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Never “totally prepared”: Support groups on helping families prepare for a child with a genetic condition

A rapid increase in the reach and breadth of prenatal genetic screening and testing has led to an expanding need for prenatal support of families receiving this genetic information. As part of a larger study investigating prenatal preparation for a child with a genetic condition, we interviewed repr...

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Detalles Bibliográficos
Autores principales: Craig, Kaitlynn P., Riggan, Kirsten A., Rubeck, Sabina, Meredith, Stephanie H., Allyse, Megan A., Michie, Marsha
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10092915/
https://www.ncbi.nlm.nih.gov/pubmed/37046173
http://dx.doi.org/10.1007/s12687-023-00646-y