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The Pandora’s box of transparency opened by direct-to-consumer genetic testing
With the increasing use of direct-to-consumer (DTC) genetic testing, several cases of fertility fraud have been uncovered throughout the world. A review of newspaper articles and specialized literature was made to analyze the issue of fertility fraud. The most famous cases, some of which are narrate...
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Formato: | Online Artículo Texto |
Lenguaje: | English |
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Frontiers Media S.A.
2023
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Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10235527/ https://www.ncbi.nlm.nih.gov/pubmed/37274784 http://dx.doi.org/10.3389/fgene.2023.1175666 |
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author | Saruwatari Zavala, Garbiñe |
author_facet | Saruwatari Zavala, Garbiñe |
author_sort | Saruwatari Zavala, Garbiñe |
collection | PubMed |
description | With the increasing use of direct-to-consumer (DTC) genetic testing, several cases of fertility fraud have been uncovered throughout the world. A review of newspaper articles and specialized literature was made to analyze the issue of fertility fraud. The most famous cases, some of which are narrated in this article, became a scandal because they were committed by the doctors who treated the patients in question as a routine procedure in their medical practice. Some have been widely exposed in documentaries on streaming platforms, thereby raising awareness about a grave problem. The discussion focuses on the ambiguous regulation on the anonymity of donors, which has been one of the elements of the deception committed against the families using these services. Anonymity nowadays collides with the fascinating Pandora’s box of transparency in genetic information that has been opened by DTC genetic testing. |
format | Online Article Text |
id | pubmed-10235527 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | Frontiers Media S.A. |
record_format | MEDLINE/PubMed |
spelling | pubmed-102355272023-06-03 The Pandora’s box of transparency opened by direct-to-consumer genetic testing Saruwatari Zavala, Garbiñe Front Genet Genetics With the increasing use of direct-to-consumer (DTC) genetic testing, several cases of fertility fraud have been uncovered throughout the world. A review of newspaper articles and specialized literature was made to analyze the issue of fertility fraud. The most famous cases, some of which are narrated in this article, became a scandal because they were committed by the doctors who treated the patients in question as a routine procedure in their medical practice. Some have been widely exposed in documentaries on streaming platforms, thereby raising awareness about a grave problem. The discussion focuses on the ambiguous regulation on the anonymity of donors, which has been one of the elements of the deception committed against the families using these services. Anonymity nowadays collides with the fascinating Pandora’s box of transparency in genetic information that has been opened by DTC genetic testing. Frontiers Media S.A. 2023-05-19 /pmc/articles/PMC10235527/ /pubmed/37274784 http://dx.doi.org/10.3389/fgene.2023.1175666 Text en Copyright © 2023 Saruwatari Zavala. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms. |
spellingShingle | Genetics Saruwatari Zavala, Garbiñe The Pandora’s box of transparency opened by direct-to-consumer genetic testing |
title | The Pandora’s box of transparency opened by direct-to-consumer genetic testing |
title_full | The Pandora’s box of transparency opened by direct-to-consumer genetic testing |
title_fullStr | The Pandora’s box of transparency opened by direct-to-consumer genetic testing |
title_full_unstemmed | The Pandora’s box of transparency opened by direct-to-consumer genetic testing |
title_short | The Pandora’s box of transparency opened by direct-to-consumer genetic testing |
title_sort | pandora’s box of transparency opened by direct-to-consumer genetic testing |
topic | Genetics |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10235527/ https://www.ncbi.nlm.nih.gov/pubmed/37274784 http://dx.doi.org/10.3389/fgene.2023.1175666 |
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