Cargando…
205 Perceived Needs and Access to Community-based Dementia Resources in the Rural Deep South
OBJECTIVES/GOALS: The goal of this project is to investigate dementia caregivers’ needs, barriers to access, and current utilization of community-based dementia-care services in Alabama, and how these vary across rural/urban settings and racial groups. METHODS/STUDY POPULATION: We partnered with Mar...
Autores principales: | , , , , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Cambridge University Press
2023
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10129651/ http://dx.doi.org/10.1017/cts.2023.279 |
_version_ | 1785030794912202752 |
---|---|
author | Hohmann, Natalie Whatley, Maggie Yang, Heqin Cherrington, Andrea Clay, Olivio Pickering, Carolyn Westrick, Salisa |
author_facet | Hohmann, Natalie Whatley, Maggie Yang, Heqin Cherrington, Andrea Clay, Olivio Pickering, Carolyn Westrick, Salisa |
author_sort | Hohmann, Natalie |
collection | PubMed |
description | OBJECTIVES/GOALS: The goal of this project is to investigate dementia caregivers’ needs, barriers to access, and current utilization of community-based dementia-care services in Alabama, and how these vary across rural/urban settings and racial groups. METHODS/STUDY POPULATION: We partnered with Marketry Inc. to recruit and conduct interviews among three groups: dementia caregivers, healthcare providers, and aging services representatives. We recruited caregivers from dementia support groups and aging services in 2 rural and 2 urban Alabama counties. Purposive and snowball sampling was used to recruit healthcare providers and aging services representatives. Interviews were conducted by trained Marketry staff, recorded, and transcribed verbatim. Rapid content analysis was conducted by three investigators using the Social Determinants of Health as a coding framework to assess patterns in barriers and facilitators to utilizing community-based dementia resources. RESULTS/ANTICIPATED RESULTS: We interviewed 5 healthcare providers, 32 caregivers, and 15 aging services representatives. Providers thought that the process of memory loss care is not streamlined and they lack key information necessary to fulfill their role. Caregivers expressed a need for more dementia education, social connection, and access to financial resources. Aging services agencies need more funding and volunteers to sustain community-based dementia services. Dementia resources, like memory clinics, were more available in urban than in rural counties. African-American caregivers mentioned a reluctance to accept outside help for taking care of their loved ones with dementia, potentially due to distrust. DISCUSSION/SIGNIFICANCE: There is a need for more accessible dementia services in rural AL and a need to build service trust and familiarity, especially among African-American caregivers. Future research should develop tools for providers and caregivers to start conversations and increase awareness of service availability. |
format | Online Article Text |
id | pubmed-10129651 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | Cambridge University Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-101296512023-04-26 205 Perceived Needs and Access to Community-based Dementia Resources in the Rural Deep South Hohmann, Natalie Whatley, Maggie Yang, Heqin Cherrington, Andrea Clay, Olivio Pickering, Carolyn Westrick, Salisa J Clin Transl Sci Health Equity and Community Engagement OBJECTIVES/GOALS: The goal of this project is to investigate dementia caregivers’ needs, barriers to access, and current utilization of community-based dementia-care services in Alabama, and how these vary across rural/urban settings and racial groups. METHODS/STUDY POPULATION: We partnered with Marketry Inc. to recruit and conduct interviews among three groups: dementia caregivers, healthcare providers, and aging services representatives. We recruited caregivers from dementia support groups and aging services in 2 rural and 2 urban Alabama counties. Purposive and snowball sampling was used to recruit healthcare providers and aging services representatives. Interviews were conducted by trained Marketry staff, recorded, and transcribed verbatim. Rapid content analysis was conducted by three investigators using the Social Determinants of Health as a coding framework to assess patterns in barriers and facilitators to utilizing community-based dementia resources. RESULTS/ANTICIPATED RESULTS: We interviewed 5 healthcare providers, 32 caregivers, and 15 aging services representatives. Providers thought that the process of memory loss care is not streamlined and they lack key information necessary to fulfill their role. Caregivers expressed a need for more dementia education, social connection, and access to financial resources. Aging services agencies need more funding and volunteers to sustain community-based dementia services. Dementia resources, like memory clinics, were more available in urban than in rural counties. African-American caregivers mentioned a reluctance to accept outside help for taking care of their loved ones with dementia, potentially due to distrust. DISCUSSION/SIGNIFICANCE: There is a need for more accessible dementia services in rural AL and a need to build service trust and familiarity, especially among African-American caregivers. Future research should develop tools for providers and caregivers to start conversations and increase awareness of service availability. Cambridge University Press 2023-04-24 /pmc/articles/PMC10129651/ http://dx.doi.org/10.1017/cts.2023.279 Text en © The Association for Clinical and Translational Science 2023 https://creativecommons.org/licenses/by-nc-nd/4.0/This is an Open Access article, distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives licence (https://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is unaltered and is properly cited. The written permission of Cambridge University Press must be obtained for commercial re-use or in order to create a derivative work. |
spellingShingle | Health Equity and Community Engagement Hohmann, Natalie Whatley, Maggie Yang, Heqin Cherrington, Andrea Clay, Olivio Pickering, Carolyn Westrick, Salisa 205 Perceived Needs and Access to Community-based Dementia Resources in the Rural Deep South |
title | 205 Perceived Needs and Access to Community-based Dementia Resources in the Rural Deep South |
title_full | 205 Perceived Needs and Access to Community-based Dementia Resources in the Rural Deep South |
title_fullStr | 205 Perceived Needs and Access to Community-based Dementia Resources in the Rural Deep South |
title_full_unstemmed | 205 Perceived Needs and Access to Community-based Dementia Resources in the Rural Deep South |
title_short | 205 Perceived Needs and Access to Community-based Dementia Resources in the Rural Deep South |
title_sort | 205 perceived needs and access to community-based dementia resources in the rural deep south |
topic | Health Equity and Community Engagement |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10129651/ http://dx.doi.org/10.1017/cts.2023.279 |
work_keys_str_mv | AT hohmannnatalie 205perceivedneedsandaccesstocommunitybaseddementiaresourcesintheruraldeepsouth AT whatleymaggie 205perceivedneedsandaccesstocommunitybaseddementiaresourcesintheruraldeepsouth AT yangheqin 205perceivedneedsandaccesstocommunitybaseddementiaresourcesintheruraldeepsouth AT cherringtonandrea 205perceivedneedsandaccesstocommunitybaseddementiaresourcesintheruraldeepsouth AT clayolivio 205perceivedneedsandaccesstocommunitybaseddementiaresourcesintheruraldeepsouth AT pickeringcarolyn 205perceivedneedsandaccesstocommunitybaseddementiaresourcesintheruraldeepsouth AT westricksalisa 205perceivedneedsandaccesstocommunitybaseddementiaresourcesintheruraldeepsouth |