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Advance Statements for Black African and Caribbean people (AdStAC): protocol for an implementation study

BACKGROUND: The UK government committed to legislating for Advance Choice Documents/Advance Statements (ACD/AS) following their recommendation by the Independent Review of the MHA (2018). ACDs/AS are yet to be implemented in routine practice despite evidence and high demand; they are associated with...

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Autores principales: Babatunde, Abigail, Ruck Keene, Alex, Simpson, Alan, Gilbert, Steven, Stephenson, Lucy, Chua, Kia-Chong, Owen, Gareth, Simpson, Adelabu Jonathan, Smith, Shubulade, Henderson, Claire
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10189925/
https://www.ncbi.nlm.nih.gov/pubmed/37198589
http://dx.doi.org/10.1186/s12888-023-04825-6
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author Babatunde, Abigail
Ruck Keene, Alex
Simpson, Alan
Gilbert, Steven
Stephenson, Lucy
Chua, Kia-Chong
Owen, Gareth
Simpson, Adelabu Jonathan
Smith, Shubulade
Henderson, Claire
author_facet Babatunde, Abigail
Ruck Keene, Alex
Simpson, Alan
Gilbert, Steven
Stephenson, Lucy
Chua, Kia-Chong
Owen, Gareth
Simpson, Adelabu Jonathan
Smith, Shubulade
Henderson, Claire
author_sort Babatunde, Abigail
collection PubMed
description BACKGROUND: The UK government committed to legislating for Advance Choice Documents/Advance Statements (ACD/AS) following their recommendation by the Independent Review of the MHA (2018). ACDs/AS are yet to be implemented in routine practice despite evidence and high demand; they are associated with improved therapeutic relationships and a reduction (25%, RR 0.75, CI 0.61–0.93) in compulsory psychiatric admission. Barriers to their implementation are well documented, ranging from low knowledge levels to logistical challenges in accessing the content during episodes of acute care. In the UK this is an issue for Black people, who experience detention rates disproportionately (over three times) higher than those of White British people and have poorer care experiences and outcomes. ACDs/AS allow for Black people to have their concerns heard by mental health professionals in a care system where they often feel their views are ignored. AdStAC aims to improve Black service users’ experiences in mental health services in South London by co-producing and testing an ACD/AS implementation resource with Black service users, mental health professionals and carers/supporters of Black service users. METHODS/DESIGN: The study will take place in South London, England over three phases: 1) formative work through stakeholder workshops; 2) co-production of resources through a consensus development exercise and working groups; and 3) testing of the resources using quality improvement (QI) methods. A lived experience advisory group, staff advisory group and project steering committee will support the study throughout. The implementation resources will comprise: advance choice document/advance statement (ACD/AS) documentation, stakeholder trainings, a manual for mental health professionals to facilitate the processes of creating and revising advance statements, and informatics development. DISCUSSION: The implementation resources will help increase the likelihood of the new mental health legislation in England being implemented effectively; through aligning evidence-based medicine, policy and law to effectively provide positive clinical, social and financial outcomes for Black people, the National Health Service (NHS) and wider society. This study will likely benefit a wider group of people with severe mental illness, as when marginalised groups who are least engaged, can be supported with these strategies, then the strategies are likely to work for others.
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spelling pubmed-101899252023-05-18 Advance Statements for Black African and Caribbean people (AdStAC): protocol for an implementation study Babatunde, Abigail Ruck Keene, Alex Simpson, Alan Gilbert, Steven Stephenson, Lucy Chua, Kia-Chong Owen, Gareth Simpson, Adelabu Jonathan Smith, Shubulade Henderson, Claire BMC Psychiatry Study Protocol BACKGROUND: The UK government committed to legislating for Advance Choice Documents/Advance Statements (ACD/AS) following their recommendation by the Independent Review of the MHA (2018). ACDs/AS are yet to be implemented in routine practice despite evidence and high demand; they are associated with improved therapeutic relationships and a reduction (25%, RR 0.75, CI 0.61–0.93) in compulsory psychiatric admission. Barriers to their implementation are well documented, ranging from low knowledge levels to logistical challenges in accessing the content during episodes of acute care. In the UK this is an issue for Black people, who experience detention rates disproportionately (over three times) higher than those of White British people and have poorer care experiences and outcomes. ACDs/AS allow for Black people to have their concerns heard by mental health professionals in a care system where they often feel their views are ignored. AdStAC aims to improve Black service users’ experiences in mental health services in South London by co-producing and testing an ACD/AS implementation resource with Black service users, mental health professionals and carers/supporters of Black service users. METHODS/DESIGN: The study will take place in South London, England over three phases: 1) formative work through stakeholder workshops; 2) co-production of resources through a consensus development exercise and working groups; and 3) testing of the resources using quality improvement (QI) methods. A lived experience advisory group, staff advisory group and project steering committee will support the study throughout. The implementation resources will comprise: advance choice document/advance statement (ACD/AS) documentation, stakeholder trainings, a manual for mental health professionals to facilitate the processes of creating and revising advance statements, and informatics development. DISCUSSION: The implementation resources will help increase the likelihood of the new mental health legislation in England being implemented effectively; through aligning evidence-based medicine, policy and law to effectively provide positive clinical, social and financial outcomes for Black people, the National Health Service (NHS) and wider society. This study will likely benefit a wider group of people with severe mental illness, as when marginalised groups who are least engaged, can be supported with these strategies, then the strategies are likely to work for others. BioMed Central 2023-05-17 /pmc/articles/PMC10189925/ /pubmed/37198589 http://dx.doi.org/10.1186/s12888-023-04825-6 Text en © Crown 2023 https://creativecommons.org/licenses/by/4.0/Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Study Protocol
Babatunde, Abigail
Ruck Keene, Alex
Simpson, Alan
Gilbert, Steven
Stephenson, Lucy
Chua, Kia-Chong
Owen, Gareth
Simpson, Adelabu Jonathan
Smith, Shubulade
Henderson, Claire
Advance Statements for Black African and Caribbean people (AdStAC): protocol for an implementation study
title Advance Statements for Black African and Caribbean people (AdStAC): protocol for an implementation study
title_full Advance Statements for Black African and Caribbean people (AdStAC): protocol for an implementation study
title_fullStr Advance Statements for Black African and Caribbean people (AdStAC): protocol for an implementation study
title_full_unstemmed Advance Statements for Black African and Caribbean people (AdStAC): protocol for an implementation study
title_short Advance Statements for Black African and Caribbean people (AdStAC): protocol for an implementation study
title_sort advance statements for black african and caribbean people (adstac): protocol for an implementation study
topic Study Protocol
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10189925/
https://www.ncbi.nlm.nih.gov/pubmed/37198589
http://dx.doi.org/10.1186/s12888-023-04825-6
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