Concept Elicitation Interviews and Conceptual Model to Understand the Patient Experience of Limb Girdle Muscular Dystrophy

INTRODUCTION: Limb girdle muscular dystrophies (LGMDs) are a group of rare and heterogeneous disorders involving progressive wasting of shoulder and pelvic girdle musculature. This study aimed to generate qualitative evidence on patient and caregiver experiences with symptoms and impacts of LGMD on...

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Detalles Bibliográficos
Autores principales: Johnston, Kelly, Casstevens, Cristina, Patel, Vanessa Perez, Merikle, Elizabeth, Presnall, Carrie, Audhya, Ivana
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Healthcare 2023
Materias:
Original Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10130098/
https://www.ncbi.nlm.nih.gov/pubmed/36917428
http://dx.doi.org/10.1007/s12325-023-02463-8

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