The unbreakable journey: using photovoice to raise awareness and fight leprosy stigma in Papua, Indonesia

In preparation of an ongoing trial to improve the treatment of leprosy (MetLep, clinicaltrials.gov: NCT05243654), we conducted a photovoice project among persons affected by leprosy in eastern Indonesia. Photovoice is a participatory visual method in which photographic images are used to explore com...

Descripción completa

Detalles Bibliográficos
Autores principales: Dien, Ragil, Krismawati, Hana, Ayomi, Ivon, Timoria, Diana , Chambers, Mary, Soebono, Hardyanto, Grijsen, Marlous L
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2023
Materias:
Perspectives
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10230960/
https://www.ncbi.nlm.nih.gov/pubmed/36866652
http://dx.doi.org/10.1093/bjd/ljad059
_version_ 1785051649236008960
author Dien, Ragil
Krismawati, Hana
Ayomi, Ivon
Timoria, Diana 
Chambers, Mary
Soebono, Hardyanto
Grijsen, Marlous L
author_facet Dien, Ragil
Krismawati, Hana
Ayomi, Ivon
Timoria, Diana 
Chambers, Mary
Soebono, Hardyanto
Grijsen, Marlous L
author_sort Dien, Ragil
collection PubMed
description In preparation of an ongoing trial to improve the treatment of leprosy (MetLep, clinicaltrials.gov: NCT05243654), we conducted a photovoice project among persons affected by leprosy in eastern Indonesia. Photovoice is a participatory visual method in which photographic images are used to explore community health and social issues among disadvantaged populations. This project generated opportunities to visualize stigma and misunderstandings people with leprosy face, and the social and mental burden that this puts on them and those around them.
format Online
Article
Text
id pubmed-10230960
institution National Center for Biotechnology Information
language English
publishDate 2023
publisher Oxford University Press
record_format MEDLINE/PubMed
spelling pubmed-102309602023-06-01 The unbreakable journey: using photovoice to raise awareness and fight leprosy stigma in Papua, Indonesia Dien, Ragil Krismawati, Hana Ayomi, Ivon Timoria, Diana  Chambers, Mary Soebono, Hardyanto Grijsen, Marlous L Br J Dermatol Perspectives In preparation of an ongoing trial to improve the treatment of leprosy (MetLep, clinicaltrials.gov: NCT05243654), we conducted a photovoice project among persons affected by leprosy in eastern Indonesia. Photovoice is a participatory visual method in which photographic images are used to explore community health and social issues among disadvantaged populations. This project generated opportunities to visualize stigma and misunderstandings people with leprosy face, and the social and mental burden that this puts on them and those around them. Oxford University Press 2023-03-03 /pmc/articles/PMC10230960/ /pubmed/36866652 http://dx.doi.org/10.1093/bjd/ljad059 Text en © The Author(s) 2022. Published by Oxford University Press on behalf of British Association of Dermatologists. https://creativecommons.org/licenses/by/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Perspectives
Dien, Ragil
Krismawati, Hana
Ayomi, Ivon
Timoria, Diana 
Chambers, Mary
Soebono, Hardyanto
Grijsen, Marlous L
The unbreakable journey: using photovoice to raise awareness and fight leprosy stigma in Papua, Indonesia
title The unbreakable journey: using photovoice to raise awareness and fight leprosy stigma in Papua, Indonesia
title_full The unbreakable journey: using photovoice to raise awareness and fight leprosy stigma in Papua, Indonesia
title_fullStr The unbreakable journey: using photovoice to raise awareness and fight leprosy stigma in Papua, Indonesia
title_full_unstemmed The unbreakable journey: using photovoice to raise awareness and fight leprosy stigma in Papua, Indonesia
title_short The unbreakable journey: using photovoice to raise awareness and fight leprosy stigma in Papua, Indonesia
title_sort unbreakable journey: using photovoice to raise awareness and fight leprosy stigma in papua, indonesia
topic Perspectives
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10230960/
https://www.ncbi.nlm.nih.gov/pubmed/36866652
http://dx.doi.org/10.1093/bjd/ljad059
work_keys_str_mv AT dienragil theunbreakablejourneyusingphotovoicetoraiseawarenessandfightleprosystigmainpapuaindonesia
AT krismawatihana theunbreakablejourneyusingphotovoicetoraiseawarenessandfightleprosystigmainpapuaindonesia
AT ayomiivon theunbreakablejourneyusingphotovoicetoraiseawarenessandfightleprosystigmainpapuaindonesia
AT timoriadiana theunbreakablejourneyusingphotovoicetoraiseawarenessandfightleprosystigmainpapuaindonesia
AT chambersmary theunbreakablejourneyusingphotovoicetoraiseawarenessandfightleprosystigmainpapuaindonesia
AT soebonohardyanto theunbreakablejourneyusingphotovoicetoraiseawarenessandfightleprosystigmainpapuaindonesia
AT grijsenmarlousl theunbreakablejourneyusingphotovoicetoraiseawarenessandfightleprosystigmainpapuaindonesia
AT dienragil unbreakablejourneyusingphotovoicetoraiseawarenessandfightleprosystigmainpapuaindonesia
AT krismawatihana unbreakablejourneyusingphotovoicetoraiseawarenessandfightleprosystigmainpapuaindonesia
AT ayomiivon unbreakablejourneyusingphotovoicetoraiseawarenessandfightleprosystigmainpapuaindonesia
AT timoriadiana unbreakablejourneyusingphotovoicetoraiseawarenessandfightleprosystigmainpapuaindonesia
AT chambersmary unbreakablejourneyusingphotovoicetoraiseawarenessandfightleprosystigmainpapuaindonesia
AT soebonohardyanto unbreakablejourneyusingphotovoicetoraiseawarenessandfightleprosystigmainpapuaindonesia
AT grijsenmarlousl unbreakablejourneyusingphotovoicetoraiseawarenessandfightleprosystigmainpapuaindonesia

Ejemplares similares