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‘Don’t think that we die from AIDS’: Invisibilised uncertainty and global transgender health

The invisibilisation of social groups in health research and survey data is a source of medical uncertainty, long seen as a hallmark of the medical field. However, scholarship has not thoroughly assessed how medical uncertainty is structured by state‐level processes and global health agendas, especi...

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Detalles Bibliográficos
Autor principal: Farber, Reya
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10092730/
https://www.ncbi.nlm.nih.gov/pubmed/36254702
http://dx.doi.org/10.1111/1467-9566.13563
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author Farber, Reya
author_facet Farber, Reya
author_sort Farber, Reya
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description The invisibilisation of social groups in health research and survey data is a source of medical uncertainty, long seen as a hallmark of the medical field. However, scholarship has not thoroughly assessed how medical uncertainty is structured by state‐level processes and global health agendas, especially for people beyond the Global North. This article introduces invisibilised uncertainty as a type of medical uncertainty structured by global organisational and state‐level priorities, which can invisibilise social groups and health problems from research and data collection, exacerbating medical uncertainty and health disparities for people worldwide. Based on 14 months of fieldwork in Thailand and in‐depth interviews with 62 participants, the article illuminates how state‐level processes and global clinical research agendas have structured knowledge gaps and uncertainties for Thai transgender women. As omissions in health research and data collection become embodied on a world scale, the article expands our understandings of how gendered health disparities are structured nationally and globally. It advances a sociology of medical ignorance by analysing the uneven landscape of holistic transgender health research, parsing how institutional dynamics can prioritise or invisibilise people and health issues in research and data, and structure uncertainties.
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spelling pubmed-100927302023-04-13 ‘Don’t think that we die from AIDS’: Invisibilised uncertainty and global transgender health Farber, Reya Sociol Health Illn Original Articles The invisibilisation of social groups in health research and survey data is a source of medical uncertainty, long seen as a hallmark of the medical field. However, scholarship has not thoroughly assessed how medical uncertainty is structured by state‐level processes and global health agendas, especially for people beyond the Global North. This article introduces invisibilised uncertainty as a type of medical uncertainty structured by global organisational and state‐level priorities, which can invisibilise social groups and health problems from research and data collection, exacerbating medical uncertainty and health disparities for people worldwide. Based on 14 months of fieldwork in Thailand and in‐depth interviews with 62 participants, the article illuminates how state‐level processes and global clinical research agendas have structured knowledge gaps and uncertainties for Thai transgender women. As omissions in health research and data collection become embodied on a world scale, the article expands our understandings of how gendered health disparities are structured nationally and globally. It advances a sociology of medical ignorance by analysing the uneven landscape of holistic transgender health research, parsing how institutional dynamics can prioritise or invisibilise people and health issues in research and data, and structure uncertainties. John Wiley and Sons Inc. 2022-10-18 2023-01 /pmc/articles/PMC10092730/ /pubmed/36254702 http://dx.doi.org/10.1111/1467-9566.13563 Text en © 2022 The Authors. Sociology of Health & Illness published by John Wiley & Sons Ltd on behalf of Foundation for the Sociology of Health & Illness. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ (https://creativecommons.org/licenses/by-nc-nd/4.0/) License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
spellingShingle Original Articles
Farber, Reya
‘Don’t think that we die from AIDS’: Invisibilised uncertainty and global transgender health
title ‘Don’t think that we die from AIDS’: Invisibilised uncertainty and global transgender health
title_full ‘Don’t think that we die from AIDS’: Invisibilised uncertainty and global transgender health
title_fullStr ‘Don’t think that we die from AIDS’: Invisibilised uncertainty and global transgender health
title_full_unstemmed ‘Don’t think that we die from AIDS’: Invisibilised uncertainty and global transgender health
title_short ‘Don’t think that we die from AIDS’: Invisibilised uncertainty and global transgender health
title_sort ‘don’t think that we die from aids’: invisibilised uncertainty and global transgender health
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10092730/
https://www.ncbi.nlm.nih.gov/pubmed/36254702
http://dx.doi.org/10.1111/1467-9566.13563
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