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Early feasibility testing of a web-based mind-body resiliency program for adults with neurofibromatosis: The NF-Web study
OBJECTIVES: We aimed to test early feasibility, acceptability, and signals of improvement after the 8-week individually delivered asynchronous, web-based mind-body program (NF-Web) modeled after the synchronous group-based live video program (Relaxation Response Resiliency Program for NF; 3RP-NF). M...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Elsevier
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10194129/ https://www.ncbi.nlm.nih.gov/pubmed/37213775 http://dx.doi.org/10.1016/j.pecinn.2022.100076 |
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author | Lester, Ethan G. Fishbein, Nathan S. Peterson, Annabel Vranceanu, Ana-Maria |
author_facet | Lester, Ethan G. Fishbein, Nathan S. Peterson, Annabel Vranceanu, Ana-Maria |
author_sort | Lester, Ethan G. |
collection | PubMed |
description | OBJECTIVES: We aimed to test early feasibility, acceptability, and signals of improvement after the 8-week individually delivered asynchronous, web-based mind-body program (NF-Web) modeled after the synchronous group-based live video program (Relaxation Response Resiliency Program for NF; 3RP-NF). METHODS: Two cohorts (cohort 1 n = 14, cohort 2 n = 14) completed baseline and posttest (feasibility markers, t-tests). RESULTS: Enrolled participants (N = 28; 80% of those eligible) completed baseline (N = 28; 100% of sample) and posttests (N = 25; 89.3%). Video lesson (58.0%) and homework (70.9%) completion were fair to good. Satisfaction (M = 8.85/10; SD = 2.35), credibility (M = 7.07/10; SD = 1.44), and expectancy (M = 6.68/10; SD = 2.10) were good to excellent. Participation was associated with statistically significant pre-to-post positive changes in quality of life (QoL; Physical, Psychological, Social, and Environmental,; p < 0.05) and emotional distress (depression, anxiety, and stress; p < 0.05). Pain intensity and interference did not improve significantly (p > 0.05) after participation. CONCLUSIONS: NF-Web demonstrates initial feasibility, acceptability, and signals of improvement. Results support future trials to ascertain efficacy. INNOVATION: Web-based programs may be valuable for individuals with rare illness who prefer to learn skills on their own timeline, have barriers to live video participation, and who also have apprehensions about interacting with others during treatment. |
format | Online Article Text |
id | pubmed-10194129 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | Elsevier |
record_format | MEDLINE/PubMed |
spelling | pubmed-101941292023-05-19 Early feasibility testing of a web-based mind-body resiliency program for adults with neurofibromatosis: The NF-Web study Lester, Ethan G. Fishbein, Nathan S. Peterson, Annabel Vranceanu, Ana-Maria PEC Innov Articles from the Special issue on Improving the delivery of care using digital technologies; Edited by Jordan Alpert OBJECTIVES: We aimed to test early feasibility, acceptability, and signals of improvement after the 8-week individually delivered asynchronous, web-based mind-body program (NF-Web) modeled after the synchronous group-based live video program (Relaxation Response Resiliency Program for NF; 3RP-NF). METHODS: Two cohorts (cohort 1 n = 14, cohort 2 n = 14) completed baseline and posttest (feasibility markers, t-tests). RESULTS: Enrolled participants (N = 28; 80% of those eligible) completed baseline (N = 28; 100% of sample) and posttests (N = 25; 89.3%). Video lesson (58.0%) and homework (70.9%) completion were fair to good. Satisfaction (M = 8.85/10; SD = 2.35), credibility (M = 7.07/10; SD = 1.44), and expectancy (M = 6.68/10; SD = 2.10) were good to excellent. Participation was associated with statistically significant pre-to-post positive changes in quality of life (QoL; Physical, Psychological, Social, and Environmental,; p < 0.05) and emotional distress (depression, anxiety, and stress; p < 0.05). Pain intensity and interference did not improve significantly (p > 0.05) after participation. CONCLUSIONS: NF-Web demonstrates initial feasibility, acceptability, and signals of improvement. Results support future trials to ascertain efficacy. INNOVATION: Web-based programs may be valuable for individuals with rare illness who prefer to learn skills on their own timeline, have barriers to live video participation, and who also have apprehensions about interacting with others during treatment. Elsevier 2022-08-20 /pmc/articles/PMC10194129/ /pubmed/37213775 http://dx.doi.org/10.1016/j.pecinn.2022.100076 Text en © 2022 The Authors https://creativecommons.org/licenses/by/4.0/This is an open access article under the CC BY license (http://creativecommons.org/licenses/by/4.0/). |
spellingShingle | Articles from the Special issue on Improving the delivery of care using digital technologies; Edited by Jordan Alpert Lester, Ethan G. Fishbein, Nathan S. Peterson, Annabel Vranceanu, Ana-Maria Early feasibility testing of a web-based mind-body resiliency program for adults with neurofibromatosis: The NF-Web study |
title | Early feasibility testing of a web-based mind-body resiliency program for adults with neurofibromatosis: The NF-Web study |
title_full | Early feasibility testing of a web-based mind-body resiliency program for adults with neurofibromatosis: The NF-Web study |
title_fullStr | Early feasibility testing of a web-based mind-body resiliency program for adults with neurofibromatosis: The NF-Web study |
title_full_unstemmed | Early feasibility testing of a web-based mind-body resiliency program for adults with neurofibromatosis: The NF-Web study |
title_short | Early feasibility testing of a web-based mind-body resiliency program for adults with neurofibromatosis: The NF-Web study |
title_sort | early feasibility testing of a web-based mind-body resiliency program for adults with neurofibromatosis: the nf-web study |
topic | Articles from the Special issue on Improving the delivery of care using digital technologies; Edited by Jordan Alpert |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10194129/ https://www.ncbi.nlm.nih.gov/pubmed/37213775 http://dx.doi.org/10.1016/j.pecinn.2022.100076 |
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