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Setting Patient-Centered Priorities for Cardiovascular Disease in Central Appalachia: Engaging Stakeholder Experts to Develop a Research Agenda
The disproportionate burden of cardiovascular diseases (CVD) and associated risk factors continues to exist in the Central Appalachian Region (CAR) of the United States. Previous studies to gather data about patient-centered care for CVD in the region were conducted through focus group discussions....
Autores principales: | , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10178300/ https://www.ncbi.nlm.nih.gov/pubmed/37174178 http://dx.doi.org/10.3390/ijerph20095660 |
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author | Nyarambi, Dumisa Osedeme, Fenose Mamudu, Hadii M. Littleton, Mary A. Poole, Amy M. Blair, Cynthia Voigt, Carl Gregory, Rob Drozek, David Stewart, David W. Weierbach, Florence M. Paul, Timir K. Flores, Emily K. Wei, Holly |
author_facet | Nyarambi, Dumisa Osedeme, Fenose Mamudu, Hadii M. Littleton, Mary A. Poole, Amy M. Blair, Cynthia Voigt, Carl Gregory, Rob Drozek, David Stewart, David W. Weierbach, Florence M. Paul, Timir K. Flores, Emily K. Wei, Holly |
author_sort | Nyarambi, Dumisa |
collection | PubMed |
description | The disproportionate burden of cardiovascular diseases (CVD) and associated risk factors continues to exist in the Central Appalachian Region (CAR) of the United States. Previous studies to gather data about patient-centered care for CVD in the region were conducted through focus group discussions. There have not been any studies that used a collaborative framework where patients, providers, and community stakeholders were engaged as panelists. The objective of this study was to identify patient-centered research priorities for CVD in the CAR. We used a modified Delphi approach to administer questionnaires to forty-two stakeholder experts in six states representing the CAR between the fall of 2018 and the summer of 2019. Their responses were analyzed for rankings and derived priorities by research gaps. Six of the fifteen research priorities identified were patient-centered. These patient-centered priorities included shorter wait times for appointments; educating patients at their level; empowering patients to take responsibility for their health; access to quality providers; heart disease specialists for rural areas; and lifestyle changes. The participants’ commitments to identify patient-centered research priorities indicate the potential to engage in community-based collaboration to address the burden of CVD in the CAR. |
format | Online Article Text |
id | pubmed-10178300 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | MDPI |
record_format | MEDLINE/PubMed |
spelling | pubmed-101783002023-05-13 Setting Patient-Centered Priorities for Cardiovascular Disease in Central Appalachia: Engaging Stakeholder Experts to Develop a Research Agenda Nyarambi, Dumisa Osedeme, Fenose Mamudu, Hadii M. Littleton, Mary A. Poole, Amy M. Blair, Cynthia Voigt, Carl Gregory, Rob Drozek, David Stewart, David W. Weierbach, Florence M. Paul, Timir K. Flores, Emily K. Wei, Holly Int J Environ Res Public Health Article The disproportionate burden of cardiovascular diseases (CVD) and associated risk factors continues to exist in the Central Appalachian Region (CAR) of the United States. Previous studies to gather data about patient-centered care for CVD in the region were conducted through focus group discussions. There have not been any studies that used a collaborative framework where patients, providers, and community stakeholders were engaged as panelists. The objective of this study was to identify patient-centered research priorities for CVD in the CAR. We used a modified Delphi approach to administer questionnaires to forty-two stakeholder experts in six states representing the CAR between the fall of 2018 and the summer of 2019. Their responses were analyzed for rankings and derived priorities by research gaps. Six of the fifteen research priorities identified were patient-centered. These patient-centered priorities included shorter wait times for appointments; educating patients at their level; empowering patients to take responsibility for their health; access to quality providers; heart disease specialists for rural areas; and lifestyle changes. The participants’ commitments to identify patient-centered research priorities indicate the potential to engage in community-based collaboration to address the burden of CVD in the CAR. MDPI 2023-04-27 /pmc/articles/PMC10178300/ /pubmed/37174178 http://dx.doi.org/10.3390/ijerph20095660 Text en © 2023 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). |
spellingShingle | Article Nyarambi, Dumisa Osedeme, Fenose Mamudu, Hadii M. Littleton, Mary A. Poole, Amy M. Blair, Cynthia Voigt, Carl Gregory, Rob Drozek, David Stewart, David W. Weierbach, Florence M. Paul, Timir K. Flores, Emily K. Wei, Holly Setting Patient-Centered Priorities for Cardiovascular Disease in Central Appalachia: Engaging Stakeholder Experts to Develop a Research Agenda |
title | Setting Patient-Centered Priorities for Cardiovascular Disease in Central Appalachia: Engaging Stakeholder Experts to Develop a Research Agenda |
title_full | Setting Patient-Centered Priorities for Cardiovascular Disease in Central Appalachia: Engaging Stakeholder Experts to Develop a Research Agenda |
title_fullStr | Setting Patient-Centered Priorities for Cardiovascular Disease in Central Appalachia: Engaging Stakeholder Experts to Develop a Research Agenda |
title_full_unstemmed | Setting Patient-Centered Priorities for Cardiovascular Disease in Central Appalachia: Engaging Stakeholder Experts to Develop a Research Agenda |
title_short | Setting Patient-Centered Priorities for Cardiovascular Disease in Central Appalachia: Engaging Stakeholder Experts to Develop a Research Agenda |
title_sort | setting patient-centered priorities for cardiovascular disease in central appalachia: engaging stakeholder experts to develop a research agenda |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10178300/ https://www.ncbi.nlm.nih.gov/pubmed/37174178 http://dx.doi.org/10.3390/ijerph20095660 |
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