Cargando…

Good to know – This is PPIE! Development of a training tool for public and patient involvement and engagement in pediatric oncological research

BACKGROUND: Public and Patient Involvement and Engagement (PPIE) in research is still a poorly understood and infrequently practiced concept, although the literature stresses clear benefits for quality of care and research as well as patient satisfaction and empowerment. AIM: The presently described...

Descripción completa

Detalles Bibliográficos
Autores principales:	Weiler‐Wichtl, Liesa Josephine, Leiss, Ulrike, Gojo, Johannes, Kienesberger, Anita, Hansl, Rita, Hopfgartner, Maximilian, Schneider, Carina
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	John Wiley and Sons Inc. 2023
Materias:	Original Articles
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10242658/ https://www.ncbi.nlm.nih.gov/pubmed/37165922 http://dx.doi.org/10.1002/cnr2.1835

Ejemplares similares

Bridging the gap: A quality improvement project to implement psychosocial care standards into clinical practice in pediatric oncology
por: Weiler-Wichtl, Liesa J., et al.
Publicado: (2023)

SWK-05. Clinical social work in pediatric neuro-oncology – A research project on the social dimension using social diagnostics
por: Krottendorfer, Kerstin, et al.
Publicado: (2022)

QOL-31. A psychosocial support program for young adult childhood cancer survivors in Austria: a qualitative evaluation study
por: Pletschko, Thomas, et al.
Publicado: (2022)

A Psychosocial Support Program for Young Adult Childhood Cancer Survivors in Austria: a Qualitative Evaluation Study
por: Pletschko, Thomas, et al.
Publicado: (2021)

QOL-29. Neuropsychology for you“ – tools to improve awareness of and access to neuropsychological care
por: Weiler-Wichtl, Liesa Josephine, et al.
Publicado: (2022)

Patient and public involvement and engagement (PPIE) in healthcare education and thesis work: the first step towards PPIE knowledgeable healthcare professionals
por: Karlsson, Anne Wettergren, et al.
Publicado: (2023)

Initial Evidence for Positive Effects of a Psychological Preparation Program for MRI “iMReady” in Children with Neurofibromatosis Type I and Brain Tumors—How to Meet the Patients’ Needs Best
por: Weiler-Wichtl, Liesa Josephine, et al.
Publicado: (2023)

QOL-35. School reentry of children and adolescents with a brain tumor: can we improve family-school-hospital cooperation? An analysis of supportive and inhibiting factors as a result of a pilot project
por: Leiss, Ulrike, et al.
Publicado: (2022)

Patient and Public Involvement and Engagement (PPIE): first steps in the process of the engagement in research projects in Brazil
por: Bensenor, I.M., et al.
Publicado: (2022)

A study of the reporting of patient and public involvement and engagement (PPIE) in orthodontic research
por: Patel, Veena A, et al.
Publicado: (2020)

The role of patient and public involvement and engagement (PPIE) within the development of the EQ Health and Wellbeing (EQ-HWB)
por: Carlton, Jill, et al.
Publicado: (2022)

PPIE in intervention studies: Randomized trials and clinical quality improvement
por: LeMaster, Joseph W.
Publicado: (2020)

QOL-30. Positive Effects of a psychological preparation program for MRI in children with cognitive issues – how to best meet the patients’ needs
por: Weiler-Wichtl, Liesa Josephine, et al.
Publicado: (2022)

Reporting of patient and public involvement and engagement (PPIE) in clinical trials published in nursing science journals: a descriptive study
por: Gray, Richard, et al.
Publicado: (2021)

Reflections from the COVID‐19 pandemic on inequalities and patient and public involvement and engagement (PPIE) in social care, health and public health research
por: Clark, Michael, et al.
Publicado: (2021)

The INSCHOOL project: showcasing participatory qualitative methods derived from patient and public involvement and engagement (PPIE) work with young people with long-term health conditions
por: Spencer, Bethan, et al.
Publicado: (2023)

SWK-06. Structured transition from pediatric neuro-oncology to adult survivorship follow-up care - Can we close the gap?
por: Krottendorfer, Kerstin, et al.
Publicado: (2022)

The role of patient and public involvement in rapid qualitative studies: Can we carry out meaningful PPIE with time pressures?
por: Gilchrist, Katie, et al.
Publicado: (2022)

GOOD TO KNOW: Standards of Care
Publicado: (2018)

Good to Know: Planning for Coronavirus
Publicado: (2020)

Sustained Survival Benefit in Recurrent Medulloblastoma by a Metronomic Antiangiogenic Regimen: A Nonrandomized Controlled Trial
por: Peyrl, Andreas, et al.
Publicado: (2023)

Good to Know: Diabetes and Heart Disease
Publicado: (2018)

Good to Know: Diabetes Risk Test
Publicado: (2019)

Good to Know: Nerve Damage and Diabetes
Publicado: (2019)

Good to Know: Type 1 Diabetes
Publicado: (2021)

Good to Know: Peripheral Arterial Disease
Publicado: (2021)

To summarise the approach to and findings of the PPIE undertaken as part of a programme of secondary research with a vulnerable, hard to reach population during the COVID-19 pandemic
por: McGrane, Niall, et al.
Publicado: (2023)

What Radiation Oncology Wants Medical Oncology to Know
por: Lukens, J. Nicholas, et al.
Publicado: (2016)

Good to Know: Factors Affecting Blood Glucose
Publicado: (2018)

Good to Know: All About Insulin Resistance
Publicado: (2018)

Good to Know: Race and Type 2 Diabetes
Publicado: (2020)

Good to Know: Kidney Disease: Signs and Treatment
Publicado: (2020)

Comprehensive Analysis of Gene Expression Profiles and DNA Methylome reveals Oas1, Ppie, Polr2g as Pathogenic Target Genes of Gestational Diabetes Mellitus
por: Zhang, Yan, et al.
Publicado: (2018)

Is fever good? What do we actually know?
por: Rhodes, Jonathan KJ
Publicado: (2015)

Good to Know: ADA’s Standards of Medical Care in Diabetes
Publicado: (2019)

Good to Know: Diabetes and Your Emotional Well-Being
Publicado: (2019)

Screening Mammography: What Good Is It and How Can We Know If It Works?
por: Vannier, Michael W.
Publicado: (2012)

GOOD TO KNOW: Information from the American Diabetes Association for people with diabetes
Publicado: (2017)

GOOD TO KNOW: Information from the American Diabetes Association for people with diabetes
Publicado: (2017)

Information from the American Diabetes Association for people with diabetes: GOOD TO KNOW
Publicado: (2017)

Cannot write session to /tmp/vufind_sessions/sess_fk9ogmmom7sbnnd67vbljnaleu