Toward patient-centered treatment goals for duchenne muscular dystrophy: insights from the “Your Voice” study

BACKGROUND: Patient-centered research has emerged as critically important for understanding the impact of treatments on key stakeholders. The subjective experience of quality of life (QOL) is increasingly recognized as fundamental to delineating treatment goals. The present study utilized content an...

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Detalles Bibliográficos
Autores principales: Schwartz, Carolyn E., Jackson, Skyler, Valentine, James, Miller, Natalie, Lowes, Linda, Edwards, Danielle, McSherry, Christine, Savva, Dimitrios, Lowe, Alex, McSherry, Jordan, Engel, Patti
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10116803/
https://www.ncbi.nlm.nih.gov/pubmed/37081508
http://dx.doi.org/10.1186/s13023-023-02674-w

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