Cargando…

Evaluating the TUITEK(®) patient support program in supporting caregivers of children diagnosed with growth hormone deficiency in Argentina

INTRODUCTION: The appropriate use of recombinant human growth hormone (r-hGH) treatment provides an opportunity to improve growth outcomes among pediatric patients with growth hormone deficiency (GHD). However, a major challenge in clinical practice is to adequately recognize and address factors tha...

Descripción completa

Detalles Bibliográficos
Autores principales:	Assefi, Aria Reza, Graham, Selina, Crespo, María Lourdes, Debicki, Matías, Reston, Jonathan, Gonzalez, Judit, Jheeta, Amrit, Koledova, Ekaterina
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Frontiers Media S.A. 2023
Materias:	Endocrinology
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10117813/ https://www.ncbi.nlm.nih.gov/pubmed/37091843 http://dx.doi.org/10.3389/fendo.2023.1129385

Ejemplares similares

Investigating the Impact of the TUITEK(®) Patient Support Programme, Designed to Support Caregivers of Children Prescribed Recombinant Human Growth Hormone Treatment in Taiwan
por: Su, Pen-Hua, et al.
Publicado: (2022)

Designing a Personalized Digital Patient Support Program for Patients Treated With Growth Hormone: Key Design Considerations
por: Malik, Sumaira, et al.
Publicado: (2020)

Adherence to Growth Hormone Treatment Using a Connected Device in Latin America: Real-World Exploratory Descriptive Analysis Study
por: Assefi, Aria, et al.
Publicado: (2022)

An examination of advanced cancer caregivers’ support provided by staff interventions at hospices in Argentina
por: Luxardo, Natalia, et al.
Publicado: (2012)

An Augmented Reality Mobile App (Easypod AR) as a Complementary Tool in the Nurse-Led Integrated Support of Patients Receiving Recombinant Human Growth Hormone: Usability and Validation Study
por: Baños, Rosa Maria, et al.
Publicado: (2023)

Positive Impact of Targeted Educational Intervention in Children With Low Adherence to Growth Hormone Treatment Identified by Use of the Easypod™ Electronic Auto-injector Device
por: Assefi, Aria Reza, et al.
Publicado: (2021)

Conceptual framework for support of caregivers of children diagnosed with intellectual disabilities in Gauteng
por: Molefe, Lebogang L., et al.
Publicado: (2022)

Family caregiver ambassador support for caregivers of patients with newly diagnosed hematological cancer: a feasibility study
por: Husted Nielsen, Iben, et al.
Publicado: (2022)

Effect of adherence to growth hormone treatment on 0–2 year catch-up growth in children with growth hormone deficiency
por: van Dommelen, Paula, et al.
Publicado: (2018)

National Family Caregiver Support Program Participants' Recommendations to Boost Caregiver Supports
por: Menne, Heather, et al.
Publicado: (2021)

Titration and characteristics of pressure-support ventilation use in Argentina: an online cross-sectional survey study
por: Pérez, Joaquin, et al.
Publicado: (2020)

Managing Transition in Patients Treated with Growth Hormone
por: Hauffa, Berthold P., et al.
Publicado: (2017)

CAREGIVER SUPPORT RATIO IN EUROPE
por: Riberio, Oscar, et al.
Publicado: (2019)

SUPPORTING DIVERSE FAMILY CAREGIVERS
por: Nadash, Pamela
Publicado: (2022)

Curve matching to predict growth in patients receiving growth hormone therapy: An interpretable & explainable method
por: van Dommelen, Paula, et al.
Publicado: (2022)

Challenges in the Diagnosis and Management of Growth Hormone Deficiency in India
por: John, Mathew, et al.
Publicado: (2016)

SUN-258 Prediction of Height Two Years after Start Treatment in Children with Growth Hormone Deficiency
por: van Dommelen, Paula, et al.
Publicado: (2019)

Analysis of real-world data on growth hormone therapy adherence using a connected injection device
por: Koledova, Ekaterina, et al.
Publicado: (2020)

