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Experiences of Health Care and Psychosocial Needs in Parents of Children with Spinal Muscular Atrophy

Spinal muscular atrophy (SMA) is a neurodegenerative disorder that is characterized by progressive weakness, respiratory insufficiency, and dysphagia. Due to symptom burden and disease progress, its care management and impact on daily life can severely burden the families of affected children. The o...

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Detalles Bibliográficos
Autores principales:	Inhestern, Laura, Brandt, Maja, Driemeyer, Joenna, Denecke, Jonas, Johannsen, Jessika, Bergelt, Corinna
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	MDPI 2023
Materias:	Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10094281/ https://www.ncbi.nlm.nih.gov/pubmed/37047974 http://dx.doi.org/10.3390/ijerph20075360

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