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Highlighting the value of Alzheimer’s disease-focused registries: lessons learned from cancer surveillance
Like cancer, Alzheimer’s disease and related dementias (ADRD) comprise a global health burden that can benefit tremendously from the power of disease registry data. With an aging population, the incidence, treatment, and mortality from ADRD is increasing and changing rapidly. In the same way that cu...
Autores principales: | , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Frontiers Media S.A.
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10196140/ https://www.ncbi.nlm.nih.gov/pubmed/37214775 http://dx.doi.org/10.3389/fragi.2023.1179275 |
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author | Miller, Margaret C. Bayakly, Rana Schreurs, Bernard G. Flicker, Kimberly J. Adams, Swann Arp Ingram, Lucy A. Hardin, James W. Lohman, Matthew Ford, Marvella E. McCollum, Quentin McCrary-Quarles, Audrey Ariyo, Oluwole Levkoff, Sue E. Friedman, Daniela B. |
author_facet | Miller, Margaret C. Bayakly, Rana Schreurs, Bernard G. Flicker, Kimberly J. Adams, Swann Arp Ingram, Lucy A. Hardin, James W. Lohman, Matthew Ford, Marvella E. McCollum, Quentin McCrary-Quarles, Audrey Ariyo, Oluwole Levkoff, Sue E. Friedman, Daniela B. |
author_sort | Miller, Margaret C. |
collection | PubMed |
description | Like cancer, Alzheimer’s disease and related dementias (ADRD) comprise a global health burden that can benefit tremendously from the power of disease registry data. With an aging population, the incidence, treatment, and mortality from ADRD is increasing and changing rapidly. In the same way that current cancer registries work toward prevention and control, so do ADRD registries. ADRD registries maintain a comprehensive and accurate registry of ADRD within their state, provide disease prevalence estimates to enable better planning for social and medical services, identify differences in disease prevalence among demographic groups, help those who care for individuals with ADRD, and foster research into risk factors for ADRD. ADRD registries offer a unique opportunity to conduct high-impact, scientifically rigorous research efficiently. As research on and development of ADRD treatments continue to be a priority, such registries can be powerful tools for conducting observational studies of the disease. This perspectives piece examines how established cancer registries can inform ADRD registries’ impact on public health surveillance, research, and intervention, and inform and engage policymakers. |
format | Online Article Text |
id | pubmed-10196140 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | Frontiers Media S.A. |
record_format | MEDLINE/PubMed |
spelling | pubmed-101961402023-05-20 Highlighting the value of Alzheimer’s disease-focused registries: lessons learned from cancer surveillance Miller, Margaret C. Bayakly, Rana Schreurs, Bernard G. Flicker, Kimberly J. Adams, Swann Arp Ingram, Lucy A. Hardin, James W. Lohman, Matthew Ford, Marvella E. McCollum, Quentin McCrary-Quarles, Audrey Ariyo, Oluwole Levkoff, Sue E. Friedman, Daniela B. Front Aging Aging Like cancer, Alzheimer’s disease and related dementias (ADRD) comprise a global health burden that can benefit tremendously from the power of disease registry data. With an aging population, the incidence, treatment, and mortality from ADRD is increasing and changing rapidly. In the same way that current cancer registries work toward prevention and control, so do ADRD registries. ADRD registries maintain a comprehensive and accurate registry of ADRD within their state, provide disease prevalence estimates to enable better planning for social and medical services, identify differences in disease prevalence among demographic groups, help those who care for individuals with ADRD, and foster research into risk factors for ADRD. ADRD registries offer a unique opportunity to conduct high-impact, scientifically rigorous research efficiently. As research on and development of ADRD treatments continue to be a priority, such registries can be powerful tools for conducting observational studies of the disease. This perspectives piece examines how established cancer registries can inform ADRD registries’ impact on public health surveillance, research, and intervention, and inform and engage policymakers. Frontiers Media S.A. 2023-05-05 /pmc/articles/PMC10196140/ /pubmed/37214775 http://dx.doi.org/10.3389/fragi.2023.1179275 Text en Copyright © 2023 Miller, Bayakly, Schreurs, Flicker, Adams, Ingram, Hardin, Lohman, Ford, McCollum, McCrary-Quarles, Ariyo, Levkoff and Friedman. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms. |
spellingShingle | Aging Miller, Margaret C. Bayakly, Rana Schreurs, Bernard G. Flicker, Kimberly J. Adams, Swann Arp Ingram, Lucy A. Hardin, James W. Lohman, Matthew Ford, Marvella E. McCollum, Quentin McCrary-Quarles, Audrey Ariyo, Oluwole Levkoff, Sue E. Friedman, Daniela B. Highlighting the value of Alzheimer’s disease-focused registries: lessons learned from cancer surveillance |
title | Highlighting the value of Alzheimer’s disease-focused registries: lessons learned from cancer surveillance |
title_full | Highlighting the value of Alzheimer’s disease-focused registries: lessons learned from cancer surveillance |
title_fullStr | Highlighting the value of Alzheimer’s disease-focused registries: lessons learned from cancer surveillance |
title_full_unstemmed | Highlighting the value of Alzheimer’s disease-focused registries: lessons learned from cancer surveillance |
title_short | Highlighting the value of Alzheimer’s disease-focused registries: lessons learned from cancer surveillance |
title_sort | highlighting the value of alzheimer’s disease-focused registries: lessons learned from cancer surveillance |
topic | Aging |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10196140/ https://www.ncbi.nlm.nih.gov/pubmed/37214775 http://dx.doi.org/10.3389/fragi.2023.1179275 |
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