Redefining Caregiving as an Imperative for Supporting Caregivers: Challenges and Opportunities
por: Raj, Minakshi, et al.
Publicado: (2021)

Adherence to r-hGH Therapy in Pediatric Growth Hormone Deficiency: Current Perspectives on How Patient-Generated Data Will Transform r-hGH Treatment Towards Integrated Care
por: Savage, Martin O, et al.
Publicado: (2022)

Understanding and Supporting Informal Cancer Caregivers
por: Molassiotis, Alex, et al.
Publicado: (2022)

Caregiver Knowledge of Long-Term Services and Supports: Effects of Rurality and Support
por: Stratton, Lauren, et al.
Publicado: (2020)

THU163 Traffic Light Alerting System For Adherence Risk Management To Improve Catch-Up Growth In Patients Receiving Recombinant Human Growth Hormone Therapy
por: Loche, Sandro, et al.
Publicado: (2023)

Caregiving Intensity and Caregiver Burden Among Dementia Caregivers: The Moderating Roles of Social Support
por: Xu, Ling, et al.
Publicado: (2020)

Family Dynamics and Personal Strengths among Dementia Caregivers in Argentina
por: Elnasseh, Aaliah G., et al.
Publicado: (2016)

Validating genetic markers of response to recombinant human growth hormone in children with growth hormone deficiency and Turner syndrome: the PREDICT validation study
por: Stevens, Adam, et al.
Publicado: (2016)

Content Analysis of Apps for Growth Monitoring and Growth Hormone Treatment: Systematic Search in the Android App Store
por: Fernandez-Luque, Luis, et al.
Publicado: (2020)

Informal and Formal Social Support and Caregiver Burden: The AGES Caregiver Survey
por: Shiba, Koichiro, et al.
Publicado: (2016)

HEALTHY CAREGIVER SELECTION AMONG DEMENTIA CAREGIVERS: THE ROLE OF SOCIAL SUPPORT
por: Jiang, Hantao, et al.
Publicado: (2022)

SUPPORTING DEMENTIA CAREGIVERS: THE PUBLIC HEALTH CENTER OF EXCELLENCE ON DEMENTIA CAREGIVING
por: Gaugler, Joseph
Publicado: (2022)

P1723: A FEASIBILITY STUDY OF PEER SUPPORT IN FAMILY CAREGIVERS OF PATIENTS NEWLY DIAGNOSED WITH HEMATOLOGIC MALIGNANCY
por: Nielsen, I. H., et al.
Publicado: (2022)

Men as caregivers of the elderly: support for the contributions of sons
por: Collins, Cynthia R
Publicado: (2014)

What Are the Characteristics of Caregivers Logging in for Support Services?
por: Meyer, Kylie, et al.
Publicado: (2019)

HARNESSING TECHNOLOGY TO SUPPORT PERSONS WITH DEMENTIA AND THEIR CAREGIVERS
por: Andersen, Stacy L, et al.
Publicado: (2019)

INNOVATIONS IN REMOTE SUPPORT FOR DEMENTIA FAMILY CAREGIVERS
por: Meyer, Kylie, et al.
Publicado: (2022)

Social support, positive caregiving experience, and caregiver burden in informal caregivers of older adults with dementia
por: Nemcikova, Marta, et al.
Publicado: (2023)

Family support unit improves care and support to HIV-infected children and their caregivers in Cameroon
por: Kwah, CN, et al.
Publicado: (2006)

Caregiver Emotional Burden in Testicular Cancer Patients: From Patient to Caregiver Support
por: De Padova, Silvia, et al.
Publicado: (2019)

The Caregiver Support Ratio in Europe: Estimating the Future of Potentially (Un)Available Caregivers
por: Ribeiro, Oscar, et al.
Publicado: (2021)

USE OF DIGITAL TECHNOLOGY SOLUTIONS TO SUPPORT CAREGIVING BY FAMILY CAREGIVERS OF OLDER ADULTS
por: Malhotra, Rahul, et al.
Publicado: (2022)

Cannot write session to /tmp/vufind_sessions/sess_8u4jcj7jhtcf5ebi0ra64qbcui