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A practical checklist for return of results from genomic research in the European context
An increasing number of European research projects return, or plan to return, individual genomic research results (IRR) to participants. While data access is a data subject’s right under the General Data Protection Regulation (GDPR), and many legal and ethical guidelines allow or require participant...
Autores principales: | Vears, Danya F., Hallowell, Nina, Bentzen, Heidi Beate, Ellul, Bridget, Nøst, Therese Haugdahl, Kerasidou, Angeliki, Kerr, Shona M., Th. Mayrhofer, Michaela, Mežinska, Signe, Ormondroyd, Elizabeth, Solberg, Berge, Sand, Birgitte Wirum, Budin-Ljøsne, Isabelle |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer International Publishing
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10250331/ https://www.ncbi.nlm.nih.gov/pubmed/36949262 http://dx.doi.org/10.1038/s41431-023-01328-6 |
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