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Risikofaktoren bei Geschwistern chronisch kranker/behinderter Kinder

BACKGROUND: Siblings of children with chronic health conditions or disabilities have an increased risk for developmental difficulties. Therefore, preventive programs aimed to facilitate resiliency were developed. OBJECTIVES: This study intends to investigate the condition-related psychological, soci...

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Autores principales: Sievert, Charlotte, Kulisch, Leonard Konstantin, Engelhardt-Lohrke, Christa, Kowalewski, Kerstin, Jagla-Franke, Melanie
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10237061/
http://dx.doi.org/10.1007/s11553-023-01044-5
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author Sievert, Charlotte
Kulisch, Leonard Konstantin
Engelhardt-Lohrke, Christa
Kowalewski, Kerstin
Jagla-Franke, Melanie
author_facet Sievert, Charlotte
Kulisch, Leonard Konstantin
Engelhardt-Lohrke, Christa
Kowalewski, Kerstin
Jagla-Franke, Melanie
author_sort Sievert, Charlotte
collection PubMed
description BACKGROUND: Siblings of children with chronic health conditions or disabilities have an increased risk for developmental difficulties. Therefore, preventive programs aimed to facilitate resiliency were developed. OBJECTIVES: This study intends to investigate the condition-related psychological, social, and economic burdens of families taking part in prevention programs. Moreover, whether other potential sociodemographic risk factors exist among participating siblings was also investigated. METHODS: A total of 79 families of participating children were included. The Impact on Family Scale and a demographic questionnaire were used. The cumulative risk approach was used to analyze sociodemographic risk. RESULTS: Participating families reported being more burdened by the health condition/disability compared to norm data. Additional sociodemographic risk factors were found for 56% of the children. CONCLUSIONS: Preventive programs reach burdened families. Sibling support should be developed further.
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spelling pubmed-102370612023-06-06 Risikofaktoren bei Geschwistern chronisch kranker/behinderter Kinder Sievert, Charlotte Kulisch, Leonard Konstantin Engelhardt-Lohrke, Christa Kowalewski, Kerstin Jagla-Franke, Melanie Präv Gesundheitsf Originalarbeit BACKGROUND: Siblings of children with chronic health conditions or disabilities have an increased risk for developmental difficulties. Therefore, preventive programs aimed to facilitate resiliency were developed. OBJECTIVES: This study intends to investigate the condition-related psychological, social, and economic burdens of families taking part in prevention programs. Moreover, whether other potential sociodemographic risk factors exist among participating siblings was also investigated. METHODS: A total of 79 families of participating children were included. The Impact on Family Scale and a demographic questionnaire were used. The cumulative risk approach was used to analyze sociodemographic risk. RESULTS: Participating families reported being more burdened by the health condition/disability compared to norm data. Additional sociodemographic risk factors were found for 56% of the children. CONCLUSIONS: Preventive programs reach burdened families. Sibling support should be developed further. Springer Berlin Heidelberg 2023-06-02 /pmc/articles/PMC10237061/ http://dx.doi.org/10.1007/s11553-023-01044-5 Text en © The Author(s), under exclusive licence to Der/die Autor(en), exklusiv lizenziert an Springer-Verlag GmbH Deutschland, ein Teil von Springer Nature 2023. Springer Nature oder sein Lizenzgeber (z.B. eine Gesellschaft oder ein*e andere*r Vertragspartner*in) hält die ausschließlichen Nutzungsrechte an diesem Artikel kraft eines Verlagsvertrags mit dem/den Autor*in(nen) oder anderen Rechteinhaber*in(nen); die Selbstarchivierung der akzeptierten Manuskriptversion dieses Artikels durch Autor*in(nen) unterliegt ausschließlich den Bedingungen dieses Verlagsvertrags und dem geltenden Recht. This article is made available via the PMC Open Access Subset for unrestricted research re-use and secondary analysis in any form or by any means with acknowledgement of the original source. These permissions are granted for the duration of the World Health Organization (WHO) declaration of COVID-19 as a global pandemic.
spellingShingle Originalarbeit
Sievert, Charlotte
Kulisch, Leonard Konstantin
Engelhardt-Lohrke, Christa
Kowalewski, Kerstin
Jagla-Franke, Melanie
Risikofaktoren bei Geschwistern chronisch kranker/behinderter Kinder
title Risikofaktoren bei Geschwistern chronisch kranker/behinderter Kinder
title_full Risikofaktoren bei Geschwistern chronisch kranker/behinderter Kinder
title_fullStr Risikofaktoren bei Geschwistern chronisch kranker/behinderter Kinder
title_full_unstemmed Risikofaktoren bei Geschwistern chronisch kranker/behinderter Kinder
title_short Risikofaktoren bei Geschwistern chronisch kranker/behinderter Kinder
title_sort risikofaktoren bei geschwistern chronisch kranker/behinderter kinder
topic Originalarbeit
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10237061/
http://dx.doi.org/10.1007/s11553-023-01044-5
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AT kowalewskikerstin risikofaktorenbeigeschwisternchronischkrankerbehinderterkinder
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