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Mind the gap: Data availability, accessibility, transparency, and credibility during the COVID-19 pandemic, an international comparative appraisal
Data transparency has played a key role in this pandemic. The aim of this paper is to map COVID-19 data availability and accessibility, and to rate their transparency and credibility in selected countries, by the source of information. This is used to identify knowledge gaps, and to analyse policy i...
Autores principales: | , , , , , , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Public Library of Science
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10120928/ https://www.ncbi.nlm.nih.gov/pubmed/37083552 http://dx.doi.org/10.1371/journal.pgph.0001148 |
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author | Rotulo, Arianna Kondilis, Elias Thwe, Thaint Gautam, Sanju Torcu, Özgün Vera-Montoya, Maira Marjan, Sharika Gazi, Md. Ismail Putri, Alifa Syamantha Hasan, Rubyath Binte Mone, Fabia Hannan Rodríguez-Castillo, Kenya Tabassum, Arifa Parcharidi, Zoi Sharma, Beverly Islam, Fahmida Amoo, Babatunde Lemke, Lea Gallo, Valentina |
author_facet | Rotulo, Arianna Kondilis, Elias Thwe, Thaint Gautam, Sanju Torcu, Özgün Vera-Montoya, Maira Marjan, Sharika Gazi, Md. Ismail Putri, Alifa Syamantha Hasan, Rubyath Binte Mone, Fabia Hannan Rodríguez-Castillo, Kenya Tabassum, Arifa Parcharidi, Zoi Sharma, Beverly Islam, Fahmida Amoo, Babatunde Lemke, Lea Gallo, Valentina |
author_sort | Rotulo, Arianna |
collection | PubMed |
description | Data transparency has played a key role in this pandemic. The aim of this paper is to map COVID-19 data availability and accessibility, and to rate their transparency and credibility in selected countries, by the source of information. This is used to identify knowledge gaps, and to analyse policy implications. The availability of a number of COVID-19 metrics (incidence, mortality, number of people tested, test positive rate, number of patients hospitalised, number of patients discharged, the proportion of population who received at least one vaccine, the proportion of population fully vaccinated) was ascertained from selected countries for the full population, and for few of stratification variables (age, sex, ethnicity, socio-economic status) and subgroups (residents in nursing homes, inmates, students, healthcare and social workers, and residents in refugee camps). Nine countries were included: Bangladesh, Indonesia, Iran, Nigeria, Turkey, Panama, Greece, the UK, and the Netherlands. All countries reported periodically most of COVID-19 metrics on the total population. Data were more frequently broken down by age, sex, and region than by ethnic group or socio-economic status. Data on COVID-19 is partially available for special groups. This exercise highlighted the importance of a transparent and detailed reporting of COVID-19 related variables. The more data is publicly available the more transparency, accountability, and democratisation of the research process is enabled, allowing a sound evidence-based analysis of the consequences of health policies. |
format | Online Article Text |
id | pubmed-10120928 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | Public Library of Science |
record_format | MEDLINE/PubMed |
spelling | pubmed-101209282023-04-22 Mind the gap: Data availability, accessibility, transparency, and credibility during the COVID-19 pandemic, an international comparative appraisal Rotulo, Arianna Kondilis, Elias Thwe, Thaint Gautam, Sanju Torcu, Özgün Vera-Montoya, Maira Marjan, Sharika Gazi, Md. Ismail Putri, Alifa Syamantha Hasan, Rubyath Binte Mone, Fabia Hannan Rodríguez-Castillo, Kenya Tabassum, Arifa Parcharidi, Zoi Sharma, Beverly Islam, Fahmida Amoo, Babatunde Lemke, Lea Gallo, Valentina PLOS Glob Public Health Research Article Data transparency has played a key role in this pandemic. The aim of this paper is to map COVID-19 data availability and accessibility, and to rate their transparency and credibility in selected countries, by the source of information. This is used to identify knowledge gaps, and to analyse policy implications. The availability of a number of COVID-19 metrics (incidence, mortality, number of people tested, test positive rate, number of patients hospitalised, number of patients discharged, the proportion of population who received at least one vaccine, the proportion of population fully vaccinated) was ascertained from selected countries for the full population, and for few of stratification variables (age, sex, ethnicity, socio-economic status) and subgroups (residents in nursing homes, inmates, students, healthcare and social workers, and residents in refugee camps). Nine countries were included: Bangladesh, Indonesia, Iran, Nigeria, Turkey, Panama, Greece, the UK, and the Netherlands. All countries reported periodically most of COVID-19 metrics on the total population. Data were more frequently broken down by age, sex, and region than by ethnic group or socio-economic status. Data on COVID-19 is partially available for special groups. This exercise highlighted the importance of a transparent and detailed reporting of COVID-19 related variables. The more data is publicly available the more transparency, accountability, and democratisation of the research process is enabled, allowing a sound evidence-based analysis of the consequences of health policies. Public Library of Science 2023-04-21 /pmc/articles/PMC10120928/ /pubmed/37083552 http://dx.doi.org/10.1371/journal.pgph.0001148 Text en © 2023 Rotulo et al https://creativecommons.org/licenses/by/4.0/This is an open access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/) , which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. |
spellingShingle | Research Article Rotulo, Arianna Kondilis, Elias Thwe, Thaint Gautam, Sanju Torcu, Özgün Vera-Montoya, Maira Marjan, Sharika Gazi, Md. Ismail Putri, Alifa Syamantha Hasan, Rubyath Binte Mone, Fabia Hannan Rodríguez-Castillo, Kenya Tabassum, Arifa Parcharidi, Zoi Sharma, Beverly Islam, Fahmida Amoo, Babatunde Lemke, Lea Gallo, Valentina Mind the gap: Data availability, accessibility, transparency, and credibility during the COVID-19 pandemic, an international comparative appraisal |
title | Mind the gap: Data availability, accessibility, transparency, and credibility during the COVID-19 pandemic, an international comparative appraisal |
title_full | Mind the gap: Data availability, accessibility, transparency, and credibility during the COVID-19 pandemic, an international comparative appraisal |
title_fullStr | Mind the gap: Data availability, accessibility, transparency, and credibility during the COVID-19 pandemic, an international comparative appraisal |
title_full_unstemmed | Mind the gap: Data availability, accessibility, transparency, and credibility during the COVID-19 pandemic, an international comparative appraisal |
title_short | Mind the gap: Data availability, accessibility, transparency, and credibility during the COVID-19 pandemic, an international comparative appraisal |
title_sort | mind the gap: data availability, accessibility, transparency, and credibility during the covid-19 pandemic, an international comparative appraisal |
topic | Research Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10120928/ https://www.ncbi.nlm.nih.gov/pubmed/37083552 http://dx.doi.org/10.1371/journal.pgph.0001148 |
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