“It's that invisible illness”: Patient and clinician perspectives on outcomes in pulmonary arterial hypertension treatment

Knowledge of what outcomes are most meaningful to pulmonary arterial hypertension (PAH) stakeholders is limited. In this qualitative study, patients and clinicians endorsed personalized physical activity, symptoms, and psychosocial well‐being as key outcomes to assess PAH treatment response, yet few...

Descripción completa

Detalles Bibliográficos
Autores principales: Auriemma, Catherine L., Minhas, Jasleen, Blue, Randi, Lapatra, Tess, Kawut, Steven M., Courtright, Katherine R.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2023
Materias:
Research Letter
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10166884/
https://www.ncbi.nlm.nih.gov/pubmed/37180826
http://dx.doi.org/10.1002/pul2.12236
_version_ 1785038539825610752
author Auriemma, Catherine L.
Minhas, Jasleen
Blue, Randi
Lapatra, Tess
Kawut, Steven M.
Courtright, Katherine R.
author_facet Auriemma, Catherine L.
Minhas, Jasleen
Blue, Randi
Lapatra, Tess
Kawut, Steven M.
Courtright, Katherine R.
author_sort Auriemma, Catherine L.
collection PubMed
description Knowledge of what outcomes are most meaningful to pulmonary arterial hypertension (PAH) stakeholders is limited. In this qualitative study, patients and clinicians endorsed personalized physical activity, symptoms, and psychosocial well‐being as key outcomes to assess PAH treatment response, yet few are routinely measured in PAH clinical trials.
format Online
Article
Text
id pubmed-10166884
institution National Center for Biotechnology Information
language English
publishDate 2023
publisher John Wiley and Sons Inc.
record_format MEDLINE/PubMed
spelling pubmed-101668842023-05-10 “It's that invisible illness”: Patient and clinician perspectives on outcomes in pulmonary arterial hypertension treatment Auriemma, Catherine L. Minhas, Jasleen Blue, Randi Lapatra, Tess Kawut, Steven M. Courtright, Katherine R. Pulm Circ Research Letter Knowledge of what outcomes are most meaningful to pulmonary arterial hypertension (PAH) stakeholders is limited. In this qualitative study, patients and clinicians endorsed personalized physical activity, symptoms, and psychosocial well‐being as key outcomes to assess PAH treatment response, yet few are routinely measured in PAH clinical trials. John Wiley and Sons Inc. 2023-05-08 /pmc/articles/PMC10166884/ /pubmed/37180826 http://dx.doi.org/10.1002/pul2.12236 Text en © 2023 The Authors. Pulmonary Circulation published by John Wiley & Sons Ltd on behalf of Pulmonary Vascular Research Institute. https://creativecommons.org/licenses/by-nc/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.
spellingShingle Research Letter
Auriemma, Catherine L.
Minhas, Jasleen
Blue, Randi
Lapatra, Tess
Kawut, Steven M.
Courtright, Katherine R.
“It's that invisible illness”: Patient and clinician perspectives on outcomes in pulmonary arterial hypertension treatment
title “It's that invisible illness”: Patient and clinician perspectives on outcomes in pulmonary arterial hypertension treatment
title_full “It's that invisible illness”: Patient and clinician perspectives on outcomes in pulmonary arterial hypertension treatment
title_fullStr “It's that invisible illness”: Patient and clinician perspectives on outcomes in pulmonary arterial hypertension treatment
title_full_unstemmed “It's that invisible illness”: Patient and clinician perspectives on outcomes in pulmonary arterial hypertension treatment
title_short “It's that invisible illness”: Patient and clinician perspectives on outcomes in pulmonary arterial hypertension treatment
title_sort “it's that invisible illness”: patient and clinician perspectives on outcomes in pulmonary arterial hypertension treatment
topic Research Letter
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10166884/
https://www.ncbi.nlm.nih.gov/pubmed/37180826
http://dx.doi.org/10.1002/pul2.12236
work_keys_str_mv AT auriemmacatherinel itsthatinvisibleillnesspatientandclinicianperspectivesonoutcomesinpulmonaryarterialhypertensiontreatment
AT minhasjasleen itsthatinvisibleillnesspatientandclinicianperspectivesonoutcomesinpulmonaryarterialhypertensiontreatment
AT bluerandi itsthatinvisibleillnesspatientandclinicianperspectivesonoutcomesinpulmonaryarterialhypertensiontreatment
AT lapatratess itsthatinvisibleillnesspatientandclinicianperspectivesonoutcomesinpulmonaryarterialhypertensiontreatment
AT kawutstevenm itsthatinvisibleillnesspatientandclinicianperspectivesonoutcomesinpulmonaryarterialhypertensiontreatment
AT courtrightkatheriner itsthatinvisibleillnesspatientandclinicianperspectivesonoutcomesinpulmonaryarterialhypertensiontreatment

Ejemplares similares