Examining the Real‐Life Journey of Individuals and Families Affected by Single‐Ventricle Congenital Heart Disease

BACKGROUND: The lifetime journey of patients with single‐ventricle congenital heart disease is characterized by long‐term challenges that are incompletely understood and still unfolding. Health care redesign requires a thorough understanding of this journey to create and implement solutions that imp...

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Detalles Bibliográficos
Autores principales: Mery, Carlos M., Well, Andrew, Taylor, Kate, Carberry, Kathleen, Colucci, José, Ulack, Christopher, Zeiner, Adam, Mizrahi, Michelle, Stewart, Eileen, Dillingham, Christine, Cook, Taylor, Hartounian, Arotin, McCullum, Elizabeth, Affolter, Jeremy T., Van Diest, Heather, Lamari‐Fisher, Alexandra, Chang, Stacey, Wallace, Scott, Teisberg, Elizabeth, Fraser, Charles D.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2023
Materias:
Original Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10111463/
https://www.ncbi.nlm.nih.gov/pubmed/36802928
http://dx.doi.org/10.1161/JAHA.122.027556

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