132 Caregivers Perspectives on Multidisciplinary Clinic Visits for Duchenne and Becker Muscular Dystrophy

OBJECTIVES/GOALS: This study surveyed parents and/or caregivers of children with Duchenne and Becker muscular dystrophy (DBMD) to obtain their perspectives on experiences during multidisciplinary team (MDT) clinic visits. The goal was to improve DBMD care by identifying positive and negative aspects...

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Detalles Bibliográficos
Autores principales: Fawcett, Kindann, Haynie, Cade, Roby, Tiffany, Wagner, Ellen, Schrader, Rachel, Fischer, Ryan, Veerapandiyan, Aravindhan
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Cambridge University Press 2023
Materias:
Evaluation
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10129716/
http://dx.doi.org/10.1017/cts.2023.214

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