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Assessing unmet needs in patients with hidradenitis suppurativa

The diagnosis and management of hidradenitis suppurativa (HS) varies greatly between providers, often resulting in gaps in care including diagnostic delays and poor outcomes. As dermatologists strive to improve HS management, understanding patient perspectives is key. This study aims to characterize...

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Autores principales: Chadha, Simran A., Stout, Molly A., Goyal, Parul Kathuria, Nguyen, Cuong V., Lu, Kurt Q.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10234229/
https://www.ncbi.nlm.nih.gov/pubmed/37264285
http://dx.doi.org/10.1007/s00403-023-02645-y
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author Chadha, Simran A.
Stout, Molly A.
Goyal, Parul Kathuria
Nguyen, Cuong V.
Lu, Kurt Q.
author_facet Chadha, Simran A.
Stout, Molly A.
Goyal, Parul Kathuria
Nguyen, Cuong V.
Lu, Kurt Q.
author_sort Chadha, Simran A.
collection PubMed
description The diagnosis and management of hidradenitis suppurativa (HS) varies greatly between providers, often resulting in gaps in care including diagnostic delays and poor outcomes. As dermatologists strive to improve HS management, understanding patient perspectives is key. This study aims to characterize existing gaps in HS care as understood through patients’ experiences. This study recruited adult patients with a diagnosis of HS seen at dermatology practices affiliated with Northwestern University. Data were collected through participant surveys and three semi-structured focus groups. Focus group meetings were transcribed verbatim and data were abstracted into themes using conventional content analysis. Six final themes were abstracted after review of 20 pages of transcribed conversation. Four themes centered on improved medical management of HS (access to care, disease-modifying therapies, symptom treatment, prevention of treatment-related adverse events). Two themes centered on supportive care (mental health support, specialized daily wear products). Limitations of this study include single-center recruitment and recall bias introduced by the focus group format. This study identifies six unmet needs for patients with HS and highlights the efficacy of a virtual format for research, conversation, and possibly clinical engagement. Moreover, multiple themes underscore the need for further collaboration across specialties in managing HS.
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spelling pubmed-102342292023-06-01 Assessing unmet needs in patients with hidradenitis suppurativa Chadha, Simran A. Stout, Molly A. Goyal, Parul Kathuria Nguyen, Cuong V. Lu, Kurt Q. Arch Dermatol Res Original Paper The diagnosis and management of hidradenitis suppurativa (HS) varies greatly between providers, often resulting in gaps in care including diagnostic delays and poor outcomes. As dermatologists strive to improve HS management, understanding patient perspectives is key. This study aims to characterize existing gaps in HS care as understood through patients’ experiences. This study recruited adult patients with a diagnosis of HS seen at dermatology practices affiliated with Northwestern University. Data were collected through participant surveys and three semi-structured focus groups. Focus group meetings were transcribed verbatim and data were abstracted into themes using conventional content analysis. Six final themes were abstracted after review of 20 pages of transcribed conversation. Four themes centered on improved medical management of HS (access to care, disease-modifying therapies, symptom treatment, prevention of treatment-related adverse events). Two themes centered on supportive care (mental health support, specialized daily wear products). Limitations of this study include single-center recruitment and recall bias introduced by the focus group format. This study identifies six unmet needs for patients with HS and highlights the efficacy of a virtual format for research, conversation, and possibly clinical engagement. Moreover, multiple themes underscore the need for further collaboration across specialties in managing HS. Springer Berlin Heidelberg 2023-06-01 /pmc/articles/PMC10234229/ /pubmed/37264285 http://dx.doi.org/10.1007/s00403-023-02645-y Text en © The Author(s), under exclusive licence to Springer-Verlag GmbH Germany, part of Springer Nature 2023. Springer Nature or its licensor (e.g. a society or other partner) holds exclusive rights to this article under a publishing agreement with the author(s) or other rightsholder(s); author self-archiving of the accepted manuscript version of this article is solely governed by the terms of such publishing agreement and applicable law. This article is made available via the PMC Open Access Subset for unrestricted research re-use and secondary analysis in any form or by any means with acknowledgement of the original source. These permissions are granted for the duration of the World Health Organization (WHO) declaration of COVID-19 as a global pandemic.
spellingShingle Original Paper
Chadha, Simran A.
Stout, Molly A.
Goyal, Parul Kathuria
Nguyen, Cuong V.
Lu, Kurt Q.
Assessing unmet needs in patients with hidradenitis suppurativa
title Assessing unmet needs in patients with hidradenitis suppurativa
title_full Assessing unmet needs in patients with hidradenitis suppurativa
title_fullStr Assessing unmet needs in patients with hidradenitis suppurativa
title_full_unstemmed Assessing unmet needs in patients with hidradenitis suppurativa
title_short Assessing unmet needs in patients with hidradenitis suppurativa
title_sort assessing unmet needs in patients with hidradenitis suppurativa
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10234229/
https://www.ncbi.nlm.nih.gov/pubmed/37264285
http://dx.doi.org/10.1007/s00403-023-02645-y
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