Cargando…
REDbox: a comprehensive semantic framework for data collection and management in tuberculosis research
Clinical research outcomes depend on the correct definition of the research protocol, the data collection strategy, and the data management plan. Furthermore, researchers often need to work within challenging contexts, as is the case in tuberculosis services, where human and technological resources...
Autores principales: | , , , , , , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Nature Publishing Group UK
2023
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10173910/ https://www.ncbi.nlm.nih.gov/pubmed/37169802 http://dx.doi.org/10.1038/s41598-023-33492-6 |
_version_ | 1785039925335293952 |
---|---|
author | Lima, Vinícius Costa Rijo, Rui Pedro Charters Lopes Bernardi, Filipe Andrade Filho, Márcio Eloi Colombo Barbosa-Junior, Francisco Pellison, Felipe Carvalho Galliez, Rafael Mello Kritski, Afrânio Lineu Alves, Domingos |
author_facet | Lima, Vinícius Costa Rijo, Rui Pedro Charters Lopes Bernardi, Filipe Andrade Filho, Márcio Eloi Colombo Barbosa-Junior, Francisco Pellison, Felipe Carvalho Galliez, Rafael Mello Kritski, Afrânio Lineu Alves, Domingos |
author_sort | Lima, Vinícius Costa |
collection | PubMed |
description | Clinical research outcomes depend on the correct definition of the research protocol, the data collection strategy, and the data management plan. Furthermore, researchers often need to work within challenging contexts, as is the case in tuberculosis services, where human and technological resources for research may be scarce. Electronic Data Capture Systems mitigate such risks and enable a reliable environment to conduct health research and promote result dissemination and data reusability. The proposed solution is based on needs pinpointed by researchers, considering the need for an accommodating solution to conduct research in low-resource environments. The REDbox framework was developed to facilitate data collection, management, sharing, and availability in tuberculosis research and improve the user experience through user-friendly, web-based tools. REDbox combines elements of the REDCap and KoBoToolbox electronic data capture systems and semantics to deliver new valuable tools that meet the needs of tuberculosis researchers in Brazil. The framework was implemented in five cross-institutional, nationwide projects to evaluate the users' perceptions of the system's usefulness and the information and user experience. Seventeen responses (representing 40% of active users) to an anonymous survey distributed to active users indicated that REDbox was perceived to be helpful for the particular audience of researchers and health professionals. The relevance of this article lies in the innovative approach to supporting tuberculosis research by combining existing technologies and tailoring supporting features. |
format | Online Article Text |
id | pubmed-10173910 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | Nature Publishing Group UK |
record_format | MEDLINE/PubMed |
spelling | pubmed-101739102023-05-13 REDbox: a comprehensive semantic framework for data collection and management in tuberculosis research Lima, Vinícius Costa Rijo, Rui Pedro Charters Lopes Bernardi, Filipe Andrade Filho, Márcio Eloi Colombo Barbosa-Junior, Francisco Pellison, Felipe Carvalho Galliez, Rafael Mello Kritski, Afrânio Lineu Alves, Domingos Sci Rep Article Clinical research outcomes depend on the correct definition of the research protocol, the data collection strategy, and the data management plan. Furthermore, researchers often need to work within challenging contexts, as is the case in tuberculosis services, where human and technological resources for research may be scarce. Electronic Data Capture Systems mitigate such risks and enable a reliable environment to conduct health research and promote result dissemination and data reusability. The proposed solution is based on needs pinpointed by researchers, considering the need for an accommodating solution to conduct research in low-resource environments. The REDbox framework was developed to facilitate data collection, management, sharing, and availability in tuberculosis research and improve the user experience through user-friendly, web-based tools. REDbox combines elements of the REDCap and KoBoToolbox electronic data capture systems and semantics to deliver new valuable tools that meet the needs of tuberculosis researchers in Brazil. The framework was implemented in five cross-institutional, nationwide projects to evaluate the users' perceptions of the system's usefulness and the information and user experience. Seventeen responses (representing 40% of active users) to an anonymous survey distributed to active users indicated that REDbox was perceived to be helpful for the particular audience of researchers and health professionals. The relevance of this article lies in the innovative approach to supporting tuberculosis research by combining existing technologies and tailoring supporting features. Nature Publishing Group UK 2023-05-11 /pmc/articles/PMC10173910/ /pubmed/37169802 http://dx.doi.org/10.1038/s41598-023-33492-6 Text en © The Author(s) 2023 https://creativecommons.org/licenses/by/4.0/Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . |
spellingShingle | Article Lima, Vinícius Costa Rijo, Rui Pedro Charters Lopes Bernardi, Filipe Andrade Filho, Márcio Eloi Colombo Barbosa-Junior, Francisco Pellison, Felipe Carvalho Galliez, Rafael Mello Kritski, Afrânio Lineu Alves, Domingos REDbox: a comprehensive semantic framework for data collection and management in tuberculosis research |
title | REDbox: a comprehensive semantic framework for data collection and management in tuberculosis research |
title_full | REDbox: a comprehensive semantic framework for data collection and management in tuberculosis research |
title_fullStr | REDbox: a comprehensive semantic framework for data collection and management in tuberculosis research |
title_full_unstemmed | REDbox: a comprehensive semantic framework for data collection and management in tuberculosis research |
title_short | REDbox: a comprehensive semantic framework for data collection and management in tuberculosis research |
title_sort | redbox: a comprehensive semantic framework for data collection and management in tuberculosis research |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10173910/ https://www.ncbi.nlm.nih.gov/pubmed/37169802 http://dx.doi.org/10.1038/s41598-023-33492-6 |
work_keys_str_mv | AT limaviniciuscosta redboxacomprehensivesemanticframeworkfordatacollectionandmanagementintuberculosisresearch AT rijoruipedrocharterslopes redboxacomprehensivesemanticframeworkfordatacollectionandmanagementintuberculosisresearch AT bernardifilipeandrade redboxacomprehensivesemanticframeworkfordatacollectionandmanagementintuberculosisresearch AT filhomarcioeloicolombo redboxacomprehensivesemanticframeworkfordatacollectionandmanagementintuberculosisresearch AT barbosajuniorfrancisco redboxacomprehensivesemanticframeworkfordatacollectionandmanagementintuberculosisresearch AT pellisonfelipecarvalho redboxacomprehensivesemanticframeworkfordatacollectionandmanagementintuberculosisresearch AT galliezrafaelmello redboxacomprehensivesemanticframeworkfordatacollectionandmanagementintuberculosisresearch AT kritskiafraniolineu redboxacomprehensivesemanticframeworkfordatacollectionandmanagementintuberculosisresearch AT alvesdomingos redboxacomprehensivesemanticframeworkfordatacollectionandmanagementintuberculosisresearch |