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The Role of Registries in Neurotrauma Research: Translating Data Into Health Policy That Enhances Patient Care: Comment on "Neurotrauma Surveillance in National Registries of Low- and Middle-Income Countries: A Scoping Review and Comparative Analysis of Data Dictionaries"

The paucity of robust neurotrauma data is felt most in regions that experience a higher burden of traumatic brain injury (TBI). The scoping review done by Barthélemy et al provides insight into the current state of national registries in low- and middle-income countries (LMICs) while also exploring...

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Detalles Bibliográficos
Autores principales: Thango, Nqobile, Baticulon, Ronnie E., Lippa, Laura
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Kerman University of Medical Sciences 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10125055/
https://www.ncbi.nlm.nih.gov/pubmed/37579434
http://dx.doi.org/10.34172/ijhpm.2023.7521
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author Thango, Nqobile
Baticulon, Ronnie E.
Lippa, Laura
author_facet Thango, Nqobile
Baticulon, Ronnie E.
Lippa, Laura
author_sort Thango, Nqobile
collection PubMed
description The paucity of robust neurotrauma data is felt most in regions that experience a higher burden of traumatic brain injury (TBI). The scoping review done by Barthélemy et al provides insight into the current state of national registries in low- and middle-income countries (LMICs) while also exploring the tools required to standardize data collection. In this commentary, we reflect on the barriers to data collection (ie, creation and maintenance of a TBI registry) and explore how registries can aid both scientific output and preventative public awareness campaigns that may pave the way to improved health policy and social change that avert mortality and morbidity from TBI.
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spelling pubmed-101250552023-04-25 The Role of Registries in Neurotrauma Research: Translating Data Into Health Policy That Enhances Patient Care: Comment on "Neurotrauma Surveillance in National Registries of Low- and Middle-Income Countries: A Scoping Review and Comparative Analysis of Data Dictionaries" Thango, Nqobile Baticulon, Ronnie E. Lippa, Laura Int J Health Policy Manag Commentary The paucity of robust neurotrauma data is felt most in regions that experience a higher burden of traumatic brain injury (TBI). The scoping review done by Barthélemy et al provides insight into the current state of national registries in low- and middle-income countries (LMICs) while also exploring the tools required to standardize data collection. In this commentary, we reflect on the barriers to data collection (ie, creation and maintenance of a TBI registry) and explore how registries can aid both scientific output and preventative public awareness campaigns that may pave the way to improved health policy and social change that avert mortality and morbidity from TBI. Kerman University of Medical Sciences 2023-02-26 /pmc/articles/PMC10125055/ /pubmed/37579434 http://dx.doi.org/10.34172/ijhpm.2023.7521 Text en © 2023 The Author(s); Published by Kerman University of Medical Sciences https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0 (https://creativecommons.org/licenses/by/4.0/) ), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Commentary
Thango, Nqobile
Baticulon, Ronnie E.
Lippa, Laura
The Role of Registries in Neurotrauma Research: Translating Data Into Health Policy That Enhances Patient Care: Comment on "Neurotrauma Surveillance in National Registries of Low- and Middle-Income Countries: A Scoping Review and Comparative Analysis of Data Dictionaries"
title The Role of Registries in Neurotrauma Research: Translating Data Into Health Policy That Enhances Patient Care: Comment on "Neurotrauma Surveillance in National Registries of Low- and Middle-Income Countries: A Scoping Review and Comparative Analysis of Data Dictionaries"
title_full The Role of Registries in Neurotrauma Research: Translating Data Into Health Policy That Enhances Patient Care: Comment on "Neurotrauma Surveillance in National Registries of Low- and Middle-Income Countries: A Scoping Review and Comparative Analysis of Data Dictionaries"
title_fullStr The Role of Registries in Neurotrauma Research: Translating Data Into Health Policy That Enhances Patient Care: Comment on "Neurotrauma Surveillance in National Registries of Low- and Middle-Income Countries: A Scoping Review and Comparative Analysis of Data Dictionaries"
title_full_unstemmed The Role of Registries in Neurotrauma Research: Translating Data Into Health Policy That Enhances Patient Care: Comment on "Neurotrauma Surveillance in National Registries of Low- and Middle-Income Countries: A Scoping Review and Comparative Analysis of Data Dictionaries"
title_short The Role of Registries in Neurotrauma Research: Translating Data Into Health Policy That Enhances Patient Care: Comment on "Neurotrauma Surveillance in National Registries of Low- and Middle-Income Countries: A Scoping Review and Comparative Analysis of Data Dictionaries"
title_sort role of registries in neurotrauma research: translating data into health policy that enhances patient care: comment on "neurotrauma surveillance in national registries of low- and middle-income countries: a scoping review and comparative analysis of data dictionaries"
topic Commentary
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10125055/
https://www.ncbi.nlm.nih.gov/pubmed/37579434
http://dx.doi.org/10.34172/ijhpm.2023.7521
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