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What are the factors associated with people with advanced dementia refusing assistance with personal care?

BACKGROUND: People with dementia sometimes refuse assistance with personal care activities such as washing or dressing. We aimed to investigate the factors associated with refusals of care in advanced dementia. METHODS: A cross‐sectional study using informant‐based measures. Participants were people...

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Autores principales: Backhouse, Tamara, Killett, Anne, Mioshi, Eneida, Khondoker, Mizanur
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10107826/
https://www.ncbi.nlm.nih.gov/pubmed/36490270
http://dx.doi.org/10.1002/gps.5857
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author Backhouse, Tamara
Killett, Anne
Mioshi, Eneida
Khondoker, Mizanur
author_facet Backhouse, Tamara
Killett, Anne
Mioshi, Eneida
Khondoker, Mizanur
author_sort Backhouse, Tamara
collection PubMed
description BACKGROUND: People with dementia sometimes refuse assistance with personal care activities such as washing or dressing. We aimed to investigate the factors associated with refusals of care in advanced dementia. METHODS: A cross‐sectional study using informant‐based measures. Participants were people with advanced dementia and their caregivers (family carers or care‐home staff) (n = 260, 130 dyads) in the UK. Mixed effects linear models were used to examine the effects of neuropsychiatric behaviours, ability with activities of daily living, professional input, co‐morbidities, psychotropic medications, environment modifications, and caregiver factors including type and training status on refusals of care. The Refusal of Care Informant Scale was used, range 1–13; higher scores indicate more refusal behaviours. RESULTS: Higher independence in activities of daily living was associated with less refusal behaviours (coefficient = −0.11, p < 0.001 [95% confidence interval −0.15, −0.07]). Higher agitation was associated with more refusal behaviours (0.11, p < 0.001 [0.06, 0.15]). No other statistically significant differences were found. There was no demonstrable evidence of differences in number of refusals of care between family and care‐home caregivers or between dementia‐trained or ‐untrained caregivers. CONCLUSIONS: Results suggest refusals of care have similar prevalence regardless of caregiver type (family or care home) or dementia training status, indicating that current dementia training has no impact on refusals of care or may not be implemented as intended. Improving independence in activities of daily living and reducing agitations may help prevent refusals of care. To establish causality, future research should consider embedding these factors into interventions targeting refusal of care.
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spelling pubmed-101078262023-04-18 What are the factors associated with people with advanced dementia refusing assistance with personal care? Backhouse, Tamara Killett, Anne Mioshi, Eneida Khondoker, Mizanur Int J Geriatr Psychiatry Research Article BACKGROUND: People with dementia sometimes refuse assistance with personal care activities such as washing or dressing. We aimed to investigate the factors associated with refusals of care in advanced dementia. METHODS: A cross‐sectional study using informant‐based measures. Participants were people with advanced dementia and their caregivers (family carers or care‐home staff) (n = 260, 130 dyads) in the UK. Mixed effects linear models were used to examine the effects of neuropsychiatric behaviours, ability with activities of daily living, professional input, co‐morbidities, psychotropic medications, environment modifications, and caregiver factors including type and training status on refusals of care. The Refusal of Care Informant Scale was used, range 1–13; higher scores indicate more refusal behaviours. RESULTS: Higher independence in activities of daily living was associated with less refusal behaviours (coefficient = −0.11, p < 0.001 [95% confidence interval −0.15, −0.07]). Higher agitation was associated with more refusal behaviours (0.11, p < 0.001 [0.06, 0.15]). No other statistically significant differences were found. There was no demonstrable evidence of differences in number of refusals of care between family and care‐home caregivers or between dementia‐trained or ‐untrained caregivers. CONCLUSIONS: Results suggest refusals of care have similar prevalence regardless of caregiver type (family or care home) or dementia training status, indicating that current dementia training has no impact on refusals of care or may not be implemented as intended. Improving independence in activities of daily living and reducing agitations may help prevent refusals of care. To establish causality, future research should consider embedding these factors into interventions targeting refusal of care. John Wiley and Sons Inc. 2022-12-09 2023-01 /pmc/articles/PMC10107826/ /pubmed/36490270 http://dx.doi.org/10.1002/gps.5857 Text en © 2022 The Authors. International Journal of Geriatric Psychiatry published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Research Article
Backhouse, Tamara
Killett, Anne
Mioshi, Eneida
Khondoker, Mizanur
What are the factors associated with people with advanced dementia refusing assistance with personal care?
title What are the factors associated with people with advanced dementia refusing assistance with personal care?
title_full What are the factors associated with people with advanced dementia refusing assistance with personal care?
title_fullStr What are the factors associated with people with advanced dementia refusing assistance with personal care?
title_full_unstemmed What are the factors associated with people with advanced dementia refusing assistance with personal care?
title_short What are the factors associated with people with advanced dementia refusing assistance with personal care?
title_sort what are the factors associated with people with advanced dementia refusing assistance with personal care?
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10107826/
https://www.ncbi.nlm.nih.gov/pubmed/36490270
http://dx.doi.org/10.1002/gps.5857
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