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Practices and challenges for hemophilia management under resource constraints in Thailand

Hemophilia is an inherited bleeding disorder caused by deficiency of a specific coagulation factor. Factor VIII deficiency is responsible for hemophilia A while factor IX deficiency is responsible for hemophilia B. As per the 2020 annual global survey by the World Federation of Hemophilia, only 1828...

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Autores principales: Moonla, Chatphatai, Sosothikul, Darintr, Pongtanakul, Bunchoo, Suwanawiboon, Bundarika, Traivaree, Chanchai, Natesirinilkul, Rungrote, Sirachainan, Nongnuch, Angchaisuksiri, Pantep
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10170808/
https://www.ncbi.nlm.nih.gov/pubmed/37161533
http://dx.doi.org/10.1186/s13023-023-02718-1
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author Moonla, Chatphatai
Sosothikul, Darintr
Pongtanakul, Bunchoo
Suwanawiboon, Bundarika
Traivaree, Chanchai
Natesirinilkul, Rungrote
Sirachainan, Nongnuch
Angchaisuksiri, Pantep
author_facet Moonla, Chatphatai
Sosothikul, Darintr
Pongtanakul, Bunchoo
Suwanawiboon, Bundarika
Traivaree, Chanchai
Natesirinilkul, Rungrote
Sirachainan, Nongnuch
Angchaisuksiri, Pantep
author_sort Moonla, Chatphatai
collection PubMed
description Hemophilia is an inherited bleeding disorder caused by deficiency of a specific coagulation factor. Factor VIII deficiency is responsible for hemophilia A while factor IX deficiency is responsible for hemophilia B. As per the 2020 annual global survey by the World Federation of Hemophilia, only 1828 Thai hemophiliacs have been registered to the national healthcare system. The reason for the low number is the underdiagnosis which is a major concern in the real-world practice among Asian countries. In Thailand, most hemophiliacs are diagnosed by general practitioners, pediatricians or internists at rural hospitals and are referred to hemophilia specialists at the Hemophilia Treatment Centers (HTCs). Despite the challenges pertaining to infrastructure and cost of treatment, Thailand has progressed substantially in providing the required hemophilia care, as evidenced by an evolution in acquiring and sharing knowledge as well as collaborative efforts among multiple stakeholders over the past three decades. In this letter-to-the-editor, the authors have summarized the practices for and challenges faced with hemophilia management in Thailand.
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spelling pubmed-101708082023-05-11 Practices and challenges for hemophilia management under resource constraints in Thailand Moonla, Chatphatai Sosothikul, Darintr Pongtanakul, Bunchoo Suwanawiboon, Bundarika Traivaree, Chanchai Natesirinilkul, Rungrote Sirachainan, Nongnuch Angchaisuksiri, Pantep Orphanet J Rare Dis Letter to the Editor Hemophilia is an inherited bleeding disorder caused by deficiency of a specific coagulation factor. Factor VIII deficiency is responsible for hemophilia A while factor IX deficiency is responsible for hemophilia B. As per the 2020 annual global survey by the World Federation of Hemophilia, only 1828 Thai hemophiliacs have been registered to the national healthcare system. The reason for the low number is the underdiagnosis which is a major concern in the real-world practice among Asian countries. In Thailand, most hemophiliacs are diagnosed by general practitioners, pediatricians or internists at rural hospitals and are referred to hemophilia specialists at the Hemophilia Treatment Centers (HTCs). Despite the challenges pertaining to infrastructure and cost of treatment, Thailand has progressed substantially in providing the required hemophilia care, as evidenced by an evolution in acquiring and sharing knowledge as well as collaborative efforts among multiple stakeholders over the past three decades. In this letter-to-the-editor, the authors have summarized the practices for and challenges faced with hemophilia management in Thailand. BioMed Central 2023-05-10 /pmc/articles/PMC10170808/ /pubmed/37161533 http://dx.doi.org/10.1186/s13023-023-02718-1 Text en © The Author(s) 2023 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Letter to the Editor
Moonla, Chatphatai
Sosothikul, Darintr
Pongtanakul, Bunchoo
Suwanawiboon, Bundarika
Traivaree, Chanchai
Natesirinilkul, Rungrote
Sirachainan, Nongnuch
Angchaisuksiri, Pantep
Practices and challenges for hemophilia management under resource constraints in Thailand
title Practices and challenges for hemophilia management under resource constraints in Thailand
title_full Practices and challenges for hemophilia management under resource constraints in Thailand
title_fullStr Practices and challenges for hemophilia management under resource constraints in Thailand
title_full_unstemmed Practices and challenges for hemophilia management under resource constraints in Thailand
title_short Practices and challenges for hemophilia management under resource constraints in Thailand
title_sort practices and challenges for hemophilia management under resource constraints in thailand
topic Letter to the Editor
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10170808/
https://www.ncbi.nlm.nih.gov/pubmed/37161533
http://dx.doi.org/10.1186/s13023-023-02718-1
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