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Exploring professionals' practices and perspectives on supporting parents with intellectual disabilities: a qualitative study

INTRODUCTION: Evidence suggests that parents with intellectual disabilities require appropriate parenting support. However, professional practices vary widely, and several barriers and challenges persist in supporting parents with intellectual disabilities. To identify effective and collaborative pr...

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Autores principales: Rinaldi, Romina, Legierski, Manon, Wauthia, Erika, Mazza, Emma, Batselé, Elise
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10261979/
https://www.ncbi.nlm.nih.gov/pubmed/37325128
http://dx.doi.org/10.3389/fresc.2023.1153570
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author Rinaldi, Romina
Legierski, Manon
Wauthia, Erika
Mazza, Emma
Batselé, Elise
author_facet Rinaldi, Romina
Legierski, Manon
Wauthia, Erika
Mazza, Emma
Batselé, Elise
author_sort Rinaldi, Romina
collection PubMed
description INTRODUCTION: Evidence suggests that parents with intellectual disabilities require appropriate parenting support. However, professional practices vary widely, and several barriers and challenges persist in supporting parents with intellectual disabilities. To identify effective and collaborative practices, this study investigated practices reported by professionals and their roles in providing services to parents with intellectual disabilities. METHODS: Semi-structured interviews were conducted with 22 professionals from three sectors (disability, early childhood, and healthcare), and the content was analysed using inductive thematic analysis. RESULTS: Thematic analyses yielded four main themes: (1) Perceived professional practices, (2) professional stances, (3) the frame of reference and the ethics of support, (4) the experience of providing support. They are described in terms of content and distribution across sectors to provide an overview of practices as well as potential discrepancies. CONCLUSIONS: This study concludes by developing recommendations on good practices for support professionals to respond as adequately as possible to meet the needs of parents and future parents with intellectual disabilities, which include structural support and guidelines for professionals to provide sensitive, family-centred, and enabling support.
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spelling pubmed-102619792023-06-15 Exploring professionals' practices and perspectives on supporting parents with intellectual disabilities: a qualitative study Rinaldi, Romina Legierski, Manon Wauthia, Erika Mazza, Emma Batselé, Elise Front Rehabil Sci Rehabilitation Sciences INTRODUCTION: Evidence suggests that parents with intellectual disabilities require appropriate parenting support. However, professional practices vary widely, and several barriers and challenges persist in supporting parents with intellectual disabilities. To identify effective and collaborative practices, this study investigated practices reported by professionals and their roles in providing services to parents with intellectual disabilities. METHODS: Semi-structured interviews were conducted with 22 professionals from three sectors (disability, early childhood, and healthcare), and the content was analysed using inductive thematic analysis. RESULTS: Thematic analyses yielded four main themes: (1) Perceived professional practices, (2) professional stances, (3) the frame of reference and the ethics of support, (4) the experience of providing support. They are described in terms of content and distribution across sectors to provide an overview of practices as well as potential discrepancies. CONCLUSIONS: This study concludes by developing recommendations on good practices for support professionals to respond as adequately as possible to meet the needs of parents and future parents with intellectual disabilities, which include structural support and guidelines for professionals to provide sensitive, family-centred, and enabling support. Frontiers Media S.A. 2023-05-30 /pmc/articles/PMC10261979/ /pubmed/37325128 http://dx.doi.org/10.3389/fresc.2023.1153570 Text en © 2023 Rinaldi, Legierski, Wauthia, Mazza and Batselé. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY) (https://creativecommons.org/licenses/by/4.0/) . The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Rehabilitation Sciences
Rinaldi, Romina
Legierski, Manon
Wauthia, Erika
Mazza, Emma
Batselé, Elise
Exploring professionals' practices and perspectives on supporting parents with intellectual disabilities: a qualitative study
title Exploring professionals' practices and perspectives on supporting parents with intellectual disabilities: a qualitative study
title_full Exploring professionals' practices and perspectives on supporting parents with intellectual disabilities: a qualitative study
title_fullStr Exploring professionals' practices and perspectives on supporting parents with intellectual disabilities: a qualitative study
title_full_unstemmed Exploring professionals' practices and perspectives on supporting parents with intellectual disabilities: a qualitative study
title_short Exploring professionals' practices and perspectives on supporting parents with intellectual disabilities: a qualitative study
title_sort exploring professionals' practices and perspectives on supporting parents with intellectual disabilities: a qualitative study
topic Rehabilitation Sciences
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10261979/
https://www.ncbi.nlm.nih.gov/pubmed/37325128
http://dx.doi.org/10.3389/fresc.2023.1153570
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