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The Pandora’s box of transparency opened by direct-to-consumer genetic testing

With the increasing use of direct-to-consumer (DTC) genetic testing, several cases of fertility fraud have been uncovered throughout the world. A review of newspaper articles and specialized literature was made to analyze the issue of fertility fraud. The most famous cases, some of which are narrate...

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Autor principal: Saruwatari Zavala, Garbiñe
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10235527/
https://www.ncbi.nlm.nih.gov/pubmed/37274784
http://dx.doi.org/10.3389/fgene.2023.1175666
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author Saruwatari Zavala, Garbiñe
author_facet Saruwatari Zavala, Garbiñe
author_sort Saruwatari Zavala, Garbiñe
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description With the increasing use of direct-to-consumer (DTC) genetic testing, several cases of fertility fraud have been uncovered throughout the world. A review of newspaper articles and specialized literature was made to analyze the issue of fertility fraud. The most famous cases, some of which are narrated in this article, became a scandal because they were committed by the doctors who treated the patients in question as a routine procedure in their medical practice. Some have been widely exposed in documentaries on streaming platforms, thereby raising awareness about a grave problem. The discussion focuses on the ambiguous regulation on the anonymity of donors, which has been one of the elements of the deception committed against the families using these services. Anonymity nowadays collides with the fascinating Pandora’s box of transparency in genetic information that has been opened by DTC genetic testing.
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spelling pubmed-102355272023-06-03 The Pandora’s box of transparency opened by direct-to-consumer genetic testing Saruwatari Zavala, Garbiñe Front Genet Genetics With the increasing use of direct-to-consumer (DTC) genetic testing, several cases of fertility fraud have been uncovered throughout the world. A review of newspaper articles and specialized literature was made to analyze the issue of fertility fraud. The most famous cases, some of which are narrated in this article, became a scandal because they were committed by the doctors who treated the patients in question as a routine procedure in their medical practice. Some have been widely exposed in documentaries on streaming platforms, thereby raising awareness about a grave problem. The discussion focuses on the ambiguous regulation on the anonymity of donors, which has been one of the elements of the deception committed against the families using these services. Anonymity nowadays collides with the fascinating Pandora’s box of transparency in genetic information that has been opened by DTC genetic testing. Frontiers Media S.A. 2023-05-19 /pmc/articles/PMC10235527/ /pubmed/37274784 http://dx.doi.org/10.3389/fgene.2023.1175666 Text en Copyright © 2023 Saruwatari Zavala. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Genetics
Saruwatari Zavala, Garbiñe
The Pandora’s box of transparency opened by direct-to-consumer genetic testing
title The Pandora’s box of transparency opened by direct-to-consumer genetic testing
title_full The Pandora’s box of transparency opened by direct-to-consumer genetic testing
title_fullStr The Pandora’s box of transparency opened by direct-to-consumer genetic testing
title_full_unstemmed The Pandora’s box of transparency opened by direct-to-consumer genetic testing
title_short The Pandora’s box of transparency opened by direct-to-consumer genetic testing
title_sort pandora’s box of transparency opened by direct-to-consumer genetic testing
topic Genetics
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10235527/
https://www.ncbi.nlm.nih.gov/pubmed/37274784
http://dx.doi.org/10.3389/fgene.2023.1175666
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