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Perspectives on Specific Carbohydrate Diet Education from Inflammatory Bowel Disease Patients and Caregivers: A Needs Assessment

The specific carbohydrate diet (SCD) has potential health benefits for inflammatory bowel disease (IBD); however, adherence is challenging. Through an online needs assessment survey, this study explored the perspectives of patients and caregivers using the SCD to manage IBD to determine barriers, kn...

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Autores principales: Rivera, Nancy, Nguyen, Kaylie, Kalami, Venus, Blankenburg, Rebecca, Ming Yeh, Ann
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Lippincott Williams & Wilkins, Inc. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10158462/
https://www.ncbi.nlm.nih.gov/pubmed/37168623
http://dx.doi.org/10.1097/PG9.0000000000000222
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author Rivera, Nancy
Nguyen, Kaylie
Kalami, Venus
Blankenburg, Rebecca
Ming Yeh, Ann
author_facet Rivera, Nancy
Nguyen, Kaylie
Kalami, Venus
Blankenburg, Rebecca
Ming Yeh, Ann
author_sort Rivera, Nancy
collection PubMed
description The specific carbohydrate diet (SCD) has potential health benefits for inflammatory bowel disease (IBD); however, adherence is challenging. Through an online needs assessment survey, this study explored the perspectives of patients and caregivers using the SCD to manage IBD to determine barriers, knowledge gaps, and desired areas for further learning about the SCD. Inclusion criteria included patients with IBD or their caregivers who had experience with the SCD. Of the 208 participants, 87% of participants were female with a mean age of 46 years. Fifty-seven percent had never received SCD training before starting the diet. Participants favored more education on several topics within the SCD and identified one-on-one sessions as the preferred learning modality. Barriers identified were initial steep learning curve, time commitment, and a desire for more support from healthcare professionals. This needs assessment survey highlights the gaps in educational priorities for patients on the SCD.
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spelling pubmed-101584622023-05-09 Perspectives on Specific Carbohydrate Diet Education from Inflammatory Bowel Disease Patients and Caregivers: A Needs Assessment Rivera, Nancy Nguyen, Kaylie Kalami, Venus Blankenburg, Rebecca Ming Yeh, Ann JPGN Rep Brief Report The specific carbohydrate diet (SCD) has potential health benefits for inflammatory bowel disease (IBD); however, adherence is challenging. Through an online needs assessment survey, this study explored the perspectives of patients and caregivers using the SCD to manage IBD to determine barriers, knowledge gaps, and desired areas for further learning about the SCD. Inclusion criteria included patients with IBD or their caregivers who had experience with the SCD. Of the 208 participants, 87% of participants were female with a mean age of 46 years. Fifty-seven percent had never received SCD training before starting the diet. Participants favored more education on several topics within the SCD and identified one-on-one sessions as the preferred learning modality. Barriers identified were initial steep learning curve, time commitment, and a desire for more support from healthcare professionals. This needs assessment survey highlights the gaps in educational priorities for patients on the SCD. Lippincott Williams & Wilkins, Inc. 2022-07-25 /pmc/articles/PMC10158462/ /pubmed/37168623 http://dx.doi.org/10.1097/PG9.0000000000000222 Text en Copyright © 2022 The Author(s). Published by Wolters Kluwer Health, Inc. on behalf of the European Society for Pediatric Gastroenterology, Hepatology, and Nutrition and the North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition. https://creativecommons.org/licenses/by/4.0/This is an open access article distributed under the Creative Commons Attribution License 4.0 (CCBY) (https://creativecommons.org/licenses/by/4.0/) , which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Brief Report
Rivera, Nancy
Nguyen, Kaylie
Kalami, Venus
Blankenburg, Rebecca
Ming Yeh, Ann
Perspectives on Specific Carbohydrate Diet Education from Inflammatory Bowel Disease Patients and Caregivers: A Needs Assessment
title Perspectives on Specific Carbohydrate Diet Education from Inflammatory Bowel Disease Patients and Caregivers: A Needs Assessment
title_full Perspectives on Specific Carbohydrate Diet Education from Inflammatory Bowel Disease Patients and Caregivers: A Needs Assessment
title_fullStr Perspectives on Specific Carbohydrate Diet Education from Inflammatory Bowel Disease Patients and Caregivers: A Needs Assessment
title_full_unstemmed Perspectives on Specific Carbohydrate Diet Education from Inflammatory Bowel Disease Patients and Caregivers: A Needs Assessment
title_short Perspectives on Specific Carbohydrate Diet Education from Inflammatory Bowel Disease Patients and Caregivers: A Needs Assessment
title_sort perspectives on specific carbohydrate diet education from inflammatory bowel disease patients and caregivers: a needs assessment
topic Brief Report
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10158462/
https://www.ncbi.nlm.nih.gov/pubmed/37168623
http://dx.doi.org/10.1097/PG9.0000000000000222
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