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Quality of life measurement tools for people with dementia and intellectual disabilities: A systematic review

BACKGROUND: Adults with intellectual disabilities are an at‐risk group of developing dementia. In the absence of a cure for dementia, emphasis on treatment is the promotion of Quality of life (QoL). The aim of this review is to identify and describe QoL tools for people with intellectual disabilitie...

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Detalles Bibliográficos
Autores principales: Tsang, Winnie, Oliver, David, Triantafyllopoulou, Paraskevi
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Blackwell Publishing Ltd 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10099806/
https://www.ncbi.nlm.nih.gov/pubmed/36380473
http://dx.doi.org/10.1111/jar.13050
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author Tsang, Winnie
Oliver, David
Triantafyllopoulou, Paraskevi
author_facet Tsang, Winnie
Oliver, David
Triantafyllopoulou, Paraskevi
author_sort Tsang, Winnie
collection PubMed
description BACKGROUND: Adults with intellectual disabilities are an at‐risk group of developing dementia. In the absence of a cure for dementia, emphasis on treatment is the promotion of Quality of life (QoL). The aim of this review is to identify and describe QoL tools for people with intellectual disabilities and dementia. METHOD: A systematic review was carried out using 10 databases and papers from up to March year 2021. RESULTS: Two instruments were identified and examined. The QoL in late‐stage dementia, which showed evidence of good levels of internal consistency, intra‐rater reliability, test–retest reliability, and convergent validity. The Dementia Quality of Life – proxy was also used; however, its psychometric properties have yet to be studied within the intellectual disabilities population. CONCLUSION: It is recommended instruments should be developed and psychometrically tested specifically for adults with intellectual disabilities and dementia to help inform policy makers, measure outcomes of interventions and personal outcomes.
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spelling pubmed-100998062023-04-14 Quality of life measurement tools for people with dementia and intellectual disabilities: A systematic review Tsang, Winnie Oliver, David Triantafyllopoulou, Paraskevi J Appl Res Intellect Disabil Reviews BACKGROUND: Adults with intellectual disabilities are an at‐risk group of developing dementia. In the absence of a cure for dementia, emphasis on treatment is the promotion of Quality of life (QoL). The aim of this review is to identify and describe QoL tools for people with intellectual disabilities and dementia. METHOD: A systematic review was carried out using 10 databases and papers from up to March year 2021. RESULTS: Two instruments were identified and examined. The QoL in late‐stage dementia, which showed evidence of good levels of internal consistency, intra‐rater reliability, test–retest reliability, and convergent validity. The Dementia Quality of Life – proxy was also used; however, its psychometric properties have yet to be studied within the intellectual disabilities population. CONCLUSION: It is recommended instruments should be developed and psychometrically tested specifically for adults with intellectual disabilities and dementia to help inform policy makers, measure outcomes of interventions and personal outcomes. Blackwell Publishing Ltd 2022-11-15 2023-01 /pmc/articles/PMC10099806/ /pubmed/36380473 http://dx.doi.org/10.1111/jar.13050 Text en © 2022 The Authors. Journal of Applied Research in Intellectual Disabilities published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by-nc/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.
spellingShingle Reviews
Tsang, Winnie
Oliver, David
Triantafyllopoulou, Paraskevi
Quality of life measurement tools for people with dementia and intellectual disabilities: A systematic review
title Quality of life measurement tools for people with dementia and intellectual disabilities: A systematic review
title_full Quality of life measurement tools for people with dementia and intellectual disabilities: A systematic review
title_fullStr Quality of life measurement tools for people with dementia and intellectual disabilities: A systematic review
title_full_unstemmed Quality of life measurement tools for people with dementia and intellectual disabilities: A systematic review
title_short Quality of life measurement tools for people with dementia and intellectual disabilities: A systematic review
title_sort quality of life measurement tools for people with dementia and intellectual disabilities: a systematic review
topic Reviews
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10099806/
https://www.ncbi.nlm.nih.gov/pubmed/36380473
http://dx.doi.org/10.1111/jar.13050
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