Development and Economic Evaluation of a Patient-Centered Care Model for Children With Duchenne Muscular Dystrophy: Protocol for a Quasi-Experimental Study

BACKGROUND: Duchenne muscular dystrophy (DMD) is a rare progressive muscular disease that primarily affects boys. A lack of comprehensive care for patients living with DMD is directly associated with a compromised quality of life (QoL) for those affected and their caregivers. This disease also has a...

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Detalles Bibliográficos
Autores principales: Sirari, Titiksha, Suthar, Renu, Singh, Amarjeet, Prinja, Shankar, Gupta, Vishwas, Malviya, Manisha, Chauhan, Akashdeep Singh, Sankhyan, Naveen
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2023
Materias:
Protocol
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10182458/
https://www.ncbi.nlm.nih.gov/pubmed/37115592
http://dx.doi.org/10.2196/42491

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