“It's that invisible illness”: Patient and clinician perspectives on outcomes in pulmonary arterial hypertension treatment

Knowledge of what outcomes are most meaningful to pulmonary arterial hypertension (PAH) stakeholders is limited. In this qualitative study, patients and clinicians endorsed personalized physical activity, symptoms, and psychosocial well‐being as key outcomes to assess PAH treatment response, yet few...

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Detalles Bibliográficos
Autores principales: Auriemma, Catherine L., Minhas, Jasleen, Blue, Randi, Lapatra, Tess, Kawut, Steven M., Courtright, Katherine R.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2023
Materias:
Research Letter
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10166884/
https://www.ncbi.nlm.nih.gov/pubmed/37180826
http://dx.doi.org/10.1002/pul2.12236
Descripción
Sumario:Knowledge of what outcomes are most meaningful to pulmonary arterial hypertension (PAH) stakeholders is limited. In this qualitative study, patients and clinicians endorsed personalized physical activity, symptoms, and psychosocial well‐being as key outcomes to assess PAH treatment response, yet few are routinely measured in PAH clinical trials.

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