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Barriers and facilitating factors of care coordination for children with spinal muscular atrophy type I and II from the caregivers' perspective: an interview study

BACKGROUND: Children with medical complexity (CMC) require long-term care accompanied by different health- and social care professionals. Depending on the severity of the chronic condition, caregivers spend a lot of time coordinating appointments, communicating between providers, clarifying social l...

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Detalles Bibliográficos
Autores principales: Willems, Jana, Bablok, Isabella, Farin-Glattacker, Erik, Langer, Thorsten
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10239104/
https://www.ncbi.nlm.nih.gov/pubmed/37268965
http://dx.doi.org/10.1186/s13023-023-02739-w

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