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Assessing Diversity and Inclusivity is the Next Frontier in Mental Health Recovery Narrative Research and Practice
Demand for digital health interventions is increasing in many countries. The use of recorded mental health recovery narratives in digital health interventions is becoming more widespread in clinical practice. Mental health recovery narratives are first-person lived experience accounts of recovery fr...
Autores principales: | , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
JMIR Publications
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10152384/ https://www.ncbi.nlm.nih.gov/pubmed/37067882 http://dx.doi.org/10.2196/44601 |
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author | Kotera, Yasuhiro Rennick-Egglestone, Stefan Ng, Fiona Llewellyn-Beardsley, Joy Ali, Yasmin Newby, Chris Fox, Caroline Slade, Emily Bradstreet, Simon Harrison, Julian Franklin, Donna Todowede, Olamide Slade, Mike |
author_facet | Kotera, Yasuhiro Rennick-Egglestone, Stefan Ng, Fiona Llewellyn-Beardsley, Joy Ali, Yasmin Newby, Chris Fox, Caroline Slade, Emily Bradstreet, Simon Harrison, Julian Franklin, Donna Todowede, Olamide Slade, Mike |
author_sort | Kotera, Yasuhiro |
collection | PubMed |
description | Demand for digital health interventions is increasing in many countries. The use of recorded mental health recovery narratives in digital health interventions is becoming more widespread in clinical practice. Mental health recovery narratives are first-person lived experience accounts of recovery from mental health problems, including struggles and successes over time. Helpful impacts of recorded mental health recovery narratives include connectedness with the narrative and validation of experiences. Possible harms include feeling disconnected and excluded from others. Diverse narrative collections from many types of narrators and describing multiple ways to recover are important to maximize the opportunity for service users to benefit through connection and to minimize the likelihood of harm. Mental health clinicians need to know whether narrative collections are sufficiently diverse to recommend to service users. However, no method exists for assessing the diversity and inclusivity of existing or new narrative collections. We argue that assessing diversity and inclusivity is the next frontier in mental health recovery narrative research and practice. This is important, but methodologically and ethically complex. In this viewpoint, we propose and evaluate one diversity and two inclusivity assessment methods. The diversity assessment method involves use of the Simpson Diversity Index. The two inclusivity assessment methods are based on comparator demographic rates and arbitrary thresholds, respectively. These methods were applied to four narrative collections as a case study. Refinements are needed regarding a narrative assessment tool in terms of its practicality and cultural adaptation. |
format | Online Article Text |
id | pubmed-10152384 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | JMIR Publications |
record_format | MEDLINE/PubMed |
spelling | pubmed-101523842023-05-03 Assessing Diversity and Inclusivity is the Next Frontier in Mental Health Recovery Narrative Research and Practice Kotera, Yasuhiro Rennick-Egglestone, Stefan Ng, Fiona Llewellyn-Beardsley, Joy Ali, Yasmin Newby, Chris Fox, Caroline Slade, Emily Bradstreet, Simon Harrison, Julian Franklin, Donna Todowede, Olamide Slade, Mike JMIR Ment Health Viewpoint Demand for digital health interventions is increasing in many countries. The use of recorded mental health recovery narratives in digital health interventions is becoming more widespread in clinical practice. Mental health recovery narratives are first-person lived experience accounts of recovery from mental health problems, including struggles and successes over time. Helpful impacts of recorded mental health recovery narratives include connectedness with the narrative and validation of experiences. Possible harms include feeling disconnected and excluded from others. Diverse narrative collections from many types of narrators and describing multiple ways to recover are important to maximize the opportunity for service users to benefit through connection and to minimize the likelihood of harm. Mental health clinicians need to know whether narrative collections are sufficiently diverse to recommend to service users. However, no method exists for assessing the diversity and inclusivity of existing or new narrative collections. We argue that assessing diversity and inclusivity is the next frontier in mental health recovery narrative research and practice. This is important, but methodologically and ethically complex. In this viewpoint, we propose and evaluate one diversity and two inclusivity assessment methods. The diversity assessment method involves use of the Simpson Diversity Index. The two inclusivity assessment methods are based on comparator demographic rates and arbitrary thresholds, respectively. These methods were applied to four narrative collections as a case study. Refinements are needed regarding a narrative assessment tool in terms of its practicality and cultural adaptation. JMIR Publications 2023-04-17 /pmc/articles/PMC10152384/ /pubmed/37067882 http://dx.doi.org/10.2196/44601 Text en ©Yasuhiro Kotera, Stefan Rennick-Egglestone, Fiona Ng, Joy Llewellyn-Beardsley, Yasmin Ali, Chris Newby, Caroline Fox, Emily Slade, Simon Bradstreet, Julian Harrison, Donna Franklin, Olamide Todowede, Mike Slade. Originally published in JMIR Mental Health (https://mental.jmir.org), 17.04.2023. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Mental Health, is properly cited. The complete bibliographic information, a link to the original publication on https://mental.jmir.org/, as well as this copyright and license information must be included. |
spellingShingle | Viewpoint Kotera, Yasuhiro Rennick-Egglestone, Stefan Ng, Fiona Llewellyn-Beardsley, Joy Ali, Yasmin Newby, Chris Fox, Caroline Slade, Emily Bradstreet, Simon Harrison, Julian Franklin, Donna Todowede, Olamide Slade, Mike Assessing Diversity and Inclusivity is the Next Frontier in Mental Health Recovery Narrative Research and Practice |
title | Assessing Diversity and Inclusivity is the Next Frontier in Mental Health Recovery Narrative Research and Practice |
title_full | Assessing Diversity and Inclusivity is the Next Frontier in Mental Health Recovery Narrative Research and Practice |
title_fullStr | Assessing Diversity and Inclusivity is the Next Frontier in Mental Health Recovery Narrative Research and Practice |
title_full_unstemmed | Assessing Diversity and Inclusivity is the Next Frontier in Mental Health Recovery Narrative Research and Practice |
title_short | Assessing Diversity and Inclusivity is the Next Frontier in Mental Health Recovery Narrative Research and Practice |
title_sort | assessing diversity and inclusivity is the next frontier in mental health recovery narrative research and practice |
topic | Viewpoint |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10152384/ https://www.ncbi.nlm.nih.gov/pubmed/37067882 http://dx.doi.org/10.2196/44601 |
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