Teaching perspectives on the communication of difficult news of genetic conditions to medical students

Informing parents that their child has a diagnosis of Down syndrome (DS) is a common example of the delivery of unexpected or difficult news. Expectations and life planning will change, and if detected prenatally, discussions might include the option of pregnancy termination. Medical school curricul...

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Autores principales: Vanasse, Ashley M., Weiler, Tracey, Roth, Elizabeth A., Upadhya, Sharmila, Toriello, Helga V., VanLeuven, Ariel J., Norris, John R., Carey, John C., Sobering, Andrew K.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley & Sons, Inc. 2022
Materias:
Essay
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10092636/
https://www.ncbi.nlm.nih.gov/pubmed/36286987
http://dx.doi.org/10.1002/ajmg.a.63003
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author Vanasse, Ashley M.
Weiler, Tracey
Roth, Elizabeth A.
Upadhya, Sharmila
Toriello, Helga V.
VanLeuven, Ariel J.
Norris, John R.
Carey, John C.
Sobering, Andrew K.
author_facet Vanasse, Ashley M.
Weiler, Tracey
Roth, Elizabeth A.
Upadhya, Sharmila
Toriello, Helga V.
VanLeuven, Ariel J.
Norris, John R.
Carey, John C.
Sobering, Andrew K.
author_sort Vanasse, Ashley M.
collection PubMed
description Informing parents that their child has a diagnosis of Down syndrome (DS) is a common example of the delivery of unexpected or difficult news. Expectations and life planning will change, and if detected prenatally, discussions might include the option of pregnancy termination. Medical school curricula currently include training in breaking unexpected news; however, it is difficult to teach and assess. We use the perspectives of clinicians, educators, and a medical student who is the parent of a child with DS to frame a discussion on teaching, practicing, and assessing communication of difficult news in human genetics during medical school.
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spelling pubmed-100926362023-04-13 Teaching perspectives on the communication of difficult news of genetic conditions to medical students Vanasse, Ashley M. Weiler, Tracey Roth, Elizabeth A. Upadhya, Sharmila Toriello, Helga V. VanLeuven, Ariel J. Norris, John R. Carey, John C. Sobering, Andrew K. Am J Med Genet A Essay Informing parents that their child has a diagnosis of Down syndrome (DS) is a common example of the delivery of unexpected or difficult news. Expectations and life planning will change, and if detected prenatally, discussions might include the option of pregnancy termination. Medical school curricula currently include training in breaking unexpected news; however, it is difficult to teach and assess. We use the perspectives of clinicians, educators, and a medical student who is the parent of a child with DS to frame a discussion on teaching, practicing, and assessing communication of difficult news in human genetics during medical school. John Wiley & Sons, Inc. 2022-10-26 2023-01 /pmc/articles/PMC10092636/ /pubmed/36286987 http://dx.doi.org/10.1002/ajmg.a.63003 Text en © 2022 The Authors. American Journal of Medical Genetics Part A published by Wiley Periodicals LLC. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Essay
Vanasse, Ashley M.
Weiler, Tracey
Roth, Elizabeth A.
Upadhya, Sharmila
Toriello, Helga V.
VanLeuven, Ariel J.
Norris, John R.
Carey, John C.
Sobering, Andrew K.
Teaching perspectives on the communication of difficult news of genetic conditions to medical students
title Teaching perspectives on the communication of difficult news of genetic conditions to medical students
title_full Teaching perspectives on the communication of difficult news of genetic conditions to medical students
title_fullStr Teaching perspectives on the communication of difficult news of genetic conditions to medical students
title_full_unstemmed Teaching perspectives on the communication of difficult news of genetic conditions to medical students
title_short Teaching perspectives on the communication of difficult news of genetic conditions to medical students
title_sort teaching perspectives on the communication of difficult news of genetic conditions to medical students
topic Essay
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10092636/
https://www.ncbi.nlm.nih.gov/pubmed/36286987
http://dx.doi.org/10.1002/ajmg.a.63003
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