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Assessing Diversity and Inclusivity is the Next Frontier in Mental Health Recovery Narrative Research and Practice

Demand for digital health interventions is increasing in many countries. The use of recorded mental health recovery narratives in digital health interventions is becoming more widespread in clinical practice. Mental health recovery narratives are first-person lived experience accounts of recovery fr...

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Detalles Bibliográficos
Autores principales: Kotera, Yasuhiro, Rennick-Egglestone, Stefan, Ng, Fiona, Llewellyn-Beardsley, Joy, Ali, Yasmin, Newby, Chris, Fox, Caroline, Slade, Emily, Bradstreet, Simon, Harrison, Julian, Franklin, Donna, Todowede, Olamide, Slade, Mike
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10152384/
https://www.ncbi.nlm.nih.gov/pubmed/37067882
http://dx.doi.org/10.2196/44601
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author Kotera, Yasuhiro
Rennick-Egglestone, Stefan
Ng, Fiona
Llewellyn-Beardsley, Joy
Ali, Yasmin
Newby, Chris
Fox, Caroline
Slade, Emily
Bradstreet, Simon
Harrison, Julian
Franklin, Donna
Todowede, Olamide
Slade, Mike
author_facet Kotera, Yasuhiro
Rennick-Egglestone, Stefan
Ng, Fiona
Llewellyn-Beardsley, Joy
Ali, Yasmin
Newby, Chris
Fox, Caroline
Slade, Emily
Bradstreet, Simon
Harrison, Julian
Franklin, Donna
Todowede, Olamide
Slade, Mike
author_sort Kotera, Yasuhiro
collection PubMed
description Demand for digital health interventions is increasing in many countries. The use of recorded mental health recovery narratives in digital health interventions is becoming more widespread in clinical practice. Mental health recovery narratives are first-person lived experience accounts of recovery from mental health problems, including struggles and successes over time. Helpful impacts of recorded mental health recovery narratives include connectedness with the narrative and validation of experiences. Possible harms include feeling disconnected and excluded from others. Diverse narrative collections from many types of narrators and describing multiple ways to recover are important to maximize the opportunity for service users to benefit through connection and to minimize the likelihood of harm. Mental health clinicians need to know whether narrative collections are sufficiently diverse to recommend to service users. However, no method exists for assessing the diversity and inclusivity of existing or new narrative collections. We argue that assessing diversity and inclusivity is the next frontier in mental health recovery narrative research and practice. This is important, but methodologically and ethically complex. In this viewpoint, we propose and evaluate one diversity and two inclusivity assessment methods. The diversity assessment method involves use of the Simpson Diversity Index. The two inclusivity assessment methods are based on comparator demographic rates and arbitrary thresholds, respectively. These methods were applied to four narrative collections as a case study. Refinements are needed regarding a narrative assessment tool in terms of its practicality and cultural adaptation.
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spelling pubmed-101523842023-05-03 Assessing Diversity and Inclusivity is the Next Frontier in Mental Health Recovery Narrative Research and Practice Kotera, Yasuhiro Rennick-Egglestone, Stefan Ng, Fiona Llewellyn-Beardsley, Joy Ali, Yasmin Newby, Chris Fox, Caroline Slade, Emily Bradstreet, Simon Harrison, Julian Franklin, Donna Todowede, Olamide Slade, Mike JMIR Ment Health Viewpoint Demand for digital health interventions is increasing in many countries. The use of recorded mental health recovery narratives in digital health interventions is becoming more widespread in clinical practice. Mental health recovery narratives are first-person lived experience accounts of recovery from mental health problems, including struggles and successes over time. Helpful impacts of recorded mental health recovery narratives include connectedness with the narrative and validation of experiences. Possible harms include feeling disconnected and excluded from others. Diverse narrative collections from many types of narrators and describing multiple ways to recover are important to maximize the opportunity for service users to benefit through connection and to minimize the likelihood of harm. Mental health clinicians need to know whether narrative collections are sufficiently diverse to recommend to service users. However, no method exists for assessing the diversity and inclusivity of existing or new narrative collections. We argue that assessing diversity and inclusivity is the next frontier in mental health recovery narrative research and practice. This is important, but methodologically and ethically complex. In this viewpoint, we propose and evaluate one diversity and two inclusivity assessment methods. The diversity assessment method involves use of the Simpson Diversity Index. The two inclusivity assessment methods are based on comparator demographic rates and arbitrary thresholds, respectively. These methods were applied to four narrative collections as a case study. Refinements are needed regarding a narrative assessment tool in terms of its practicality and cultural adaptation. JMIR Publications 2023-04-17 /pmc/articles/PMC10152384/ /pubmed/37067882 http://dx.doi.org/10.2196/44601 Text en ©Yasuhiro Kotera, Stefan Rennick-Egglestone, Fiona Ng, Joy Llewellyn-Beardsley, Yasmin Ali, Chris Newby, Caroline Fox, Emily Slade, Simon Bradstreet, Julian Harrison, Donna Franklin, Olamide Todowede, Mike Slade. Originally published in JMIR Mental Health (https://mental.jmir.org), 17.04.2023. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Mental Health, is properly cited. The complete bibliographic information, a link to the original publication on https://mental.jmir.org/, as well as this copyright and license information must be included.
spellingShingle Viewpoint
Kotera, Yasuhiro
Rennick-Egglestone, Stefan
Ng, Fiona
Llewellyn-Beardsley, Joy
Ali, Yasmin
Newby, Chris
Fox, Caroline
Slade, Emily
Bradstreet, Simon
Harrison, Julian
Franklin, Donna
Todowede, Olamide
Slade, Mike
Assessing Diversity and Inclusivity is the Next Frontier in Mental Health Recovery Narrative Research and Practice
title Assessing Diversity and Inclusivity is the Next Frontier in Mental Health Recovery Narrative Research and Practice
title_full Assessing Diversity and Inclusivity is the Next Frontier in Mental Health Recovery Narrative Research and Practice
title_fullStr Assessing Diversity and Inclusivity is the Next Frontier in Mental Health Recovery Narrative Research and Practice
title_full_unstemmed Assessing Diversity and Inclusivity is the Next Frontier in Mental Health Recovery Narrative Research and Practice
title_short Assessing Diversity and Inclusivity is the Next Frontier in Mental Health Recovery Narrative Research and Practice
title_sort assessing diversity and inclusivity is the next frontier in mental health recovery narrative research and practice
topic Viewpoint
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10152384/
https://www.ncbi.nlm.nih.gov/pubmed/37067882
http://dx.doi.org/10.2196/44601
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