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The fertility of moral ambiguity in precision medicine
Although precision medicine cuts across a large spectrum of professions, interdisciplinary and cross-sectorial moral deliberation has yet to be widely enacted, let alone formalized in this field. In a recent research project on precision medicine, we designed a dialogical forum (i.e. ‘the Ethics Lab...
Autores principales: | , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer Netherlands
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10243698/ https://www.ncbi.nlm.nih.gov/pubmed/37280471 http://dx.doi.org/10.1007/s11019-023-10160-0 |
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author | Knox, Jeanette Bresson Ladegaard Svendsen, Mette Nordahl |
author_facet | Knox, Jeanette Bresson Ladegaard Svendsen, Mette Nordahl |
author_sort | Knox, Jeanette Bresson Ladegaard |
collection | PubMed |
description | Although precision medicine cuts across a large spectrum of professions, interdisciplinary and cross-sectorial moral deliberation has yet to be widely enacted, let alone formalized in this field. In a recent research project on precision medicine, we designed a dialogical forum (i.e. ‘the Ethics Laboratory’) giving interdisciplinary and cross-sectorial stakeholders an opportunity to discuss their moral conundrums in concert. We organized and carried out four Ethics Laboratories. In this article, we use Simone de Beauvoir’s concept of moral ambiguity as a lens to frame the participants’ experience with fluid moral boundaries. By framing our approach through this concept we are able to elucidate irremediable moral issues that are collectively underexplored in the practice of precision medicine. Moral ambiguity accentuates an open and free space where different types of perspectives converge and can inform each other. Based on our study, we identified two dilemmas, or thematic interfaces, in the interdisciplinary moral deliberations which unfolded in the Ethics Laboratories: (1) the dilemma between the individual and the collective good; and (2) the dilemma between care and choice. Through our investigation of these dilemmas, we show how Beauvoir’s concept of moral ambiquity not only serves as a fertile catalyst for greater moral awareness but, furthermore, how the concept can become an indispensable part of the practices of and the discourse about precision medicine. |
format | Online Article Text |
id | pubmed-10243698 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | Springer Netherlands |
record_format | MEDLINE/PubMed |
spelling | pubmed-102436982023-06-07 The fertility of moral ambiguity in precision medicine Knox, Jeanette Bresson Ladegaard Svendsen, Mette Nordahl Med Health Care Philos Scientific Contribution Although precision medicine cuts across a large spectrum of professions, interdisciplinary and cross-sectorial moral deliberation has yet to be widely enacted, let alone formalized in this field. In a recent research project on precision medicine, we designed a dialogical forum (i.e. ‘the Ethics Laboratory’) giving interdisciplinary and cross-sectorial stakeholders an opportunity to discuss their moral conundrums in concert. We organized and carried out four Ethics Laboratories. In this article, we use Simone de Beauvoir’s concept of moral ambiguity as a lens to frame the participants’ experience with fluid moral boundaries. By framing our approach through this concept we are able to elucidate irremediable moral issues that are collectively underexplored in the practice of precision medicine. Moral ambiguity accentuates an open and free space where different types of perspectives converge and can inform each other. Based on our study, we identified two dilemmas, or thematic interfaces, in the interdisciplinary moral deliberations which unfolded in the Ethics Laboratories: (1) the dilemma between the individual and the collective good; and (2) the dilemma between care and choice. Through our investigation of these dilemmas, we show how Beauvoir’s concept of moral ambiquity not only serves as a fertile catalyst for greater moral awareness but, furthermore, how the concept can become an indispensable part of the practices of and the discourse about precision medicine. Springer Netherlands 2023-06-06 2023 /pmc/articles/PMC10243698/ /pubmed/37280471 http://dx.doi.org/10.1007/s11019-023-10160-0 Text en © The Author(s) 2023 https://creativecommons.org/licenses/by/4.0/Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . |
spellingShingle | Scientific Contribution Knox, Jeanette Bresson Ladegaard Svendsen, Mette Nordahl The fertility of moral ambiguity in precision medicine |
title | The fertility of moral ambiguity in precision medicine |
title_full | The fertility of moral ambiguity in precision medicine |
title_fullStr | The fertility of moral ambiguity in precision medicine |
title_full_unstemmed | The fertility of moral ambiguity in precision medicine |
title_short | The fertility of moral ambiguity in precision medicine |
title_sort | fertility of moral ambiguity in precision medicine |
topic | Scientific Contribution |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10243698/ https://www.ncbi.nlm.nih.gov/pubmed/37280471 http://dx.doi.org/10.1007/s11019-023-10160-0 |
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