research appraisal and project governance processes. Literature searches (conducted March–April 2021) yielded 25 results reporting on 10 models of care. We identified two over‐arching themes (funding and governance arrangements; service delivery design) that encompass nine key characteristics of the included models. Our analysis shows promising practice in contextually relevant place‐based social activity programs, support and remuneration for family carers and workforce strategies that integrate Indigenous staff roles with kinship relationships and social roles. While more research and evaluation are needed, disability funding bodies and service systems that facilitate these areas of promising practice may improve the accessibility of social care for Indigenous peoples.
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spelling pubmed-100872722023-04-12 Community‐based social care models for indigenous people with disability: A scoping review of scholarly and policy literature Puszka, Stefanie Walsh, Corinne Markham, Francis Barney, Jody Yap, Mandy Dreise, Tony Health Soc Care Community Review Articles Disability is experienced and understood by Indigenous people internationally in distinct ways from other populations, requiring different approaches in disability services. Furthermore, Indigenous populations access disability services at low rates. In response, policymakers, service providers and Indigenous organisations have developed specific models of care for Indigenous people with disability. Social care services, comprising personal care, transport and social activities, can support Indigenous people with disability to live with their families and in their communities. However, little is known about the range of social care models for Indigenous people with disability. To inform policy and practice, we conducted a scoping review of community‐based models of social care designed to meet the needs of Indigenous peoples in Australia, Aotearoa New Zealand, Canada and the United States. Our methods were informed by best practice scoping review principles and a collaborative approach that centred Indigenous voices within research appraisal and project governance processes. Literature searches (conducted March–April 2021) yielded 25 results reporting on 10 models of care. We identified two over‐arching themes (funding and governance arrangements; service delivery design) that encompass nine key characteristics of the included models. Our analysis shows promising practice in contextually relevant place‐based social activity programs, support and remuneration for family carers and workforce strategies that integrate Indigenous staff roles with kinship relationships and social roles. While more research and evaluation are needed, disability funding bodies and service systems that facilitate these areas of promising practice may improve the accessibility of social care for Indigenous peoples. John Wiley and Sons Inc. 2022-09-23 2022-11 /pmc/articles/PMC10087272/ /pubmed/36151739 http://dx.doi.org/10.1111/hsc.14040 Text en © 2022 The Authors. Health and Social Care in the Community published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ (https://creativecommons.org/licenses/by-nc-nd/4.0/) License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
spellingShingle Review Articles
Puszka, Stefanie
Walsh, Corinne
Markham, Francis
Barney, Jody
Yap, Mandy
Dreise, Tony
Community‐based social care models for indigenous people with disability: A scoping review of scholarly and policy literature
title Community‐based social care models for indigenous people with disability: A scoping review of scholarly and policy literature
title_full Community‐based social care models for indigenous people with disability: A scoping review of scholarly and policy literature
title_fullStr Community‐based social care models for indigenous people with disability: A scoping review of scholarly and policy literature
title_full_unstemmed Community‐based social care models for indigenous people with disability: A scoping review of scholarly and policy literature
title_short Community‐based social care models for indigenous people with disability: A scoping review of scholarly and policy literature
title_sort community‐based social care models for indigenous people with disability: a scoping review of scholarly and policy literature
topic Review Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10087272/
https://www.ncbi.nlm.nih.gov/pubmed/36151739
http://dx.doi.org/10.1111/hsc.14040
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