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Advocacy for patients with headache disorders
Primary headache disorders are worldwide highly prevalent and burdensome and should be therefore considered as a global public health priority. However, too many patients with primary headache disorders still do not receive satisfying care. The most likely identified reasons for such a scenario - la...
Autores principales: | , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Elsevier
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10209324/ https://www.ncbi.nlm.nih.gov/pubmed/37250108 http://dx.doi.org/10.1016/j.ensci.2023.100466 |
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author | Gouider, Riadh Lorenz, Deborah Henscheid Craven, Audrey Grisold, Wolfgang Dodick, David W. |
author_facet | Gouider, Riadh Lorenz, Deborah Henscheid Craven, Audrey Grisold, Wolfgang Dodick, David W. |
author_sort | Gouider, Riadh |
collection | PubMed |
description | Primary headache disorders are worldwide highly prevalent and burdensome and should be therefore considered as a global public health priority. However, too many patients with primary headache disorders still do not receive satisfying care. The most likely identified reasons for such a scenario - lack of public awareness, stigma, lack of trained professionals with inadequate healthcare systems and policies - are remediable. Despite the progresses that were made in headache advocacy, these efforts have not yielded substantial improvements in research funding or access to specialty care and even standards of care. The situation is more complex in Low and Middle Income Countries (LMICs) where headache advocacy is urgently needed given the magnitude of the difficulties that patients with primary headache disorders face in accessing care. The growing emergence of coordinated, collaborative, patient-centered advocacy efforts with improved patient-clinician partnership is an opportunity to enhance progress in advocacy for a satisfying life and optimal and equitable care for people with primary headache disorders. LMICs can benefit greatly from coordinating these efforts on a global scale. The recent organization of a training program on headache diagnosis and management for healthcare professionals in Africa is a concrete example. |
format | Online Article Text |
id | pubmed-10209324 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | Elsevier |
record_format | MEDLINE/PubMed |
spelling | pubmed-102093242023-05-26 Advocacy for patients with headache disorders Gouider, Riadh Lorenz, Deborah Henscheid Craven, Audrey Grisold, Wolfgang Dodick, David W. eNeurologicalSci Review Article Primary headache disorders are worldwide highly prevalent and burdensome and should be therefore considered as a global public health priority. However, too many patients with primary headache disorders still do not receive satisfying care. The most likely identified reasons for such a scenario - lack of public awareness, stigma, lack of trained professionals with inadequate healthcare systems and policies - are remediable. Despite the progresses that were made in headache advocacy, these efforts have not yielded substantial improvements in research funding or access to specialty care and even standards of care. The situation is more complex in Low and Middle Income Countries (LMICs) where headache advocacy is urgently needed given the magnitude of the difficulties that patients with primary headache disorders face in accessing care. The growing emergence of coordinated, collaborative, patient-centered advocacy efforts with improved patient-clinician partnership is an opportunity to enhance progress in advocacy for a satisfying life and optimal and equitable care for people with primary headache disorders. LMICs can benefit greatly from coordinating these efforts on a global scale. The recent organization of a training program on headache diagnosis and management for healthcare professionals in Africa is a concrete example. Elsevier 2023-05-10 /pmc/articles/PMC10209324/ /pubmed/37250108 http://dx.doi.org/10.1016/j.ensci.2023.100466 Text en © 2023 Published by Elsevier B.V. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/). |
spellingShingle | Review Article Gouider, Riadh Lorenz, Deborah Henscheid Craven, Audrey Grisold, Wolfgang Dodick, David W. Advocacy for patients with headache disorders |
title | Advocacy for patients with headache disorders |
title_full | Advocacy for patients with headache disorders |
title_fullStr | Advocacy for patients with headache disorders |
title_full_unstemmed | Advocacy for patients with headache disorders |
title_short | Advocacy for patients with headache disorders |
title_sort | advocacy for patients with headache disorders |
topic | Review Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10209324/ https://www.ncbi.nlm.nih.gov/pubmed/37250108 http://dx.doi.org/10.1016/j.ensci.2023.100466 |
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