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OTHR-11. THE IMPORTANCE AND INFLUENCE OF PATIENT FAMILY INVOLVEMENT IN PEDIATRIC NEURO-ONCOLOGY RESEARCH
The involvement of patient families in clinical research in pediatric brain cancer is an underutilized tool that benefits all those involved. These families are ultimately responsible for making decisions on treatment, as well as end-of-life decisions such as post-mortem tissue donation. As demonstr...
Autores principales: | Lyons, Nicole, Resnick, Adam, Waanders, Angela, Nazarian, Javad, Bornhorst, Miriam, Minturn, Jane E, Koptyra, Mateusz, Monje-Deisseroth, Michelle, Souweidane, Mark, Greenfield, Jeffery P, Smith, Amy, Hegert, Julia, McLean, Ginny, Gustafson, Patti, Gustafson, Allen, Ward, Lisa |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Oxford University Press
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10260144/ http://dx.doi.org/10.1093/neuonc/noad073.293 |
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