The Care and Management of Children and Young People with Ataxia Telangiectasia Provided by Nurses and Allied Health Professionals: a Scoping Review

Ataxia telangiectasia (A-T) is a rare, multisystem progressive condition that typically presents in early childhood. In the absence of cure, people with A-T require coordinated multidisciplinary care to manage their complex array of needs and to minimize the disease burden. Although symptom manageme...

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Detalles Bibliográficos
Autores principales: Khan, Munira, Cassidy, Elizabeth, Parkin, Tracey, Wallace, Amanda, Carter, Bernie, Paton, Joanne, Donohue, Kathryn, Mitchell, Susan, Quin, Gemma, McNarry, Nicola, Hartley, Helen, Bailey, Hannah, Whitehouse, William, Medd, Rachel, Zahidi, Asma, McMullan, Miriam, Bunn, Lisa
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer US 2023
Materias:
Review
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10148630/
https://www.ncbi.nlm.nih.gov/pubmed/37119406
http://dx.doi.org/10.1007/s12311-023-01555-z

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