Psychosocial burden in transfusion dependent beta-thalassemia patients and its impact on the quality of life and the problem of dignity

Beta-thalassemia major is a genetic blood disorder that impacts hemoglobin production with several symptoms that decrease quality of life in patients. Blood transfusions may help them to regulate their hemoglobin needs, though this is a lifelong intervention. Struggling with dependent blood transfus...

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Detalles Bibliográficos
Autores principales: Wangi, Karolus, Birriel, Barbara, Smith, Colin
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Taibah University 2023
Materias:
Letter to the Editor
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10209453/
https://www.ncbi.nlm.nih.gov/pubmed/37250810
http://dx.doi.org/10.1016/j.jtumed.2023.05.002
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author Wangi, Karolus
Birriel, Barbara
Smith, Colin
author_facet Wangi, Karolus
Birriel, Barbara
Smith, Colin
author_sort Wangi, Karolus
collection PubMed
description Beta-thalassemia major is a genetic blood disorder that impacts hemoglobin production with several symptoms that decrease quality of life in patients. Blood transfusions may help them to regulate their hemoglobin needs, though this is a lifelong intervention. Struggling with dependent blood transfusion status impacts patients greatly including their bio, psycho, social, and spiritual health, potentially raising a bioethical issue related to human dignity.
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spelling pubmed-102094532023-05-26 Psychosocial burden in transfusion dependent beta-thalassemia patients and its impact on the quality of life and the problem of dignity Wangi, Karolus Birriel, Barbara Smith, Colin J Taibah Univ Med Sci Letter to the Editor Beta-thalassemia major is a genetic blood disorder that impacts hemoglobin production with several symptoms that decrease quality of life in patients. Blood transfusions may help them to regulate their hemoglobin needs, though this is a lifelong intervention. Struggling with dependent blood transfusion status impacts patients greatly including their bio, psycho, social, and spiritual health, potentially raising a bioethical issue related to human dignity. Taibah University 2023-05-10 /pmc/articles/PMC10209453/ /pubmed/37250810 http://dx.doi.org/10.1016/j.jtumed.2023.05.002 Text en © 2023 [The Author/The Authors] https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/).
spellingShingle Letter to the Editor
Wangi, Karolus
Birriel, Barbara
Smith, Colin
Psychosocial burden in transfusion dependent beta-thalassemia patients and its impact on the quality of life and the problem of dignity
title Psychosocial burden in transfusion dependent beta-thalassemia patients and its impact on the quality of life and the problem of dignity
title_full Psychosocial burden in transfusion dependent beta-thalassemia patients and its impact on the quality of life and the problem of dignity
title_fullStr Psychosocial burden in transfusion dependent beta-thalassemia patients and its impact on the quality of life and the problem of dignity
title_full_unstemmed Psychosocial burden in transfusion dependent beta-thalassemia patients and its impact on the quality of life and the problem of dignity
title_short Psychosocial burden in transfusion dependent beta-thalassemia patients and its impact on the quality of life and the problem of dignity
title_sort psychosocial burden in transfusion dependent beta-thalassemia patients and its impact on the quality of life and the problem of dignity
topic Letter to the Editor
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10209453/
https://www.ncbi.nlm.nih.gov/pubmed/37250810
http://dx.doi.org/10.1016/j.jtumed.2023.05.002
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