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Understanding children’s experiences of self-wetting in humanitarian contexts: An evaluation of the Story Book methodology

Little is known about how children in humanitarian contexts experience self-wetting. Children can wet themselves due to having the medical condition of urinary incontinence (the involuntary leakage of urine), or due to them not wanting to or not being able to use the toilet facilities available (soc...

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Detalles Bibliográficos
Autores principales: Rosato-Scott, Claire, Alam, Mahbub-Ul, Evans, Barbara E., Rose, Joanne, Wozei, Eleanor, Barrington, Dani J.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10184904/
https://www.ncbi.nlm.nih.gov/pubmed/37186572
http://dx.doi.org/10.1371/journal.pgph.0001194
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author Rosato-Scott, Claire
Alam, Mahbub-Ul
Evans, Barbara E.
Rose, Joanne
Wozei, Eleanor
Barrington, Dani J.
author_facet Rosato-Scott, Claire
Alam, Mahbub-Ul
Evans, Barbara E.
Rose, Joanne
Wozei, Eleanor
Barrington, Dani J.
author_sort Rosato-Scott, Claire
collection PubMed
description Little is known about how children in humanitarian contexts experience self-wetting. Children can wet themselves due to having the medical condition of urinary incontinence (the involuntary leakage of urine), or due to them not wanting to or not being able to use the toilet facilities available (social or functional incontinence). Self-wetting is a global public health challenge: the physical health of children can suffer; they can miss out on educational and social opportunities; they may face increased protection risks; and the emotional effect on daily life can be significantly negative. The Story Book methodology was developed to facilitate conversations with children aged five to eleven in humanitarian contexts (specifically refugee settlements in Adjumani District, Uganda; and refugee camps in Cox’s Bazar, Bangladesh) about self-wetting to understand how humanitarian professionals can best meet the needs of children that wet themselves. This paper has evaluated how far the Story Book methodology meets the specific requirements of conducting research a) in a humanitarian context; b) with young children; and c) on a personal and highly sensitive topic. Data has been used from Story Book sessions held with children in Adjumani District and Cox’s Bazar, and from semi-structured interviews held with adults known to have participated in the planning and/or facilitation of the sessions. The evaluation found that although the Story Book methodology provided deep insights into how children in humanitarian contexts experience self-wetting, it was not always implemented as designed; it is not practical to implement in humanitarian settings; and it was not acceptable to all participants and facilitators as a research tool. Changes have been recommended to improve the methodology as a research tool to better understand how children experience personal health issues, but even with such changes the methodology will remain better suited to non-humanitarian contexts.
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spelling pubmed-101849042023-05-16 Understanding children’s experiences of self-wetting in humanitarian contexts: An evaluation of the Story Book methodology Rosato-Scott, Claire Alam, Mahbub-Ul Evans, Barbara E. Rose, Joanne Wozei, Eleanor Barrington, Dani J. PLOS Glob Public Health Research Article Little is known about how children in humanitarian contexts experience self-wetting. Children can wet themselves due to having the medical condition of urinary incontinence (the involuntary leakage of urine), or due to them not wanting to or not being able to use the toilet facilities available (social or functional incontinence). Self-wetting is a global public health challenge: the physical health of children can suffer; they can miss out on educational and social opportunities; they may face increased protection risks; and the emotional effect on daily life can be significantly negative. The Story Book methodology was developed to facilitate conversations with children aged five to eleven in humanitarian contexts (specifically refugee settlements in Adjumani District, Uganda; and refugee camps in Cox’s Bazar, Bangladesh) about self-wetting to understand how humanitarian professionals can best meet the needs of children that wet themselves. This paper has evaluated how far the Story Book methodology meets the specific requirements of conducting research a) in a humanitarian context; b) with young children; and c) on a personal and highly sensitive topic. Data has been used from Story Book sessions held with children in Adjumani District and Cox’s Bazar, and from semi-structured interviews held with adults known to have participated in the planning and/or facilitation of the sessions. The evaluation found that although the Story Book methodology provided deep insights into how children in humanitarian contexts experience self-wetting, it was not always implemented as designed; it is not practical to implement in humanitarian settings; and it was not acceptable to all participants and facilitators as a research tool. Changes have been recommended to improve the methodology as a research tool to better understand how children experience personal health issues, but even with such changes the methodology will remain better suited to non-humanitarian contexts. Public Library of Science 2023-05-15 /pmc/articles/PMC10184904/ /pubmed/37186572 http://dx.doi.org/10.1371/journal.pgph.0001194 Text en © 2023 Rosato-Scott et al https://creativecommons.org/licenses/by/4.0/This is an open access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/) , which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
spellingShingle Research Article
Rosato-Scott, Claire
Alam, Mahbub-Ul
Evans, Barbara E.
Rose, Joanne
Wozei, Eleanor
Barrington, Dani J.
Understanding children’s experiences of self-wetting in humanitarian contexts: An evaluation of the Story Book methodology
title Understanding children’s experiences of self-wetting in humanitarian contexts: An evaluation of the Story Book methodology
title_full Understanding children’s experiences of self-wetting in humanitarian contexts: An evaluation of the Story Book methodology
title_fullStr Understanding children’s experiences of self-wetting in humanitarian contexts: An evaluation of the Story Book methodology
title_full_unstemmed Understanding children’s experiences of self-wetting in humanitarian contexts: An evaluation of the Story Book methodology
title_short Understanding children’s experiences of self-wetting in humanitarian contexts: An evaluation of the Story Book methodology
title_sort understanding children’s experiences of self-wetting in humanitarian contexts: an evaluation of the story book methodology
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10184904/
https://www.ncbi.nlm.nih.gov/pubmed/37186572
http://dx.doi.org/10.1371/journal.pgph.0001194
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