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Mind the gap: Data availability, accessibility, transparency, and credibility during the COVID-19 pandemic, an international comparative appraisal

Data transparency has played a key role in this pandemic. The aim of this paper is to map COVID-19 data availability and accessibility, and to rate their transparency and credibility in selected countries, by the source of information. This is used to identify knowledge gaps, and to analyse policy i...

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Autores principales: Rotulo, Arianna, Kondilis, Elias, Thwe, Thaint, Gautam, Sanju, Torcu, Özgün, Vera-Montoya, Maira, Marjan, Sharika, Gazi, Md. Ismail, Putri, Alifa Syamantha, Hasan, Rubyath Binte, Mone, Fabia Hannan, Rodríguez-Castillo, Kenya, Tabassum, Arifa, Parcharidi, Zoi, Sharma, Beverly, Islam, Fahmida, Amoo, Babatunde, Lemke, Lea, Gallo, Valentina
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10120928/
https://www.ncbi.nlm.nih.gov/pubmed/37083552
http://dx.doi.org/10.1371/journal.pgph.0001148
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author Rotulo, Arianna
Kondilis, Elias
Thwe, Thaint
Gautam, Sanju
Torcu, Özgün
Vera-Montoya, Maira
Marjan, Sharika
Gazi, Md. Ismail
Putri, Alifa Syamantha
Hasan, Rubyath Binte
Mone, Fabia Hannan
Rodríguez-Castillo, Kenya
Tabassum, Arifa
Parcharidi, Zoi
Sharma, Beverly
Islam, Fahmida
Amoo, Babatunde
Lemke, Lea
Gallo, Valentina
author_facet Rotulo, Arianna
Kondilis, Elias
Thwe, Thaint
Gautam, Sanju
Torcu, Özgün
Vera-Montoya, Maira
Marjan, Sharika
Gazi, Md. Ismail
Putri, Alifa Syamantha
Hasan, Rubyath Binte
Mone, Fabia Hannan
Rodríguez-Castillo, Kenya
Tabassum, Arifa
Parcharidi, Zoi
Sharma, Beverly
Islam, Fahmida
Amoo, Babatunde
Lemke, Lea
Gallo, Valentina
author_sort Rotulo, Arianna
collection PubMed
description Data transparency has played a key role in this pandemic. The aim of this paper is to map COVID-19 data availability and accessibility, and to rate their transparency and credibility in selected countries, by the source of information. This is used to identify knowledge gaps, and to analyse policy implications. The availability of a number of COVID-19 metrics (incidence, mortality, number of people tested, test positive rate, number of patients hospitalised, number of patients discharged, the proportion of population who received at least one vaccine, the proportion of population fully vaccinated) was ascertained from selected countries for the full population, and for few of stratification variables (age, sex, ethnicity, socio-economic status) and subgroups (residents in nursing homes, inmates, students, healthcare and social workers, and residents in refugee camps). Nine countries were included: Bangladesh, Indonesia, Iran, Nigeria, Turkey, Panama, Greece, the UK, and the Netherlands. All countries reported periodically most of COVID-19 metrics on the total population. Data were more frequently broken down by age, sex, and region than by ethnic group or socio-economic status. Data on COVID-19 is partially available for special groups. This exercise highlighted the importance of a transparent and detailed reporting of COVID-19 related variables. The more data is publicly available the more transparency, accountability, and democratisation of the research process is enabled, allowing a sound evidence-based analysis of the consequences of health policies.
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spelling pubmed-101209282023-04-22 Mind the gap: Data availability, accessibility, transparency, and credibility during the COVID-19 pandemic, an international comparative appraisal Rotulo, Arianna Kondilis, Elias Thwe, Thaint Gautam, Sanju Torcu, Özgün Vera-Montoya, Maira Marjan, Sharika Gazi, Md. Ismail Putri, Alifa Syamantha Hasan, Rubyath Binte Mone, Fabia Hannan Rodríguez-Castillo, Kenya Tabassum, Arifa Parcharidi, Zoi Sharma, Beverly Islam, Fahmida Amoo, Babatunde Lemke, Lea Gallo, Valentina PLOS Glob Public Health Research Article Data transparency has played a key role in this pandemic. The aim of this paper is to map COVID-19 data availability and accessibility, and to rate their transparency and credibility in selected countries, by the source of information. This is used to identify knowledge gaps, and to analyse policy implications. The availability of a number of COVID-19 metrics (incidence, mortality, number of people tested, test positive rate, number of patients hospitalised, number of patients discharged, the proportion of population who received at least one vaccine, the proportion of population fully vaccinated) was ascertained from selected countries for the full population, and for few of stratification variables (age, sex, ethnicity, socio-economic status) and subgroups (residents in nursing homes, inmates, students, healthcare and social workers, and residents in refugee camps). Nine countries were included: Bangladesh, Indonesia, Iran, Nigeria, Turkey, Panama, Greece, the UK, and the Netherlands. All countries reported periodically most of COVID-19 metrics on the total population. Data were more frequently broken down by age, sex, and region than by ethnic group or socio-economic status. Data on COVID-19 is partially available for special groups. This exercise highlighted the importance of a transparent and detailed reporting of COVID-19 related variables. The more data is publicly available the more transparency, accountability, and democratisation of the research process is enabled, allowing a sound evidence-based analysis of the consequences of health policies. Public Library of Science 2023-04-21 /pmc/articles/PMC10120928/ /pubmed/37083552 http://dx.doi.org/10.1371/journal.pgph.0001148 Text en © 2023 Rotulo et al https://creativecommons.org/licenses/by/4.0/This is an open access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/) , which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
spellingShingle Research Article
Rotulo, Arianna
Kondilis, Elias
Thwe, Thaint
Gautam, Sanju
Torcu, Özgün
Vera-Montoya, Maira
Marjan, Sharika
Gazi, Md. Ismail
Putri, Alifa Syamantha
Hasan, Rubyath Binte
Mone, Fabia Hannan
Rodríguez-Castillo, Kenya
Tabassum, Arifa
Parcharidi, Zoi
Sharma, Beverly
Islam, Fahmida
Amoo, Babatunde
Lemke, Lea
Gallo, Valentina
Mind the gap: Data availability, accessibility, transparency, and credibility during the COVID-19 pandemic, an international comparative appraisal
title Mind the gap: Data availability, accessibility, transparency, and credibility during the COVID-19 pandemic, an international comparative appraisal
title_full Mind the gap: Data availability, accessibility, transparency, and credibility during the COVID-19 pandemic, an international comparative appraisal
title_fullStr Mind the gap: Data availability, accessibility, transparency, and credibility during the COVID-19 pandemic, an international comparative appraisal
title_full_unstemmed Mind the gap: Data availability, accessibility, transparency, and credibility during the COVID-19 pandemic, an international comparative appraisal
title_short Mind the gap: Data availability, accessibility, transparency, and credibility during the COVID-19 pandemic, an international comparative appraisal
title_sort mind the gap: data availability, accessibility, transparency, and credibility during the covid-19 pandemic, an international comparative appraisal
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10120928/
https://www.ncbi.nlm.nih.gov/pubmed/37083552
http://dx.doi.org/10.1371/journal.pgph.0001148
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