Gaining consensus on clinical quality outcomes for eating disorders: Framework for the development of an Australian national minimum dataset

OBJECTIVES: Eating disorders (EDs) are complex psychiatric illnesses requiring multidisciplinary care across both mental and medical healthcare settings. Currently, no nationally comprehensive, consistent, agreed on or mandated data set or data collection strategy exists for EDs in Australia: thus,...

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Autores principales: Bryant, Emma, Broomfield, Catherine, Burrows, Jennifer, McLean, Sian, Marks, Peta, Maloney, Danielle, Touyz, Stephen, Maguire, Sarah
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10124290/
https://www.ncbi.nlm.nih.gov/pubmed/37076147
http://dx.doi.org/10.1136/bmjopen-2022-071150
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author Bryant, Emma
Broomfield, Catherine
Burrows, Jennifer
McLean, Sian
Marks, Peta
Maloney, Danielle
Touyz, Stephen
Maguire, Sarah
author_facet Bryant, Emma
Broomfield, Catherine
Burrows, Jennifer
McLean, Sian
Marks, Peta
Maloney, Danielle
Touyz, Stephen
Maguire, Sarah
author_sort Bryant, Emma
collection PubMed
description OBJECTIVES: Eating disorders (EDs) are complex psychiatric illnesses requiring multidisciplinary care across both mental and medical healthcare settings. Currently, no nationally comprehensive, consistent, agreed on or mandated data set or data collection strategy exists for EDs in Australia: thus, little is known about the outcomes of care nor treatment pathways taken by individuals with EDs. InsideOut Institute was contracted by the Australian Government Department of Health to develop a minimum dataset (MDS) for the illness group with consideration given to data capture mechanisms and the scoping of a national registry. DESIGN: A four-step modified Delphi methodology was used, including national consultations followed by three rounds of quantitative feedback by an expert panel. SETTING: Due to social distancing protocols throughout the global SARS-CoV-2 pandemic, the study was conducted online using video conferencing (Zoom and Microsoft Teams) (Step 1), email communication and the REDCap secure web-based survey platform (Steps 2–4). PARTICIPANTS: 14 data management organisations, 5 state and territory government departments of health, 2 Aboriginal and Torres Strait Islander advising organisations and 28 stakeholders representing public and private health sectors across Australia participated in consultations. 123 ED experts (including lived experience) participated in the first quantitative round of the Delphi survey. Retention was high, with 80% of experts continuing to the second round and 73% to the third. MAIN OUTCOME MEASURES: Items and categories endorsed by the expert panel (defined a priori as >85% rating an item or category ‘very important’ or ‘imperative’). RESULTS: High consensus across dataset items and categories led to the stratification of an identified MDS. Medical status and quality of life were rated the most important outcomes to collect in an MDS. Other items meeting high levels of consensus included anxiety disorders, depression and suicidality; type of treatment being received; body mass index and recent weight change. CONCLUSIONS: Understanding presentation to and outcomes from ED treatment is vital to drive improvements in healthcare delivery. A nationally agreed MDS has been defined to facilitate this understanding and support improvements.
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spelling pubmed-101242902023-04-25 Gaining consensus on clinical quality outcomes for eating disorders: Framework for the development of an Australian national minimum dataset Bryant, Emma Broomfield, Catherine Burrows, Jennifer McLean, Sian Marks, Peta Maloney, Danielle Touyz, Stephen Maguire, Sarah BMJ Open Mental Health OBJECTIVES: Eating disorders (EDs) are complex psychiatric illnesses requiring multidisciplinary care across both mental and medical healthcare settings. Currently, no nationally comprehensive, consistent, agreed on or mandated data set or data collection strategy exists for EDs in Australia: thus, little is known about the outcomes of care nor treatment pathways taken by individuals with EDs. InsideOut Institute was contracted by the Australian Government Department of Health to develop a minimum dataset (MDS) for the illness group with consideration given to data capture mechanisms and the scoping of a national registry. DESIGN: A four-step modified Delphi methodology was used, including national consultations followed by three rounds of quantitative feedback by an expert panel. SETTING: Due to social distancing protocols throughout the global SARS-CoV-2 pandemic, the study was conducted online using video conferencing (Zoom and Microsoft Teams) (Step 1), email communication and the REDCap secure web-based survey platform (Steps 2–4). PARTICIPANTS: 14 data management organisations, 5 state and territory government departments of health, 2 Aboriginal and Torres Strait Islander advising organisations and 28 stakeholders representing public and private health sectors across Australia participated in consultations. 123 ED experts (including lived experience) participated in the first quantitative round of the Delphi survey. Retention was high, with 80% of experts continuing to the second round and 73% to the third. MAIN OUTCOME MEASURES: Items and categories endorsed by the expert panel (defined a priori as >85% rating an item or category ‘very important’ or ‘imperative’). RESULTS: High consensus across dataset items and categories led to the stratification of an identified MDS. Medical status and quality of life were rated the most important outcomes to collect in an MDS. Other items meeting high levels of consensus included anxiety disorders, depression and suicidality; type of treatment being received; body mass index and recent weight change. CONCLUSIONS: Understanding presentation to and outcomes from ED treatment is vital to drive improvements in healthcare delivery. A nationally agreed MDS has been defined to facilitate this understanding and support improvements. BMJ Publishing Group 2023-04-19 /pmc/articles/PMC10124290/ /pubmed/37076147 http://dx.doi.org/10.1136/bmjopen-2022-071150 Text en © Author(s) (or their employer(s)) 2023. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. https://creativecommons.org/licenses/by-nc/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) .
spellingShingle Mental Health
Bryant, Emma
Broomfield, Catherine
Burrows, Jennifer
McLean, Sian
Marks, Peta
Maloney, Danielle
Touyz, Stephen
Maguire, Sarah
Gaining consensus on clinical quality outcomes for eating disorders: Framework for the development of an Australian national minimum dataset
title Gaining consensus on clinical quality outcomes for eating disorders: Framework for the development of an Australian national minimum dataset
title_full Gaining consensus on clinical quality outcomes for eating disorders: Framework for the development of an Australian national minimum dataset
title_fullStr Gaining consensus on clinical quality outcomes for eating disorders: Framework for the development of an Australian national minimum dataset
title_full_unstemmed Gaining consensus on clinical quality outcomes for eating disorders: Framework for the development of an Australian national minimum dataset
title_short Gaining consensus on clinical quality outcomes for eating disorders: Framework for the development of an Australian national minimum dataset
title_sort gaining consensus on clinical quality outcomes for eating disorders: framework for the development of an australian national minimum dataset
topic Mental Health
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10124290/
https://www.ncbi.nlm.nih.gov/pubmed/37076147
http://dx.doi.org/10.1136/bmjopen-2022-071150
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