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Access to healthcare for people with sickle cell disease: Views of healthcare professionals on policies and practices

INTRODUCTION: Sickle cell disease is a genetic disorder with its highest prevalence in Nigeria. The condition causes red blood cells to turn rigid, and consequently, results to several complications including organ damage. This study aimed at assessing views of health practitioners in Nigeria on pol...

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Autor principal: Adigwe, Obi Peter
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10178791/
https://www.ncbi.nlm.nih.gov/pubmed/36727575
http://dx.doi.org/10.1002/mgg3.2142
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author Adigwe, Obi Peter
author_facet Adigwe, Obi Peter
author_sort Adigwe, Obi Peter
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description INTRODUCTION: Sickle cell disease is a genetic disorder with its highest prevalence in Nigeria. The condition causes red blood cells to turn rigid, and consequently, results to several complications including organ damage. This study aimed at assessing views of health practitioners in Nigeria on policies and practices in the area of access to healthcare services for sickle cell disease. METHODS: A cross‐sectional study was undertaken amongst healthcare professionals in Nigeria. Data were collected using a self‐administered questionnaire, and analyses were undertaken using Statistical Package for Social Sciences software. RESULTS: A significant proportion of the participants (42.8%) disagreed that relevant legislative framework exists to facilitate optimal access to high‐quality healthcare services for persons with sickle cell disorder in Nigeria. Two‐thirds of the study cohort were of the opinion that public health surveillance towards sickle cell disease was suboptimal (61.2%). Also, more than three‐quarters of the respondents (78.7%) indicated that the cost of managing sickle cell disease was not affordable to majority of affected Nigerians. CONCLUSION: This study provides critical insights into access to healthcare services for sickle cell disease. As such, challenges preventing access to healthcare services for sickle cell patients which have been identified in this study can underpin the development of contextual policies to address them.
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spelling pubmed-101787912023-05-13 Access to healthcare for people with sickle cell disease: Views of healthcare professionals on policies and practices Adigwe, Obi Peter Mol Genet Genomic Med Original Articles INTRODUCTION: Sickle cell disease is a genetic disorder with its highest prevalence in Nigeria. The condition causes red blood cells to turn rigid, and consequently, results to several complications including organ damage. This study aimed at assessing views of health practitioners in Nigeria on policies and practices in the area of access to healthcare services for sickle cell disease. METHODS: A cross‐sectional study was undertaken amongst healthcare professionals in Nigeria. Data were collected using a self‐administered questionnaire, and analyses were undertaken using Statistical Package for Social Sciences software. RESULTS: A significant proportion of the participants (42.8%) disagreed that relevant legislative framework exists to facilitate optimal access to high‐quality healthcare services for persons with sickle cell disorder in Nigeria. Two‐thirds of the study cohort were of the opinion that public health surveillance towards sickle cell disease was suboptimal (61.2%). Also, more than three‐quarters of the respondents (78.7%) indicated that the cost of managing sickle cell disease was not affordable to majority of affected Nigerians. CONCLUSION: This study provides critical insights into access to healthcare services for sickle cell disease. As such, challenges preventing access to healthcare services for sickle cell patients which have been identified in this study can underpin the development of contextual policies to address them. John Wiley and Sons Inc. 2023-02-02 /pmc/articles/PMC10178791/ /pubmed/36727575 http://dx.doi.org/10.1002/mgg3.2142 Text en © 2023 The Author. Molecular Genetics & Genomic Medicine published by Wiley Periodicals LLC. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Articles
Adigwe, Obi Peter
Access to healthcare for people with sickle cell disease: Views of healthcare professionals on policies and practices
title Access to healthcare for people with sickle cell disease: Views of healthcare professionals on policies and practices
title_full Access to healthcare for people with sickle cell disease: Views of healthcare professionals on policies and practices
title_fullStr Access to healthcare for people with sickle cell disease: Views of healthcare professionals on policies and practices
title_full_unstemmed Access to healthcare for people with sickle cell disease: Views of healthcare professionals on policies and practices
title_short Access to healthcare for people with sickle cell disease: Views of healthcare professionals on policies and practices
title_sort access to healthcare for people with sickle cell disease: views of healthcare professionals on policies and practices
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10178791/
https://www.ncbi.nlm.nih.gov/pubmed/36727575
http://dx.doi.org/10.1002/mgg3.2142
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