Cargando…
Experience with telemedicine in neuromuscular clinic during COVID-19 pandemic
OBJECTIVES: The aim of the present study was to evaluate the feasibility and acceptability of telehealth for the care of neuromuscular patients during the COVID-19 pandemic. METHODS: Neuromuscular patients or their caregivers, as well as health care providers (HCPs), who completed a televisit during...
Autores principales: | , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Pacini Editore Srl
2023
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10115397/ https://www.ncbi.nlm.nih.gov/pubmed/37091527 http://dx.doi.org/10.36185/2532-1900-245 |
_version_ | 1785028205611057152 |
---|---|
author | Ghasemi, Mehdi Poulliot, Kristy Daniello, Kate M. Silver, Brian |
author_facet | Ghasemi, Mehdi Poulliot, Kristy Daniello, Kate M. Silver, Brian |
author_sort | Ghasemi, Mehdi |
collection | PubMed |
description | OBJECTIVES: The aim of the present study was to evaluate the feasibility and acceptability of telehealth for the care of neuromuscular patients during the COVID-19 pandemic. METHODS: Neuromuscular patients or their caregivers, as well as health care providers (HCPs), who completed a televisit during the pandemic received an online survey, assessing satisfaction with the visit, quality of care, and experience with the televisit interference. RESULTS: Surveys from 46 neuromuscular patients (including 18 with motor neuron disease [MND])/caregivers and 7 HCPs were completed. Several aspects of televisits including good communication, adequate time to discuss concern, provision of equal care, and telemedicine interference were rated favorably among participants. Telehealth was strongly satisfactory in 30 (65.22%) and satisfactory in 15 (32.61%) neuromuscular patients/caregivers. In 18 MND patients, this was 10 (55.56%) and 7 (38.89%), respectively. Moreover, 24 (52.17%) neuromuscular patients/caregivers would strongly agree and 18 (39.13%) would agree to participate again in televisits. This was 10 (55.56%) and 4 (33.33%) for MND cases, respectively. Various medical issues were addressed during the televisits including medication management, ordering tests/referrals, discussion of goals of care, and research. The predictive stepwise logistic model found younger age as a predicting factor for higher satisfaction from, or participation again in, televisits in neuromuscular patients. Limb onset location was also a predicting factor for strong satisfaction from televisits in MND cases. CONCLUSIONS: Telemedicine is feasible and highly effective at achieving personalized care that was rated satisfactory by the majority of neuromuscular patients/caregivers and HCPs during the COVID-19 pandemic. |
format | Online Article Text |
id | pubmed-10115397 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | Pacini Editore Srl |
record_format | MEDLINE/PubMed |
spelling | pubmed-101153972023-04-20 Experience with telemedicine in neuromuscular clinic during COVID-19 pandemic Ghasemi, Mehdi Poulliot, Kristy Daniello, Kate M. Silver, Brian Acta Myol Original Article OBJECTIVES: The aim of the present study was to evaluate the feasibility and acceptability of telehealth for the care of neuromuscular patients during the COVID-19 pandemic. METHODS: Neuromuscular patients or their caregivers, as well as health care providers (HCPs), who completed a televisit during the pandemic received an online survey, assessing satisfaction with the visit, quality of care, and experience with the televisit interference. RESULTS: Surveys from 46 neuromuscular patients (including 18 with motor neuron disease [MND])/caregivers and 7 HCPs were completed. Several aspects of televisits including good communication, adequate time to discuss concern, provision of equal care, and telemedicine interference were rated favorably among participants. Telehealth was strongly satisfactory in 30 (65.22%) and satisfactory in 15 (32.61%) neuromuscular patients/caregivers. In 18 MND patients, this was 10 (55.56%) and 7 (38.89%), respectively. Moreover, 24 (52.17%) neuromuscular patients/caregivers would strongly agree and 18 (39.13%) would agree to participate again in televisits. This was 10 (55.56%) and 4 (33.33%) for MND cases, respectively. Various medical issues were addressed during the televisits including medication management, ordering tests/referrals, discussion of goals of care, and research. The predictive stepwise logistic model found younger age as a predicting factor for higher satisfaction from, or participation again in, televisits in neuromuscular patients. Limb onset location was also a predicting factor for strong satisfaction from televisits in MND cases. CONCLUSIONS: Telemedicine is feasible and highly effective at achieving personalized care that was rated satisfactory by the majority of neuromuscular patients/caregivers and HCPs during the COVID-19 pandemic. Pacini Editore Srl 2023-03-31 /pmc/articles/PMC10115397/ /pubmed/37091527 http://dx.doi.org/10.36185/2532-1900-245 Text en ©2023 Gaetano Conte Academy - Mediterranean Society of Myology, Naples, Italy https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article distributed in accordance with the CC-BY-NC-ND (Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International) license. The article can be used by giving appropriate credit and mentioning the license, but only for non-commercial purposes and only in the original version. For further information: https://creativecommons.org/licenses/by-nc-nd/4.0/deed.en |
spellingShingle | Original Article Ghasemi, Mehdi Poulliot, Kristy Daniello, Kate M. Silver, Brian Experience with telemedicine in neuromuscular clinic during COVID-19 pandemic |
title | Experience with telemedicine in neuromuscular clinic during COVID-19 pandemic |
title_full | Experience with telemedicine in neuromuscular clinic during COVID-19 pandemic |
title_fullStr | Experience with telemedicine in neuromuscular clinic during COVID-19 pandemic |
title_full_unstemmed | Experience with telemedicine in neuromuscular clinic during COVID-19 pandemic |
title_short | Experience with telemedicine in neuromuscular clinic during COVID-19 pandemic |
title_sort | experience with telemedicine in neuromuscular clinic during covid-19 pandemic |
topic | Original Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10115397/ https://www.ncbi.nlm.nih.gov/pubmed/37091527 http://dx.doi.org/10.36185/2532-1900-245 |
work_keys_str_mv | AT ghasemimehdi experiencewithtelemedicineinneuromuscularclinicduringcovid19pandemic AT poulliotkristy experiencewithtelemedicineinneuromuscularclinicduringcovid19pandemic AT daniellokatem experiencewithtelemedicineinneuromuscularclinicduringcovid19pandemic AT silverbrian experiencewithtelemedicineinneuromuscularclinicduringcovid19pandemic |