Doing it right: Caring for and protecting patient information for US organ donors and transplant recipients

In the current US organ transplantation system, there are no regulations defining how organ procurement organizations must manage personal data and protect the privacy of donors and recipients. In response to the recent announcement of a major overhaul of the US transplantation system, we describe a...

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Detalles Bibliográficos
Autores principales: Perakslis, Eric D., Knechtle, Stuart J., McCourt, Brian, Lynch, Raymond, Doby, Brianna L.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier 2023
Materias:
Opinion
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10140603/
https://www.ncbi.nlm.nih.gov/pubmed/37123437
http://dx.doi.org/10.1016/j.patter.2023.100734
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author Perakslis, Eric D.
Knechtle, Stuart J.
McCourt, Brian
Lynch, Raymond
Doby, Brianna L.
author_facet Perakslis, Eric D.
Knechtle, Stuart J.
McCourt, Brian
Lynch, Raymond
Doby, Brianna L.
author_sort Perakslis, Eric D.
collection PubMed
description In the current US organ transplantation system, there are no regulations defining how organ procurement organizations must manage personal data and protect the privacy of donors and recipients. In response to the recent announcement of a major overhaul of the US transplantation system, we describe a practical approach to improving transplant data quality and protecting the autonomy of patients interacting with the system.
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spelling pubmed-101406032023-04-29 Doing it right: Caring for and protecting patient information for US organ donors and transplant recipients Perakslis, Eric D. Knechtle, Stuart J. McCourt, Brian Lynch, Raymond Doby, Brianna L. Patterns (N Y) Opinion In the current US organ transplantation system, there are no regulations defining how organ procurement organizations must manage personal data and protect the privacy of donors and recipients. In response to the recent announcement of a major overhaul of the US transplantation system, we describe a practical approach to improving transplant data quality and protecting the autonomy of patients interacting with the system. Elsevier 2023-04-05 /pmc/articles/PMC10140603/ /pubmed/37123437 http://dx.doi.org/10.1016/j.patter.2023.100734 Text en © 2023 The Author(s) https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/).
spellingShingle Opinion
Perakslis, Eric D.
Knechtle, Stuart J.
McCourt, Brian
Lynch, Raymond
Doby, Brianna L.
Doing it right: Caring for and protecting patient information for US organ donors and transplant recipients
title Doing it right: Caring for and protecting patient information for US organ donors and transplant recipients
title_full Doing it right: Caring for and protecting patient information for US organ donors and transplant recipients
title_fullStr Doing it right: Caring for and protecting patient information for US organ donors and transplant recipients
title_full_unstemmed Doing it right: Caring for and protecting patient information for US organ donors and transplant recipients
title_short Doing it right: Caring for and protecting patient information for US organ donors and transplant recipients
title_sort doing it right: caring for and protecting patient information for us organ donors and transplant recipients
topic Opinion
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10140603/
https://www.ncbi.nlm.nih.gov/pubmed/37123437
http://dx.doi.org/10.1016/j.patter.2023.100734
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